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gfreston

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About gfreston

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  1. Yes, the question is - go all out at first or remove one then the other. I'm really torn. On the one hand, I think "peeling off the band-aid quickly" might be best. Everyone is going to be upset anyway - might as well go all the way. Then in a few months, add back in some dairy and see how it goes. But those first couple weeks are going to be rough - and I won't know whether it's the dairy or the gluten removal causing the relief of symptoms. The other plan would be to go gluten free first and just reduce our dairy consumption gradually. (I've already started going dairy free.) Then after a few months do a dairy-free trial. I think I'm leaning toward this approach. I think the family will "stomach" it better. Thanks to everyone for your suggestions and input!
  2. I would be so grateful for some help interpreting my family's Entero lab results. I had a positive blood test for gluten intolerance 4 years ago, so I have been gluten-free since then (although lately there have been some cross-contamination issues). I decided to have my whole family tested last month so that I could test out some suspicions of mine. Here are the results on my kids and husband: Husband: Fecal Anti-gliadin IgA 6 Units (Normal Range <10 Units) Fecal Anti-tissue Transglutaminase IgA 11 Units (Normal Range <10 Units) Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units) HLA-DQB1 Molecular analysis, Allele 1 0201 HLA-DQB1 Molecular analysis, Allele 2 0602 Serologic equivalent: HLA-DQ 2,1 (Subtype 2,6) Question 1: What is an 11? Does he really need to eliminate gluten? He carries the genetic markers for celiac (02) and one for gluten sensitivity accord. to Dr. Fine (06) but his results seem iffy to me. (BTW - he is very skinny and has to overeat to the point of being uncomfortable to gain weight.) Son #1: Fecal Anti-gliadin IgA 20 Units (Normal Range <10 Units) Fecal Anti-tissue Transglutaminase IgA 16 Units (Normal Range <10 Units) Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units) HLA-DQB1 Molecular analysis, Allele 1 0602 HLA-DQB1 Molecular analysis, Allele 2 0602 Serologic equivalent: HLA-DQ 1,1 (Subtype 6,6) Question 2: It looks like Son#1 cannot have celiac disease b/c he doesn't carry the gene. However he is clearly reacting to gluten (and has two copies of a gluten sensitivity genetic marker )- but the numbers aren't terribly high. Would reducing gluten help him or does he absolutely need to go gluten-free? (I think I know the answer but I'm holding on to some wishful thinking here.) Son #2: Fecal Anti-gliadin IgA 44 Units (Normal Range <10 Units) Fecal Anti-tissue Transglutaminase IgA 28 Units (Normal Range <10 Units) Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units) HLA-DQB1 Molecular analysis, Allele 1 0201 HLA-DQB1 Molecular analysis, Allele 2 0602 Serologic equivalent: HLA-DQ 2,1 (Subtype 2,6) Question 3: He has both the genetic marker for celiac and is gluten sensitive. Looks like a no brainer to me, but thoughts on getting the biopsy done anyway... Question 4: My test indicated a Fecal Fat score of 917 units (remember the cross-contamination), but the kids and hubby had normal scores. What does this mean - especially for the kids? Are they reacting to gluten but still absorbing fats and nutrients normally? Now for the bonus question: The boys and I all indicated a sensitivity to casein as well (Darn that Dr. Fine for including it in the complete panel!). I scored 37, Son#1 scored 14, Son#2 scored 16 with normal range <10. If you know anything about this please tell me if this means we have to *eliminate* all casein from the diet or whether we can *cut back*. Dr. Fine's report says to eliminate it, but that wishful thinking won't give up! Thank you so much in advance! I need to be armed with all the facts before I throw out every scrap of gluten (and maybe casein) in my house and begin a mandatory gluten-free (cf) family diet. Mutiny is certain to ensue and I need some good ammunition!
  3. I need some advice! I am a celiac mom (diagnosed through blood test after my sister had positive biopsy. since then both my mom and my other sister were diagnosed). I have two boys - 6 1/2 and 3 yrs. Both have always had mostly loose, odorous stools. But I wouldn't exactly call them diarrhea - most of the time. My older son had a blood test when he was 4 yrs old that came back "negative" but gave almost no specific info to help me interpret his results. (All it said was: "Endomysial Ab, IgA Screen: none det, Endomysial Ab, IgA Titer: not done.") I've always been suspicious that the test was not accurate. He never complains of stomach pains. He eats like a horse and is growing very normally. He does have a pretty big belly - which makes me wonder. He potty trained at age 3 with no difficulty. My younger son has never been tested. But he is in the potty training process right now and I wonder if his experience might be indicating celiac. He is 3 yrs and 3 months old and seems to be able to hold his urine, when he wants to. But his poops are so loose I wonder if he just can't control them enough to go in the toilet, or whether he's just not ready to potty train yet. I can't tell. He does seem to be getting skinnier - but not unhealthily so. I know I should go ahead and have them tested. But, my experience with the blood testing of my older son was pretty frustrating. Anytime I've mentioned the loose stool to the pediatrician, they ask about his diet and they find out that both of them have a pretty high fiber diet - especially lots of fruit. I know they would have them tested if I ask - since I have celiac disease. But they were the ones to request my older son's first test. And I don't want to put the boys through the biopsy if I don't have to. I wonder if a gi would even see them given their slight symptoms. I am considering going the EnteroLab route, but will have some serious convincing to do with my husband to pay out of pocket the $700+ - since neither one seems to be "sick" or in pain. Maybe one of the individual tests would be a less expensive route? Have any of you ever just done the gluten-free diet with your kids, without having any other testing? Are there any big drawbacks to doing this? My reservations with doing this are: 1. What will be my criteria for assessing whether the diet has been helpful? The only symptoms seem to be loose stools. Although, someone in a message board post mentioned behavioral stuff like explosive temper and my older son definitely has this. 2. If they go gluten-free without testing, will I be able to convince their doctors in the future that they actually have celiac disease? Or will I have to go back and do the blood/biopsy/or stool tests anyway? Any advice you can give me from your own experience would be welcome! Thank you.
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