Since my sister told me that she was recently diagnosed with celiac disease, I have been lurking on this site to try to educate myself about celiac disease. I figured it was time to register and get acquainted. I have been helping her by sending her links to articles, info about celiac disease, recipes, etc. Like many of you, she is overwhelmed with the gluten-free diet, etc. I went to Borders and purchased Celiac Disease, A Hidden Epidemic, read much of it, and have urged her to buy it as well. I found this book to be very helpful. I couldn't believe it when she told me the only thing her doctor told her was that she had celiac disease, sent her to the nurse who then gave her a print-out of recipes - that was it! After reading the book, I am dumbfounded.
After learning about her dx and reading the Celiac disease book, I began to wonder if I might have celiac disease. I have had a life-long problem with overwhelming fatigue. I have been troubled recently with an itchy rash on my back and a bit under my arms. I went to my dr and he took a quick peek and said "you have eczema". When my UC was diagnosed 5 years ago, I did have a strange quarter-sized rash on the inner aspect of my elbows. I mentioned to my doctor that my sister had just been dx'd with celiac disease, and he very reluctantly ordered blood tests. The results came back negative. I was diagnosed with ulcerative colitis about five years ago, so I do get diarrhea occasionally and have had that off and on most of my life. I am currently in remission with the UC, however.
Well, that's about about me and my sister. I hope to "meet" many of you and learn all I can about celiac disease.
Thanks for reading my introduction.
Count Your Blessings, Not Your Worries