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About Janie*

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    Providence, RI
  1. I appreciate everyones opinion. It was a difficult decision to make but I know myself and I want to be 100% sure that I actually have Celiac (can you tell I am a die-hard pragmatist?). I have done an elimination diet and had other tests done and I am tired of not knowing. If it is something less/more serious I want to know, and I trust this doctor. The good thing is I will NEVER be tempted to cheat after this month! thanks again for your opinions and concerns, I'll keep you 'posted'
  2. Hello All--first want to say that although I've only posted once, I log on often just to browse. I am so happy to have found a group of intellignet and articulate people who understand what I am going through. I have been gluten-free for about three years after being diagnosed with Celiac. I was diagnosed based on my symptoms (rapid weight loss, anemia, bloating, pain after every meal, etc) and a serum test. The doctor just told me "oh, you don't need a biopsy, this is really no big deal anyway, you just can't eat bread anymore." Needless to say, I educated myself on the disease and was very healthy for 2 1/2 years. I recently started getting sick again (while on a gluten free diet) with the same and additional symptoms. Long story short, I went to a Celiac specialist who has scheduled a biopsy for a month from now. She has also urged me to go back on gluten to re-damage my villi for the test. I have been on gluten for about a week and I am so sick. She ran the DNA test which came back positive, but even after that told me to stay on the gluten. I want to, because her concern (and mine) is that I have something more or less serious and that is why I have been really sick recently, despite being on a gluten-free diet. I guess I am committed to eating gluten for another month. I know that I don't need a piece of paper to tell me that gluten makes me sick, but I would really like to get to the bottom of my health issues. Anyone have any suggestions to relieve my temporary suffering caused by gluten? Has anyone elso opted to do this? Do you think a month is even enough time to re-damage my stomach visabley? Any hlep would be appreciated. Thank you all
  3. Usually I can tell within an hour or so..and then the stomach cramps and bloating begin. OUCH!
  4. Thank you all for your advice. I think I will go to the doctor soon if I can't manage to work it out by elimination. Feels good to know there are others in similiar situations..none of my family members have been diagnosed and my friends are all allergy free. Go figure!
  5. Hi! This is my first post. I am 23 and have been gluten-free for 3+ years. After adjusting to the diet I felt better than ever before. Recently, however, I get terrible stomach pains after I eat anything. They feel like the pains I get when I accidentally ingest gluten, but I never intentionally eat gluten and I am very cautious about contamination. I am experimenting with the Paleo diet right now to see if I can discover any other allergies I may have. If anyone has and suggestions/comments or advice, it would be much appreciated. I feel like I did before I was diagnosed with Celiac and it is terrible!
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