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nora_n

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nora_n last won the day on September 1 2014

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  1. only 92% have DQ2.5 and DQ8, which are the official celiac genes.

     

    Th rest have other genes, or half.

     

    Call the lab to get the full results. 

     

    Several people here have gotten the full results.

     

    ---

    Here is a paper on why DQ9 is a celiac gene, and DQ2,2 and DQ7, and DQ2,3

    The labs will report those are not celiac genes.....

    https://www.duo.uio.no/handle/10852/28050 bottom of page, a pdf


  2. On one of the forums I am on, there are two with lack of the enzyme to break down fructose. That causes a lot of gas and intestinal symptoms. it usually takes several years before a doctor tests for that.

     

    And several on th forums have non-celiac gluten sensitivity, for which there are no tests. It is probably an intolerance to some complicated starches in wheat, or some mast cell issue where the body reacts directly to wheat and other things. No useful tests except elimination tests.

     

    Nora


  3. spinch, you work in a lab, you can ask the pathologist to perform the immunohistochemistry tests. The biopsy can look completely normal (but yours are not normal there are signs of inflammation . You had increased number of IEL or those inflammation cells I mentioned ) Bit if the imunohistochemistry is positive for immune cells, then it is a definite celiac diagnosis. They are starting to do them on more and more biopsies over in Europe.


  4. I have seen other numbers, like 20% are Ttg negative when there is total villous atrophy and 40% are negative on Ttg  when there is patchy celiac (the most common form nowadays)

     

    The antibodies are made locally in the intestine, and just a little spills over into the blood, and the amount can vary a lot. Additionally, there is a rather high cutoff because they want to avoid sending people to biopsies that do not have enough villi damage to get a diagnosis....

     

    (The latter with the 40% I ran across in some articles about the then new DGP test, which is designed to find celiac when there is patchy celiac, and early celiac)

     

    Nora


  5. Someone here posted about two-three years ago and was angry he later got diagnosed with microscopic colitis. His Enterolab tests had been positive for gluten sensitivity....and he could see no connection.

    We answered, that is what the tests initially were developed for. But that Fine also saw that the tests were positive for many others. He could not dismiss the tests altogether, so he offered them to people. But they only test for gluten sensitivity. (and microscopic colitis)