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emtek5

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About emtek5

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  1. Thanks for the advice. I started my son on the gluten free diet today. I expected him to give me a hard time about it but he's willing to give it a try. We'll see what happens.
  2. HI. I was wondering if anyone could help me. My 11 year old son has a rash on both legs from the knees down to the ankles. They appear as itchy blisters and then they pop and look like open sores. He has 30-50 on each leg. He has blood on his pants where some of the blisters rub. It looks like some of the pictures of DH on the internet but it's hard to tell. He is embarrassed to wear shorts because his legs look so bad. He was tested for celiac last year and was negative although he has the genetic marker. I have celiac disease but not Dh. My mother, sister, and neice also have celiac disease. The dermatologist I took him to looked at him for two seconds and gave him a cream. He did not think it was Dh. I don't really trust doctors too much since it took me years to get my diagnosis. I was thinking of putting him on the gluten free diet to see what happens. Could anyone tell me if this sounds like Dh? Thanks!
  3. HI. My daughter has recently started the gluten free diet. She is going on a trip to Boston with her school in May. I want to chaperone so I can make sure she gets what she needs and doesn't get sick. I called the school and talked to the Assistant principal who is in charge of the trip and explained the problem and told him my daughter needs me there as a chaperone. He would not guarantee that I would be picked. They do it by lottery. He said to put a note with my application explaining the situation and they would decide then. He said lots of kids have medical problems who might need their parent to chaperone. I understand this. I don't think he really understands the disease and how complicated eating out can be on the gluten free diet. I don't trust anyone taking care of her dietary needs. She doesn't yet know how to speak up for herself when it comes to this diet. I know how hard it is to talk to inexperienced wait staff and I'm an adult. Who's going to listen to a 12 year old.What if she gets sick? She's only 12 and doesn't know how to take care of herself away from home.They are having a buffet dinner/dance on the first night ( mostly pasta and bread). The next day they are completely on there own to find meals. According to the school nurse who goes on the trip this is usually a bagel shop. She really needs me there. Any advice on what to include in the letter to make them understand how important it is that I go with her? Thanks!
  4. Thanks so much for the support. I did bring my daughter shopping to pick out snacks that she would enjoy.I have always limited chips and sweets in the past but I feel she needs to be pampered a bit right now. It helps that I've been gluten free for over two years now and we know alot about what goodies she can eat. The issue at her age is how she will handle socializing with friends and eating at their houses. Pizza and bagels are her favorite foods. It's definitely going to be harder for her than it was for me. But, we will take it one day at a time. I'm hoping she'll see a difference in how she feels and see that the diet is a good thing.
  5. Hi. This is my first post, although I have frequented this website for the past two years since I was first diagnosed with celiac. I must say that the information I have obtained from this site has greatly helped me and made living with celiac much easier. I have three children, ages 12, 9, and 7. They have had the blood test done for celiac and all three tested negative. The problem now is with my 12 year old daughter. She has always had problems with constipation, sometimes severe. She has been on prozac for 2 years for anxiety, and has been diagnosed with mild ADD by a neuropsychologist. She has lichen sclerosis which is an autoimmune disease that, when active destroys the skin of the vulvar area if not treated. There is no cure. This is a chronic condition that has no known cause. She has had her blood tested for celiac twice by the pediatrician, the last about 8 months ago. Each time it was negative. The doctor said there was nothing to worry about. The bouts with constipation have become so frequent and severe that I decided to have her stool tested through Enterolab. Her Fecal Antigliadin IgA was 20. The normal range is < 10 units. They recommend a gluten free diet (which she has just started). I did not get all the tests available because my insurance doesn't cover it and I thought that knowing she is gluten sensitive is enough, since I have celiac, as do my sister and mother. So there is a strong family history. Now I am regretting not having the other tests like the ttg doneto know definitively if it's celiac. Either way she needs a gluten free diet. I am making myself crazy doubting myself when I should be relieved that I have an answer. It breaks my heart that she has to deal with this too at such a young age. She is so sad. Any advice? Thanks, Liz.
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