• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   04/07/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


Advanced Members
  • Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

1 Follower

About 3boyzmom

  • Rank
    Community Member

Contact Methods

  • Website URL
  • ICQ

Profile Information

  • Gender
  • Location
    So. California
  1. Mike, I only just spotted your response today. I am unsure as to why there is not more mention of liver problems in association with celiac disease... but I did a google myself and came up with these links: The liver in adult celiac disease. Gluten-free: celiac disease could be the cause of your gastrointestinal problems. This is just an antecdotal story and she mentions having elevated liver enzymes as a red flag... I don't see much else out there... many sites list "mildly elevated liver enzymes" as a sign of celiac disease, but other than that there's not much else. I am glad to see that your numbers dropped! That is a great result... but I agree with everyone else and strongly encourage you to go completely gluten-free. Hopefully you will see improvements in your liver labs... if not, please have your liver checked out... for it may be something that will not respond to the diet alone... maybe it's something more. God bless and good luck! Priscilla
  2. Within each set of genes there are many subtypes. The number *0201 is the exact gene your son has. Then withthin the grouping of *02xx genes there are subtypes. Same with any of the genes, so the *0602 is the DQ1, subtype 6. The genes pan out as follows: DQB1 *0201 = DQ2, subtype 2 DQB1 *0602 = DQ1, subtype 6 (OR it can also be referred to as DQ6) He has 2 genes, one from you and one from your husband. BOTH of these genes predispose someone to a gluten sensitivity. DQ2 is associated with celiac disease and gastro problems, while DQ1 is associated with gluten induced neurological problems. I would definitely take a look at you and your husband and any other children. There are some pretty good explanations on these genes and their typing on the Braintalk forum. Here is one post that gives some links to help understand your gene naming: Help with interpreting genetic results.
  3. Birthday Cakes

    We just tried Sylvan Border Farm's Lemon Cake Mix. We got it at our Whole Foods store. The batter was thick and heavy and I was sceptical, but after baking it, it was great! Very tasty... I made little bundt loaves and drizzled them with a homemade lemon/sugar glaze. Yumm!
  4. The elevated IgG indicates that his immune system has identified gliadin as an invader and boy is it fighting it! 80 is a pretty high count! He is definitely gluten intolerant and should stop eating gluten. The low IgA could mean IgA deficeincy or it just means he's not developing celiac disease right now. celiac disease is NOT the only auto immune disease connected to gluten intolerance. He does not have to be symptomatic for unseen damage to be taking place... he may be prone to juvenile diabetes, or Juvenile rheumetoid arthritis... For a better understanding of our antibodies and how they function check out Nutramed's definietions. They explain it in terms that I could understand: http://www.nutramed.com/immunology/antibodies.htm Here is what they say about IgA and IgG: "IgA: circulating and secreted on all defended body surfaces, as the first defense against invaders. Secretory (s IgA) is found in large amounts in breast milk, saliva, and gastrointestinal secretions. IgA may be an important and effective antibody in sites other than mucosal tissues, such as the central nervous system. IgA inhibits the binding of micro-organisms to mucosal surfaces, preventing entry. IgA plays a similar role in reducing antigen entry through mucosal surfaces. sIgA deficiency is associated with increased gastrointestinal tract permeability and increased manifestations of delayed patterns of food allergy. IgG is the major circulating antibody which enters tissues freely, and participates in diverse immune events. The IgG antibodies represent a large vocabulary of antigen recognition molecules. There are four subgroups, currently labeled with number suffixes, (IgG1 to 4). In some mucosal tissues (e.g. mammary glands of ruminants), the IgG1 class of immunoglobulin-producing cells predominates. IgG ( and IgM) activate complement." Hope this helps!
  5. More and more research is being done and we are finding out that a gluten intolerance is the basis for SEVERAL auto-immune diseases, of which celiac disease is only one. It is true that if you are gluten intolerant and continue to consume gluten you may or may not get celiac disease, but you will definitely get something. Just look in your family history to see what awaits you... is it thyroid imbalance, diabetes, arthritis, MS, fibromyalgia, Lupus, celiac disease, Crohn's, Colon cancer...??? An elevated IgG is nothing to ignore.... it means you are gluten intolerant and that your body has developed antibodies to gliadin. The IgA and the tTG are more specific to celiac disease because these are the antibodies that are set to defend the areas of the body with mucosal linings and would therefore indicate if there was an attack on the small intestine. The IgG are defenders that float in and around everywhere. which is why I believe that they are the ones responsible for the damage elsewhere. If they threw out the IgG then my son would still be sick and failing to thrive and on death's door... I had never heard of celiac disease until he tested positive for IgG and IgG only. I can't imagine what he would be like today if we hadn't caught it when we did
  6. Today Is My Appt.

    Karen, I just said a prayer for you and your doctors. God Bless!
  7. IS it the celiac disease that induces the liver problems or the gluten intolerance? The only reason they know about the multiple auto-immune disorders that are associated with celiac disease is because celiac disease is being studied by scientists. No one has started studying gluten intolerance in and of itself. Actually, people with elevated IgG are dismissed and given no direction. I strongly believe the gluten intolerance comes first... then depending on your genetics, the auto-immune disorder comes next... then if you live with a gluten intolerance and continue to consume gluten, everything is susceptible to illness. So, is it the damaged villi that cause the liver disfunction or the elevated anti-bodies to gliadin? Only science can tell... once someone starts looking at gluten intolerance as the tip of the iceberg. Here are a couple of links to articles showing that a gluten free diet can halt and even reverse hepatic damage! http://www.mercola.com/fcgi/pf/2002/may/8/gluten.htm http://www.celiac.com/st_prod.html?p_prodid=100 http://www.celiac.com/st_prod.html?p_prodid=157
  8. Well, what you should understand is that the elevated IgG alone means that your child is gluten intolerant and should stop eating gluten immediately. The IgA would be more specific to Celiac's disease in which the villi were damaged... children are naturally IgA deficient from birth to about 4 years old... and some people are IgA deficeint their whole lives. I feel that an elevated IgG alone means that you are pre-auto immune disease. Do what you think is right and don't wait for the doctors to figure it out... many of them never do.
  9. Unfortunately, it is very true... and it means that there are A LOT of people out there with a gluten intolerance that aren't being helped. Elevated IgA is more specific to damage in the intestines... but an elevated IgG is nothing to ignore. The IgG antibodies are the one's that roam freely throughout the body and they are the one's, I believe, are causing the 'other' disorders that have been linked to celiac disease: thyroid, arthritis, diabetes... If you have a gluten intolerance, evidenced by elevated antibodies to gliadin (IgA or IgG), then the only way to prevent from developing any disorder is to abstain from gluten. The cure is simple and you don't need a prescription or a doctor to do it!
  10. Some doctors are more open minded than others... Some are very anal. Depending on your doctor you'll get a different answer. The textbook answer is no flattened villi, no Celiacs disease. Some would even report no Celiacs disease with just blunting of the villi. The criteria for diagnosing Celiacs disease will be changing in the future. I am not sure what they will require for the diagnosis. I have heard of doctors who use common sense and logic... child is failure to thrive on a gluten diet, has bloated belly, loose stool and positive bloodwork. gluten-free diet changes child completely and child is thriving... Child has Celiacs disease and stays on gluten-free diet for life. It is simpler with a 'classic' case. it gets tricky when there is a 'silent' case. Then the only way Celiacs can be diagnosed is via biopsy. I would like for there to be a 'pre-celiac' label or a 'gluten intolerant' label widely accepted, based on blood work and symptoms while on and off a gluten-free diet. SOMEDAY!
  11. Doc Wants Me To Go To Gi Specialist

    If you've gone gluten-free then there is nothing for a GI to do for you. They will want to test you and the tests without a gluten challenge will mean nothing. I'd stay gluten-free! If you feel better being gluten-free then by all means be gluten-free!
  12. If you still have an elevated IgG after being gluten-free for 2 months, I'd say you have a definite gluten intolerance. If you react poorly to gluten ingestion and you feel good on a gluten-free diet, then I don't think you need to look any further. Get on a gluten-free diet and live healthily ever after!
  13. We just had a family birthday get together today. We have 24 people when we get together... Anyways, we did a taco bar... Had the shells, meat, cheese, lettuce, tomatoes, salsa, sour cream, guacamole, spanish rice and beans. People made their own tacos and we also had salad and corn chips for those who wanted a taco salad instead... Everything is an easy fix 'cept frying the shells... but you can always buy the hard ones...
  14. Misdiagnosis

    Here are some articles regarding urticaria (hives) and celiac disease: http://www.blackwell-synergy.com/links/doi...9.00216.x/full/ http://pediatrics.aappublications.org/cgi/...full/106/5/1139 http://pediatrics.aappublications.org/cgi/.../full/104/2/e25 http://www.ncbi.nlm.nih.gov/entrez/query.f...3&dopt=Abstract I have also encountered several people who have had this experiece as well... antecdotal evidence.
  15. Rose, Do you have copies of the blood work results... the exact numbers? The doctor may say he doesn't have Celiacs disease based on negative tTg and IgA. If he had elevated IgG only, it would be considered a false positive. I would recommend you look into getting the books "Dangerous Grains" and "Going Against The Grain." I have found them very informative regarding grains in our diet. God bless, Priscilla