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kirbymom

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  1. You can just do airtight containers if there are not too many large quantities. Abasic rule would be to freeze anything with high fat content. Basically, to do it for the longest storage, I would freeze all flours (brown rice, soy, garfava, sorghum, buckwheat, chickpea, millet, quinoa, amaranth, other bean flours), but white rice flour and I would dry store the starches (tapioca, corn, potato). I would keep yeast and flax meal in the freezer (I keep a small amount of yeast out, but the rest in the freezer).


  2. In my area of Canada, the doctors are mainly practicing reactive (not proactive) medicine and using drugs. I did not wait for a diagnosis for my daughter (age 3 in June) because of this. I do not think we have pinpointed all of her intolerances and even though my doctor thinks I am doing a good job and has no qualms about me having her on a gluten free dairy free diet, he is unwilling to have her have further testing. She is almost 3 and 23.5 lbs!!! Hey, this is better than most of her life. At least her height is on the chart now since gluten was taken out of her diet! I am woandering if I have to gluten her to get him to take me seriously - probably would only say - oh look, she has another cold! One of her symptoms is major ruuny nose.

    Anyway, he is a family physician teaching new docs! He is so busy, he does not have time to check all of the recent literature so the new docs are seeing all of the old stuff - depressing, isn't it?


  3. I am currently breastfeeding my third child and did not go gluten-free until we figured out some thing with my 2 year old just after this baby's birth. This one is no problem. DD2 had all kinds of weight gain issues, asthma, etc. and I had to go on domperidone to increase milk supply. She has gluten intolerance - I did not get a diagnosis, but took her off gluten when she was about 19 lbs (24 mos). You need to take wheat out of your diet and likely milk as well and you should see a difference. If you are celiac, you will not necessarily absorb vitamins that your daughter needs and wheat and milk antigens will get through your breast milk. Please take a multivitamin. Lastly, take Omega 3s to help brain development in your daughter.


  4. This is soooo funny. I haven't been on in a while and came on to check out the relationship between dental caries and celiac. I DO have a Ph. D. in Chemistry specializing in biochemistry. I DO have a family with dietary intolerances (gluten, dairy and at least two of us have soy intolerances). I am currently on maternity leave from my position which is being eliminated which may be a good thing as I am trying to get my family better. I have been doing a lot of research in the are in the last couple of months (mainly since the beginning of February) and am considering writing a book on the subject.

    Short Answer: Candida or other fungal pathogen (most likely Candida). You crave what you should not have as many of us know. Pica type cravings are indicative of inability to absorb certain nutrients (should at least take a multivitamin).

    Paper in PubMed about celiacs on diet who did not heal indicated there was actually parasitic infection or small intestine bacterial overgrowth and once this was cleared up, the people did better. Reference is http://www.ncbi.nlm.nih.gov/entrez/query.f...l=pubmed_docsum

    The petrochemical cravings are likely for phenols which are not processed properly by many people with dietary intolerances (I still think is Candida issue, but would have to write all day to explain why) - kind of like craving red dyes!

    I think we have correpsonded privately before about some things! You live so close (I am in London) and would love to meet you someday 8-)!

    Hope this helps.

    Amanda


  5. I have been making a chocolate pudding modifying this recipe http://www.recipezaar.com/157579. I have not bothered with the optional stuff as we find just having the 1/4 c cocoa makes a rich recipe. Since we are dairy free as well, I have tried this with straight almond milk and 1 cup almond milk/1 cup rice milk. Next I will try rice milk on its own.I have not tried soy milk as dd2 seems to have a problem with it. This is thick even warm and very yummy - just make sure to whisk the dry stuff before adding milk. Even better, it is very simple!


  6. Have you thouhgt about going dairy free for a while. This may soound a bit odd to you, but a recent study showed that 50% of celiacs have a problem with casein. I beleive this is a much higher number of people than those actually practicing a gluten-free diet. If you are milk intolerant (asymptomatically - I was asymptomatically gluten intolerant), this may be causing issues similar to someone who is celiac, but does not know it. Just a thought. BTW, I do agree with the B complex and magnesium recommendation as well. I would also be using probiotics for optimal gut health.


  7. We slowly switched over the whole family to gluten-free upon realizing that my children had it (I was the last hold out). I finally switched when I got a massive amount of gluten and my daughter had a reaction to it from breastfeeding! I have had a chance to challenge it (3 crums of cake ) and reacted quie substantially so it looks like I have the same issue - just asymptomatic. You might find it benefits more than your child!


  8. After taking gluten out of hubby's diet, he is now able to tolerate milk with lactose intolerance issues. However, watch for casein intolerance as we find after several months of adding dairy back into my daughter's diet she is showing problems again. Go light and build up. For example, my daughter can tolerate yoghurt in small amounts, cottage cheese, etc but add in regular milk or ice cream and lots of cheese - there tend to be some behavioural and health issues.


  9. Go for it! When I put dd6 on a gluten-free diet, I did not go to the doctor. We had my hubby gluten free for a month or so and we were eating very little gluten over the 9 day Christmas break. Our doctor doesn't really even consider celiac - would only if I pushed it! DD did not complain about stomach aches much during that time - which she had done ever since she could talk!!! My dd2 was very similar to your daughter, small, anemic, runny, stinky bowel movements. We took her off gluten - diarhea stopped, nasal drip stopped, and she started growing!!! Given your history, I am convinced you will see a diffeence!!


  10. I know this is an old thread, but I will add my two cents worth anyway. Before my last dauhter was born I was very gluten light i.e. I owuld have it occassionally out, but not have it at home. My daughter 2 seemd to be doing okay. I had muffins/toast/cereal (i.e. major gluten - I did not request gluten free) the hospital when the baby was born after having dd2 off gluten for 2 mos (she was and is still nursing). She had a major reactions to the gluten - the runny nose, bowel problems, etc. Trust you observations - doctors will only tend to believ you if they have seen it a lot or have children with the same problem.


  11. I have mild eczema, but am dairy light and know that it is dairy related so am in the process of going dairy free in my house - we all are as I am the main cook - we are already gluten free. Get your daughter involved. Please PM me for some yummy recipes - I tried the chocolate cake recipe from Special Diets for Special kids yesterday and everybody loved it (snack for break at my church). Many of us have done lots of testing and have recipes that taste good to everybody. I get my daughters (2 and 6) to help me bake and try recipes - it is a little frustrating at times, but can be very fun and the results are usually good. Get a few good recipes to start with and branch out from there. A good place to start would be Special Diets for Special kids - although it is targeted to autistic kids, the recipes are decent. Just don't get bogged down in the science. We also just tried Dari-Free and I think my 2 year old will actually drink it (she avoids soy, does not like rice milk and is still nursing along with 5 mos old baby).

    Try connecting your daughter with another person her age that has gone through the same thing - ask other parents on the board. A "penpal" that understands her might just help! Just another thought - kids want to fit in.

    If you want, I can look up good gingersnap, muffin, chocolate cake, pizza crust (although would have to be without cheese), brownies, and cookie recipes and pass them on to you.

    Another good book - I think it's called The Kid Friendly Allergy Food Cookbook - it's targeted gluten free, but has substitutions for dairy free as well. It uses a lot of just rice flour which I find too dry, but is easy to use as a start.


  12. First thing and I believe you have chosen to do this - trust your child! He was avoiding gluten for a reason! Other people will show an unusual craving for it! Second thing, doctors really do not know very much about celiac and it is not well explained in terms that they reliably believe in. As I am doing research I see books written by parents that have mistakes in the science and books written by scientists that are too "scientific". I can slog through them, but I have a Ph. D. in biochemistry and am used to this type of research! Very few doctors would have the time or resources to invest in this type of research -I am doing it for my own family.

    Second, congratulations on the changes you are seeing. I have a very pleasant 31 month old with history of eczema and asthma as well as failure to thrive - at 6 mos she was 12 lbs, at 1 year 16.5 lbs, at 21 months 18 lbs. I spoke to my doctor several times and he just attributed to her getting sick in a daycare setting. Early on, the pediatrican thought it was because her asthma was not under control (eczema at 2 mos I think, asthma diagnosis at 4 mos). When she was very young I woke/fed her every 1-11/2 hours around the clock just to get calories in her! When she finally presented with a lot of diahrea (sp?) at age 2, we has already suspected gluten and could trace it to change in diet at the daycare. Although she was not diagnosed as celiac - this is not something our doctor considers, we took her off gluten. She is now 24 lbs and 4 1/2 inches taller than seven months ago.

    Third, to the mom who is noticing growth, but little weight gain - when children are sick one of the earliest signs is weight loss, then height loss, then - if very severe head circumference size issues so when they are recovering, the opposite occurs. My daughter gained a little weight - height shot up to on the growth chart at a percentile similar to her sister's and she is now gaining again - stick with it and you will see the changes!

    To the orignal poster, your family history is very similar to mine except no celiac diagnosis in either hubby's family or mine. Gluten elimination is showing that we were all intolerant and even thoough I never showed any "symptoms" (but do have eczema and asthma), my 2 year old and I are actually the worst. Best wishes.


  13. Thanks so much for your post. My 6 year old is gluten intolerant and while the aches settled down for a while, she otfen wakes up with her "tummy on fire". It is generally localized near her navel and now you have given me something to think about. We have also noted she is milk intolerant (we actually noticed before gluten that she can tolerate small amount). Now it looks like she has had too much milk and is back to the stomach complaints (and behavior issues again). Have you ever thought your child might have a milk issue?


  14. Thanks so much to srokie for her initial posting in this thread. I have read most of the posts and they interest me very much.

    We all seem to have a mistrust for doctors of any type. It is my experience that MDs and Ph.Ds both do not or cannot know everything about every condition. However, the training for MDs in North America is more of "let's treat the symptoms" while a lot of people with PhDs are looking for underlying causes as well. It is up to us to work with them and self educate as well. Personally, the most encouraging thing my family got from our doctor (an MD) was "Well if the diet makes you feel better, keep it up" (no tests or anything). The other encouraging thing was me telling him that our 2 yo dd was actually starting to grow and gain weight and had very few issues with her asthma- he said great and joked that I knew everything. From what I have been reading, I have a lot to learn.

    From a researcher point of view (my Ph.D is in Biochemistry), antibodies are "raised" against areas of proteins called epitopes - people can have cross-reactivity issues to similar regions in other proteins including those from other organisms be it dairy animals, soy, or others. I am extremely interested in researching all of this as well as underlying causes (I think I have a decent hypothesis, but need to look up some more things). This is because of my own personal situation - hubby went gluten free November 05, dd6 January 06, dd 2 July 06 (cleared up asthma, problematic again when cow's milk introduced), me September 06 (after I had a lot of gluten in the hospital when dd was born and my nursing 2 year old reacted). I was gluten light at that point and figured I was just tired due to being pregnant (but could not gain weight - 16 lbs total pregnancy) - I have since challenged this accidentally and do not want to go back. All of us seem to have milk issues as well including hubby who never thought he did. My middle daughter seems to have a slight soy intolerance (less severe than dairy, but still present).

    I think that Srokies doctor may have some knowledge of soy from her own or a colleague's research that may yet to be published although she may be overstating the "all celiacs should not eat soy". Sorry to have gone on about my own family, but I believe this whole issue affects many more people than the accepted norm and sharing information is needed.


  15. First, how is your daughter doing on the diet and is she intolerant or does gluten cause anaphylaxis? Does she see the results - feeling better, no diarhea, etc, decreased stomach pain, etc.? If she were glutened and ended up ill on the trip, it might not be a whole lot of fun. It's a bit less embarassing to eat different food than to need to be in the washroom all of the time (assuming she has classical symptoms - my family is a mix of classical and non-classical).

    Second, researching the restaurants and such ahead of time and arming your daughter with a list of food that is okay seems like a great idea!

    Third, your daughter is learning right along with you about the gluten free diet. This may be a great experience for her to teach others about the diet (I have a suspician this will be invaluable to some as it is my belief, gluten intolerance is much more common than previously thought!) as well as learn the details that she needs to look into herself - this could be an awesome opportunity for you to teach your daughter as well. My daughter is 6 and we took her off gluten when she was 5. Early on we went visiting (and took our own gluten free cookies), she asked if she could have a cookie that the hostess was serving. We told her that it would likely make her sick, but it was her choice if she wanted to eat one. I believe in consequence based learning as long as the situation is not life threatening. Needless to say, twenty minutes later she was in the bathroom. Since that time she has refused cookies/crackers, etc. when out and checks in with me to see if things are okay. She also asks that teachers read labels now as a teacher acidentally glutened her with Smarties (in Canada they have wheat starch) early on. I would expect it would actually be easier to do this with your daughter as my child is only starting to read now. She is however very aware of her dietary needs.

    What would I do in your situation? I would hope that I would be picked in the lottery, but if not I would have a plan of action in place. Since you have three months, this is certainy doable. I would

    1) take my daughter shopping with me and teach her to read labels

    2) get some gluten-free "treats" and staples to take on the trip (gluten-free cookies/muffins/rice cakes/rice crackers/fruit, etc)- okay it with the school - I have pretty good recipes that I have tried and there are others here and other places as well - feel free to PM me

    3) meet with teacher and possibly someone else that is going and go over concerns again as well as provide them with a list of okay foods or foods to check (e.g check soy sauce, no malt, etc.)- maybe provide a couple of short general articles (Canadian Living published one last spring and others may be out there) for the teacher to read

    4) get itinerary and call restaurants - you will be surprised, but some are understanding and do accomodate - if pizza is being served, maybe you can send a gluten free shell that could have toppings added and cooked on a stone covered with foil, if pasta ask if they serve rice pasta or vermicilli and if they are cooked in designated pots i.e. no wheat, check out sauces. If the itinerary is not set, maybe the school could add a celiac friendly restaurant (see http://www.bidmc.harvard.edu/display.asp?leaf_id=8314).

    5) take my daughter out for a couple of mom dates and have her choose while I advise

    Fourth, I would try not to panic (easier said than done). If you are just learning the gluten-free lifestyle, I totally understand as I remember what I was (and still am somewhat) like - looks like we have to go off casein as well so this is starting over a bit for me. However, this is something that your daughter must get used to and you will not always be able to be there to look over her shoulder for whatever reason.

    I hope this helps at least a little!


  16. Where do you all get your coconut milk and how expensive is it? We are going dairy free in the near future and I am trying to find out as much as possible now. We are also planning on trying dari-free with my 2 year old. The 6 year old will drink PC organics Rice milk (cheaper than Rice Dream and no gluten!). The 2 year old does not like Rice milk and is still nursing along with the 5 mos old baby.