My names andrew, ive been around for a while but never posted. So basically ive suspected a gluten intolerance/celiac for about 2 years now. It all started around half-way through year 12 when i got to lunch, ate my sandwich and started feeling incredibly ill, with no previous sympoms from eating bread. It was strange, but it was VERY uncomfortable. The best way i can describe it is eating as much food as i possibly can, then lying down (as if that isnt uncomfortable enough) and then having someone sit on my stomach. I feel like im going to throw up, thought never really nauseous, but very bloated and feel extremely full after a meal for about 5 hours where ill be hungry again. I either have hunger pains, or im so bloated i cant even talk because the movement of my diaphram makes me feel really uncomfortable.
So, i stayed home for about 2 weeks because my parents were like 'your probably just sick'. 2 weeks went by and nothing. 3 weeks, a month. Parents decide to take me to the doctor. My doc john (been our family doctor our whole lives) gave me maxolon to take, not as a cure, but to hold off the symptoms til we could find out what was wrong. Was all well and good but because i wasnt vomiting or really feeling 'nauseous' it didnt really change anything. When i told him that he put me on a strong antacid (i forget the name) and still nothing changed.
So john said he suspected it was some sort of immunoglobulin (sp?) problem so he apparently tested for that, id ont know what that means, but it all came back negative, he so referred me to a doctor who specifically diagnosed people for thing... i have NO idea what that is called. He told me gluten intolerance/celiac is extremely uncommon and i dont have it in my family, and it deosnt just 'spring up' like that all of a sudden. SO he ordered tests for my gall bladder, checked for kidney stones, pancreas tests, had ct scans (dont know why) had a barium meal... all of which showed that i was in tip top physical condition. I wasnt sick. Nothing wrong with me.
Meanwhile i had lost 10 kg (still which i havent put back on) i weigh anywhere between 45kg and 50 kg... but i dont know why that is because i eat about 8000 kj a day :S anyway ive never put that weight back on. SO he diagnostic doctor referred me to a gastroenterologist (sp?) and he messed around with my stomach for a bit and said nothing 'feels' wrong and warned me that an endoscopy is fairly invasive and might return nothing. At this point i had been consistently sick for about 2 months and had missed that much of my final year at school, and was many, many assessments behind, so i said lets do it. So he ordered a full gastro endoscopy and colonscopy and i got them. I remember coming off general anaesthetic and the gastro telling me that nothing was wrong with my gut at all, but it looked like there was a lot of bile in my stomach (i had nil to mouth for 24 hours) and a few blood spots here and there but nothing to worry about. That worried me a lot.
So basically my parents were finally convinced that it could be a food intolerance so we went to see a dietician. After being there for 5 minutes she sounded pretty positive i had a foood intolerance and gave me an elimination diet and said go on it for 6 weeks, if you dont start to feel better then its probably not a food intolerance, if you do feel better, start introducing things one at a time and see what affects you. So i did it, nothing changed in the 6 weeks. But guilt caught up with me, i had cost my parents so much money and time and worry i just told the nutritionist i felt better and id stay away from wheat. SO ive been living with the bloating and uncomfortableness for 2 years now andyeah it inhibits my life but i never want to go out any more, i have no energy, i never see my friends, i sit at home, or i go to work, for about 3 hours of a day or it kills me.
Ive lived with this for about 2 years but whats only started ringing home with me is that my girlfriend of a year and a half wants to start going out and is sick of being at home, and wants to go out to dinner, and partes and stuff like that but i jsut CANT do it, feeling so uncomfortable all the time. I can NEVER be in a car it makes me feel so bad. I guess what this is all leading to is, what the poop do i do? I KNOW its not normal coz i havent felt this way my whole life... I used to pride myself on having a strong stomach, nothing upset me... now theres nothing that doesnt upset me. Im infinitely happier with hunger pains than eating.
Is it possible that its still some kind of food intolerance? is it possible that there is something else that fits these symptoms? is it possible its as simple as a vitamin deficiency or something? someone PLEASE help me, every doctor i saw pretty much used all the ideas they had and passed me off to someone else and it got to the point where i jsut gave up, but i NEED to get my life back on track. What could this be?