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lorna

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About lorna

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    fife, scotland

  1. Hey Disneyfan,

    thanks for your response.

    I have had a bone density scan and no osteporosis. Was diagnosed with malabsorbtion issues, main concern being iron deficient.

    Not sports injury as i have pains in both elbows which was firstly diagnosed as golfers elbows (in both elbows). Ithink there maybe something that I am still eating thats casuing pain. Either that or need to try cutting out dairy produce to see if that makes any difference.


  2. It may be caused by some hidden gluten that you are eating and not realizing. Some people are sensitive to the smallest amount of gluten and not know they are ingesting it.

    I would also suggest if you have not already, schedule yourself for a bone density scan just to make sure your celiac disease has not caused osteopenia or osteoporosis which would cause joint pain/aches/inflammation. If you had any malabsorption issues, you should talk to your doctor about taking a calcium supplement.

    Another thought is that you may have developed a bursitis or tendonitis in your elbow from an injury from sports or exercising. For that you could go to GNC and try their Triflex which is gluten free. It has glucosamine/chondrotin/msm which helps your joints and cartillages. I use it and it really works.

    I hope the inflammatories work soon, you can also try to use mineral ice on your elbow daily and that might help. Good luck!

    <a href="http://www.mayoclinic.com/health/peripheral-neuropathy/DS00131/DSECTION=2" target="external ugc nofollow">http://www.mayoclinic.com/health/periphera...0131/DSECTION=2</a>

    <a href="http://www.mayoclinic.com/health/fibromyalgia/DS00079/DSECTION=3" target="external ugc nofollow">http://www.mayoclinic.com/health/fibromyal...0079/DSECTION=3</a>


  3. I was diagnosed with Celiac when I was 5 years old and was in and out of hospital getting all the tests and biopsy's etc.

    Up until I went to secondary school I did stick strictly to a gluten-free diet with the aid of my mum to keep me right. Unfortunately in my teens I rebelled a bit and decided I knew everything and started introducing wheatproducts into my diet, mainly crisps & fat cakes etc. I didn't seem to be suffering any side effects although was a bit irratable at times but this was just put down to my age. Had another few test done and low and behold it came back I was no longer Celiac.

    I have then since carried on with a normal diet, although through the years have had very bad eczema, psiorias of the scalp, and now I am begining to suffer from short pain spasms in my knee. My hair has been thinning at the front of my head for the last 10 years and have learned to accept this by colouring my hair light shades to camaflage my scalp.

    I have been to my GP twice now enquiring if there are any treatments available to re-grow my hair, the first time was about 20 years ago and the second time was in December of last year. Both times I have been told that there are no roots therefore it is unlikely that re-growth will occur. Never has there been any link to my Celiac history, but I am starting to wonder if all this time I have actually been Celiac and wrongly diagnosed in my teenage years.

    I have bloods back and I am definately ceoliac, been and had DXA scan done for osteoporisis this is clear as i do regulary go to the gym I think this has helped. Bloods also show that I am severely aneamic and on 400mg of ferrous sulphate daily.

    I have been on a gluten free diet since February this year and the changes I have notice is that I do now sleep at night and feel drugged when I get up in the morning for havingso much rest. How ever since changing my diet I now have joint pain that I never had before in both my elbows, not sure whats causing this, can anyone shed some light. have had 2 different anti inflamitary courses from docs but to no availe. This may not be related to ceoliac the doc did say I had golfers elbows but I have not done anything different apart from change my diet and thats when it started.

    The big test will be on friday of this week when I have my Endoscopy again!!!


  4. Lorna,

    Same thing happened to me. I was diagnosed at age 2, then told at age 18 that I didn't have Celiac. I was just re-diagnosed 4 months ago (I am now 27). It's horrible how ill-informed about this disease doctors can be!

    i can't believe that the GP never picked up on my symptons ..........

    Altough when I spoke to my GP today who wasn't in practice 25 yars ago she can't understand why I was informed that I was not coeliac all those years ago.

    Something to think about though... i had called on monday of this week and ws told the results were negative tehn the GP called me today and told me they were positive. Its like they were looking at some other patients results and not mine!!!!!!!!!

    Maybe that's what happened 25 years ago thats the NHS for you :( not impressed


  5. Me too. My hair also turned almost all white, what there was of it. Mine did grow back and I now have clearer skin than I have had since since I had 'poison ivy' head to toe for 12 months of the year as a kid. Needless to say it was DH. One thing you need to be careful of though is hair dye and shampoos etc. Many do contain gluten so you want to make sure they are safe.

    never thought of shampoo/hairdye etc being the cause of my hair to fallout. I think itwas originally the DH that caused it. although I will be more vigilant from now on and check what ingredients are in theproducts that I use..........

    Thaks for that advice :rolleyes:


  6. Hey folks not sure if any of you remember me but I posted on this site a few weeks ago saying that I was diagnosed when I ws 5 years old and had not stuck to a normal diet since I was 17 because the docs told me I was no longer coeliac.....

    I phone the docs on monday and was told that my blood tests were clear. I was not convinced and decided to go gluten free on my own. How ever I got a phone call at work today to say that I am infact coeliac and they could not understand why I had been told otherwise 25 years ago.

    I am horrified at the damage that may have done over the last 25 years thru miss diagnosis. I am now waiting to get a density scan and further blood tests.

    I did actually have skin problems for years and my hair is falling out and yet the doc had made no conection until I asked to be re-tested. has anyone else had this problem.

    I know I will have to contniue to dye my hair to camoflage the baldness but maybe it will grow in stronger and not break so easily.


  7. it used to be thought that children outgrew celiac disease----they have since learned that this is not true. once a celiac, always a celiac. children with celiac disease will sometimes go through what they call a "honeymoon" period during their teen years when symptoms seem to disappear, which would probably explain why you didn't seem to have problems with gluten as a teen. if you were only eating gluten occasionally, you may not have had enough damage for antibodies to register when you were tested as a teen.(or for damage to show with a biopsy) i guess it could be possible that you never really had celiac to begin with----but not likely if you were diagnosed with a biopsy. if it were me, i would stay on gluten and ask to have a total IgA test and a Ttg antibody test done. this is the most accurate blood test there is at this time.

    there have been other people on the board that tested positive as a child, but were later told they no longer had celiac-----only to suffer for years before being "rediagnosed".

    I was diagnosed twice with biopsy's as a child, then when the blood test came back clear as a teenager it suited me to be able to eat normal food. I can only assume that if I am tested positive again that it is of a milder nature that most people on this forum.

    Over the years I have had depression, skin problems and psoriasis of the scalp which would explain the hair loss. But maybe all along its been coeliac, but it never once entered my mind that it was. i havn't thought about this for years, it was my mum who printed alot of info from the web for me and she made the link. My immediate reaction was to go gluten free, until I read all the inof on this forum. This is a source of knowledge better than any GP.

    you would think the Gp's would have made the link by now....or maybe not, like everything else you usually diagnose yourself these days. I have an appointment to see the GP tomorrow to get them to trace back my records and test results and to arrange to be tested again.


  8. I was diagnosed with Celiac when I was 5 years old and was in and out of hospital getting all the tests and biopsy's etc.

    Up until I went to secondary school I did stick strictly to a gluten-free diet with the aid of my mum to keep me right. Unfortunately in my teens I rebelled a bit and decidedI knew everything and started introducing wheatproducts into my diet, mainly crisps & fat cakes etc. I didn't seem to be suffering any side effects although was a bit irratable at times but this was just put down to my age. Had another few test done and low and behold it came back I was no longer Celiac.

    I have then since carried on with a normal diet, although through the years have had very bad eczema, psiorias of the scalp, and now I am begining to suffer from short pain spasms in my knee. My hair has been thinning at the from of my head for the last 10 years and have learned to accept this by coloring my hair light shades to camaflage my scalp.

    I have been to my GP twice now enquiring if there are any treatments available to re-grow my hair, the first time was about 20 years ago and the second time was in December of last year. Both times I hav been told that there are no roots therefore it is unlikely that re-growth will occur. Never ha there been any link to my Celiac history, but I am starting to wonder if all this time I have actually been Celiac and wrongly diagnosed in my teenage years. I am waiting on an appointment to see a dermatologist for my scalp. But I think meantime I need to make an appointment to have a blood test. Has anyone else had similar experince?