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cyberprof last won the day on February 13 2012

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  1. Sorry that happened!

    I like white rice with just a little salt and butter or olive oil.

    Mashed potatoes or polenta/grits. You could also eat a baked potato or spagetti squash.

    I also agree with the gluten-free pretzels. I can't tell them from regular pretzels and would eat them everyday if they were good for me.

    I also drink gallons of mint tea. Pepto Bismal also works for me in the early stages if I'm queasy with an upset stomach.

    When I start to feel better, I eat gluten-free mac-n-cheese, but that's not good if you're still heeling and might have trouble with dairy and/or fat.

  2. So my question is what does everyone think is going on? Did the Celiac just go into remission and come back? Five years ago when I was active here I read lots of stories about people having issues with milk/etc once there was celiac damage done to their intestines that went away when they healed up. So I do not know if that is part of this? Maybe it is some new allergy/intolerance that we have not discovered yet? The doc has him on three different allergy pills so I would think that if it was allergy related the pills alone should help, right?

    Thanks, and if any of you remember me, HI!!!. :D

    I do remember you.

    My feeling is that celiac never went away, it was just hidden. As sick as he was, he healed and his body wasn't on high-alert anymore and didn't react for a while.

    From my understanding flat villi can be caused by something else (tropical sprue, h. pylori, SIBO etc) the blood tests are specific to celiac sprue and not to any other known condition, as they are measuring the body's reaction to the gliadin peptide.

    As sick as my son was (not as sick as yours) and even with my son's lack of diagnosis, I would never put him back on wheat, but he's 19 now so that's my son's decision.

  3. They make little cards in different languages (just google it) for celiacs to take when they travel . . . then you just hand it to the waiter and they can read it. Not sure if they have one for Bulgaria, but I bet you could find someone to translate one for you. You could type it out and take a copy with you when you go out.


    I was just going to say the same thing as Cara. Here's a Bulgarian card http://www.celiactravel.com/cards/bulgarian/

    I print out the English version and the foreign language version and laminate them together (makes it waterproof but you could just glue them together) and give it to my server. Sometimes I get them back, sometimes I don't. This is a free site and very helpful. (They ask for donations so I did make a small donation, cause I've found it so helpful.)

  4. I have been 17 months gluten free. Still fighting to get my health back. Would love to know normal, never had that. Yes at times I want a really good pizza or sub, but I am learning about being healthy and eating healthy gluten free. What I really need is that person I can cry to about can't find this gluten free item in my area, can't afford to pay those prices, and when my recipe FAIL'S and dinner or what ever I baked taste and looks like crap there was someone to talk to about it. I can't afford failures, no one understand or cares to understand my diet. No one to bounce ideas and thoughts about thgis gluten free stuff off of. I am alone with my disease and no support group and no one around to try to build one. My hubby is diabetic and heart history, balancing both diets are rough!!!! I would love a support person to talk to a couple times a week. ;)

    Gail5, we are happy to be your support person. If you're in the Seattle area, I'll be happy to meet you any time. Or if you want to skype, we could do that. Hang in there. It does get better.

  5. srall, I had a similar situation with my son, but he had less overt symptoms. Sick all the time (colds, flu), not "hardy" like my daughter or my siblings when we were young. No stamina and cranky a lot. D a lot, but not where the doc would think it was bad. Lots of mouth ulcers. So thin. But he didn't complain about stomach problems. When he was 13, I told his doctor that there was something wrong, but I didn't know what. Doc tested for diabetes, leukemia, thryoid, iron deficiency - nada.

    A year after I went gluten-free, he was 15 and not in puberty and at my urging he went gluten-free. What a difference! And the thing that made it all worthwhile was his statement: "I didn't know that eating wasn't supposed to hurt." So for 15 years, the poor kid had pain after every meal and thought it was NORMAL. So, yes, I think that my diagnosis was a blessing and I would go through it all again to help my son. And my daughter too, now.

  6. Someone already posted above but Stephanie writes the blog "A Year of Slow Cooking" http://crockpot365.blogspot.com/ (Don't go to the 365daysofcrockpot site...she's not gluten-free and is not as good - Stephanie is the original.) As mentioned, Stephanie's daughter is celiac and her recipes are good and easy, especially for busy moms (and dads). She has a section on saving money, but the main thing about her food is that most of it is not just for celiacs, it's food anyone would eat. Chili, soups, curries, pot roasts.

    The bad thing is that to save money, you'll have to cook a lot more than you would normally. The upside is that you and your family may eat healthier. Focus on naturally gluten-free food - rice, potatoes, meat, fish, chicken. Beans can be made from dried beans much cheaper than canned. Make your own spagetti sauce at 1/10th the price. Heck, you can even make yogurt if your family likes that at 1/20th the cost.

    Then learn to bake later if you want real bread but don't want to pay $8/loaf. Maybe start making flourless PB cookies or corn bread or waffles and pancakes. (Ask if you want recepies.) Then learn to make bread.

    You can do this!

  7. Trudyjerry, it is not fair and it is a challenge. I'm gluten-free but both my kids need to be gluten-free and DF and my daughter needs to be Soy-free.

    Have you looked at the Gluten-free Goddess's blog? Karina has a joy about cooking and she has multiple allergies/intolerances in addition to celiac. Her deserts are wonderful, especially the flourless chocolate cake, brownies and carrot cake. My kids like the carrot cake better than my old gluten recepie and same with her dark chocolate brownies.

    And the Gluten-Free Girl's blog is all about celebrating what you can have instead of wishing you could have what you can't. She isn't DF/SF but has good ideas and pretty photos.

    You can easily google these or let me know and I'll send you the link.


  8. Now I get to go in to be scoped from both ends. Just wondering if colitis is in any way shape or form related to celiac's or gluten sensitivity. I apparently do have a gluten sensitivity, we are just working on to what extend. I do not have to go back on gluten for the endoscopy though. That actually makes me wonder exactly what he thinks he's going to find with me having been gluten free for the last three months. At least he's not demanding that I torture myself for the upcoming tests with gluten. I just get to torture myself by cleaning out my system. Any ideas on making it easier?

    Trudyjerry, welcome. I've had both tests and while the prep for colonscopy isn't fun, it's not horrendous. Eat lightly for the whole week before. My doc gave me a chart. https://www.virginiamason.org/workfiles/procedure_prep/Low_fiber_2010.pdf No red-colored food (jello etc), no nuts or seeds or rough or raw veggies for a few days before, then the liquid diet as per doctor's orders.

    Adults don't heal from gluten damage for up to 5 years, so it's possible that the endoscopy WILL show damage, but at least you know that you should be gluten-free even if the endoscopy is negative for celiac. And it's not a waste to have the endoscopy - the prep for colonscopy has to be done anyway and you get two-for-one ...only one prep, one anesthesia, one recovery, one day off work/out of commission, one $$$ charge for doctor. They also might find something else (ulcer, Barrett's) so it's good to have the screening if you have GI troubles.

    Yes, colitis can be related to celiac and my GI told me that celiac predisposes one to geting colitis - specifically microscopic colitis. See wikipedia here. http://en.wikipedia.org/wiki/Microscopic_colitis The other thing is that untreated celiac increases the risk for intestinal cancers for up to five years after going gluten-free, so it's good that you're getting that checked too, just to be safe. It's rare but possible.

    Best of luck, I'm sure it will go fine and will be over before you know it. I planned a great gluten-free meal for afterwards (a Jamba juice smoothie on the way home plus Amy's brand mac-n-cheese and a small gluten-free brownie) and got to watch videos all afternoon instead of being at work or doing housework. If you get queasy easily, you might have some gluten-free crackers or pretzels to eat in the car on the way home.

  9. Well, the day has finally come for my sweet daughter, who also has been on the long road of DeNile. She was 16 when I was diagnosed and immediately thought she should go gluten-free. Then realized how hard it was and went back on gluten. I know she was a minor but was so afraid of needles that I didn't force her to have a celiac test. Over the years, she has denied any gluten intolerance. Well, this year (she's 21) she was visiting friends on spring break and she got what she thought was food poisoning. Vomitting, Big D both at the same time for hours. Fainted and friends called 911 and sent her to hospital in ambulance. When she told me the story, I asked if the hospital tested for celiac and she said no. The reason I asked was because that is exactly what happened to me that got me to get diagnosed. She said that couldn't be it.

    When she got back to college, she went on a health kick, eliminating dairy, processed food, sugar and white carbs. Guess what? She had wheat today and is sick as a dog and is now convinced that she is gluten intolerant. She was pretty sure last week but is convinced now. Wow.

    And I've not said "I told you so!" (but I did think it!) She is graduating in June (a full year early!) and moving home until she goes to grad school and she is very excited to cook gluten-free together. Oh, and she is dairy intolerant like her brother too.

  10. We had a nice time. Everyone liked their meals.

    I was the most happy because I didn't have to cross-examine the waitstaff and say "Are you sure this is gluten-free?"

    And I haven't had crab cakes in a restaurant in five years: They used to be a hobby of mine. Where ever I travelled, I'd always order them. I've had crab cakes in Russia, NYC, Oklahoma City, Chicago, San Francisco, etc.

    Julie, in answer to your question, they have a full explanation on the website where you can fill out a questionnaire about your restrictions and they will work to get you a meal that you/your daughter could eat. My son and sister-in-law omitted the goat dairy from their meals with no problem. I think that if they had a menu with no dairy, eggs, flax, wheat, soy, corn, peanuts, fish...well there wouldn't be much demand for a restaurant like that would there? They seem knowledgable and they certainly want to meet the demands of the intolerant in the population, so I hope they do well.

  11. What time are you going? I might be able to get a planbe and meet you! I looked at thier website and it said:

    "Located in downtown Redmond, Graces 5 offers delicious local cuisine in a tranquil atmosphere. We use local sustainable ingredients wherever possible. All of our dishes are gluten-free, dairy-free, soy-free and low sugar but you'll never know it because the food tastes awesome! Our seasonal menu features a wide variety of options for carnivores, vegans, and vegetarians. "

    Hope its good and busy.

    We're going at 7:30 Pacific Coast Time, so you have lots of time to get there! We'll save you a seat. (Both my kids are coming home from college - yay!)

    I noticed that they are also trying to get the local food bank to have a gluten-free/DF pantry and they ask for donations, which I'll bring. I've been trying for years to get the food bank to do this! I may ask to help volunteer with them.

  12. Anyone been to Five Graces Restaurant in Redmond Washington? It is billed as a "healthy eating" place that is fully gluten-free.

    Eight of us family members are going tonight. Amoung us we have one celiac, one gluten-free dairy-free, one Paleo and one dairy-free vegetarian. If this restaurant pleases everyone that would be amazing. (Indian restaurants are the only other place that really works. We like the Mohgul Palace in Bellevue. Mexican can also work.) But it looks to be pretty expensive...good thing I'm not paying.

    I'll post a review later. Website is graces5 dot com.

  13. I hear ya. My husband had to retire because of his deafness so I'm the breadwinner too. 53 and couldn't retire now if I wanted to but I'm looking on the brightside and believing that surgery will go well when the time comes. I live 40 miles from work and have to drive in the dark lots. That scares me. We will get throug it like it or not. Keep your chin up.



    Thanks Sue. Yeah, I'm whining. (I'm 53 too btw.)

  14. By todays's standards I wouldn't call them rare diseases and there are worse things to have. I was sad when I found out I had Fuchs but I'm living each day as best as I can until my days are done. Can't do anything but that. My husband is deaf so we will make a good pair!

    Yes, true about the diseases, but I'm the primary breadwinner and my ability to earn a paycheck is dependent upon being able to see and healthy enough to work. I've got two kids in college, a boat-load of debt and I can't afford to be out of work or to retire. Nevermind the fact that I don't want to be eating gluten-free cat food when I'm 80 because I ran out of money. So I've got huge anxiety about my eyesight. I'm more used to celiac, but it is a drain of energy, checking on gluten-free food eating out, extra time shopping and cooking.

    And then we have an elderly relative in a nursing home...have you been to one? It's like a gluten purgatory. All they serve are sandwiches, hamburgers, pancakes. Where am I gonna live? Pretty scary.

    Sorry to be a downer.

  15. I can't remember if I've posted this here before...yummy. No modifications needed to make it gluten-free - it's naturally gluten-free.

    Eggplant Parmesan Rolls with Swiss Chard and Fresh Mint from Bon Appetit Mag

    I've made it with spinach instead of chard and basil or oregano instead of mint.

    Read More http://www.epicurious.com:80/recipes/food/views/Eggplant-Parmesan-Rolls-with-Swiss-Chard-and-Fresh-Mint-357494#ixzz1qjNH3Dfg

    The Original: Breaded, fried eggplant with a thick oregano-flavored tomato sauce. Our Version: Broiled slices of eggplant wrapped around a mint-and chard-flecked ricotta filling

    2 medium eggplants (about 2 1/4 pounds total), trimmed, cut lengthwise into 1/4-inch-thick slices

    Coarse kosher salt

    Extra-virgin olive oil

    1 1-pound bunch Swiss chard, center ribs removed

    2 large eggs

    1 15-ounce container whole-milk ricotta cheese

    1 1/4 cups finely grated Parmesan cheese, divided

    2 tablespoons chopped fresh mint

    3/4 teaspoon freshly ground black pepper

    1 15- to 16-ounce can tomato sauce

    1 8-ounce ball fresh water-packed mozzarella,* drained, thinly sliced

    Cover bottom and sides of each of 2 large colanders with 1 layer of eggplant slices; sprinkle generously with coarse salt. Continue layering eggplant slices in each colander, sprinkling each layer with coarse salt, until all eggplant slices are used. Place each colander over large bowl; let stand at least 30 minutes and up to 1 hour. Rinse eggplant slices to remove excess salt; dry thoroughly with paper towels.

    Position oven rack 5 to 6 inches from heat source and preheat broiler. Line 3 large rimmed baking sheets with parchment paper. Arrange eggplant slices in single layer on prepared baking sheets. Brush both sides of eggplant slices with olive oil. Broil 1 sheet at a time until eggplant slices are tender and beginning to brown, watching closely and removing eggplant slices as needed if cooking too quickly, 3 to 4 minutes per side. Remove baking sheet from oven and cool eggplant while preparing filling.

    Bring large pot of salted water to boil. Add chard to pot and boil just until tender, about 2 minutes. Drain; rinse with cold water. Squeeze chard very dry, then chop coarsely. Squeeze chard dry again between paper towels. Whisk eggs and pinch of coarse salt in medium bowl. Stir in chopped chard, ricotta cheese, 1 cup Parmesan, mint, and black pepper.

    Lightly oil 15 x 10 x 2-inch glass baking dish. Spread half of tomato sauce evenly over bottom of dish. Divide chard-ricotta filling among eggplant slices, placing about 1 heaping tablespoon filling in center of each. Starting at 1 short end of each, loosely roll up eggplant slices, enclosing filling. Arrange rolls, seam side down, atop sauce in baking dish. Spoon remaining tomato sauce over. Place mozzarella slices in single layer over rolls. Sprinkle with remaining 1/4 cup Parmesan cheese. DO AHEAD: Can be made 1 day ahead. Cover with foil and chill.

    Preheat oven to 350

  16. OP, I love gnocchi but haven't tried boiling the ricotta gluten-free gnocchi (only the potato kind). If you want to use up leftover lasagne filling you can use this receipe, which i've posted before and love. Now I'm craving it and have to have it for dinner:

    I am part Italian and I loved Italian pasta, ate it all the time. But even gluten-free pasta is not good for me and I've reduced my refined carbs. However, I can't give up my Italian food so I'm always on the look-out for fun dishes. This one has the benefit of not only being gluten-free and low grain AND it's also quicker than lasagne. One caveat is that it is not low fat and would be hard to convert to dairy-free but now that my CF/DF son has gone to college I get free rein.

    The recipe calls for homemade pasta sauce but I used jarred.

    It is a really pretty dish with the Italian Flag colors - red, green and white. Would be good for a dinner party or potluck. Enjoy!

    Baked Spinach Dumplings

    Malfatti gratinati (sometimes called gnocchi gnudi or ravioli gnudi, nude gnocchi and nude ravioli)

    Adapted from Twelve: A Tuscan Cookbook and this blog http://newfinmysoup....-tradition.html

    Serves 6-8 (about 30 dumplings)

    1 quantity of B

  17. It looks to me like you have celiac, Eosinophilic esophagitis and colitis.

    There are some diseases that cause vilious blunting, but just because your blood tests are negative does not mean that you don't have celiac. The blood test is unreliable as an exclusionary device. Someone here might be able to tell you what causes blunting besides celiac but it is pretty rare.

    You are a nursing student, so I hope that you can find a GI/celiac specialist that takes you seriously. Going truly, strictly gluten-free in the mean-time would be a good way to help you feel better. Three years is too long to feel bad. Hang in there.

    Oh, and BTW any blood tests for celiac while on a gluten-free diet (or just gluten-light) will be negative by definition.

  18. I respect everyone who has weighed in on this thread (and sorry to the OP if we've hijacked your thread) I absolutely do cover each and every thing that I put in any microwave after being glutened 2-3 times. I'm not sure if there is science behind it but I do it religiously cause I don't want to risk getting sick even once.

    Some microwaves are cleaner than others but the one at my office sometimes looks like a gluten-bomb exploded.

    For short term things (like reheating tea -30 seconds in a dry microwave) I wrap a paper towel around the mug. Otherwise, it's a glass lid, microwave-specific vented lid or one of those doomed microwave covered dish plastic thingys.

    I have no proof. And really, what self-respecting PhD celiac researcher is going to waste time on a controlled study of residual gluten in a microwave. :o I'm just stating my experience.

  19. I've been diagnosed with several different illnesses following Celiac's, but even through treating all of those as best as possible, and even doing the diet, there has been very little change in my symptoms. Now, even, I am wondering if maybe there is still an illness that is.. hiding, I suppose? I've done the horrible deed of looking up what it could be over the internet, and all I can come up with is that it may be Lupus. Because I have Celiac's, a few symptoms of Lupus, and a mother with Lupus, I can't help but wonder. Are my chances of having Lupus higher because of my family history of it mixed with the Celiac's? Or is it just presumptuous of me to assume it may be that?

    Hi Oxy, welcome to the forum.

    If you've just been gluten-free for a short time, you may just need to be truly gluten-free for a bit longer, as it takes a while to get used to it and make sure that the gluten is gone. Or you may need to be stricter.

    But that being said, autoimmune diseases like celiac and lupus do tend to run together. We say here that if you get one like celiac, you have a higher chance of getting another like thyroid or diabetes or rhuematoid arthritis. And you even have a higher risk because of family history. So it would be up to you to decide if you want to talk to your doctor about it now or give it some time to see if you feel better.

    Good luck and hope to "see" you around: This is a good place for info.

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