carlisima

7 hours ago, Tracy414 said:

I’m so glad you were able to get a diagnosis and have an answer! So true. Thank you for sharing, this makes me feel better. Feel off/bad starts to take a toll and you feel like you’re losing your mind when you cannot find an absolute answer. 

You’re not losing your mind. Trust your gut, literally 😊

On 7/21/2022 at 6:31 PM, Tracy414 said:

Hello-

I'm new here and trying to figure out my DNA test results. I did them through and online company (I understand it is not as comprehensive as going through primary doctor). They tested for DQ2, DQ8 and DQA1*05 I tested positive for DQ2 and DQA1*05. I reached out to the company and it is heterozygous. I did gluten free for about 7 weeks to see if my symptoms improved ,they did and then I ate gluten again (two pieces of bread or the equivalent) for about 7 weeks prior to getting testing for antibodies. During those 7 weeks my symptoms gradually returned. I have issues with bloating, gas, constipation, itchy bumps on my scalp, fatigue, muscle/joint aches and muscle weakness. My antibodies are all negative (tTIgA, tTIgG and the deamidated gliadin IgA and IgG). My grandfather had a ton of classic celiac symptoms, but was never diagnosed. My question is: can anyone help me understand my actual risk of developing celiac? I do understand the DNA test isn't exactly comprehensive, but perhaps some insight. I've read a lot of different articles, etc and I still have trouble understanding which group this puts me in.  At this point, I feel am likely sensitive to gluten or something in gluten containing products, so I plan to avoid them again. Thank you for taking the time to read this. I appreciate any insight anyone has to offer!

Hello, 

Sorry you’re going through this. All my bloods were negative but I just didn’t believe them, so I paid for an endoscopy. On the health service here they wouldn’t do it without some level of antibodies in my blood but I was convinced. 

Low and behold I was diagnosed on Thursday. Some of us just don’t produce the antibodies. 
 

You know yourself better than anyone else. Good luck!! 

Thank you so much to everyone that responded. I had my endoscopy today and it is indicative of coeliac disease. I am awaiting the biopsy now. 
 

Thanks 

On 7/13/2022 at 3:21 AM, Scott Adams said:

The protocol for a blood test is to eat 2 slices of wheat bread a day for 6-8 weeks, and 2 weeks for an endoscopy:

 

 

Thank you so much for your response. Given how I’m feeling, I managed to persuade the doctor to move my endoscopy a week forward and therefore it will be next Thursday as I’m struggling so much. 
 

Starting back on the gluten, my hair is shedding like there’s no tomorrow and the anxiety and panic attacks are enough to make me never want to eat the stuff again irrespective of the outcome. 
 

In the beginning I did go a bit mental, as in eating all the stuff I hadn’t in years and it put me in bed for 2 days, now I’m barely functioning but have cut my intake down to a sandwich a day and I’m doing a bit better. As much as the GI symptoms are bad, it’s more the mental impact I’m struggling with.
 

After years of flittering around eating/not eating gluten for how it made me feel I am finally doing the gluten challenge with an endoscopy at the end of the 4 weeks. 
 

im nervous given I know how it makes me feel but I also need to know once and for all. Any advice from anyone? How much should I be eating etc. 

Thank you. 

On 5/22/2022 at 5:28 AM, Wheatwacked said:

I'm not sure but I think the yeast infection is the goal to focus on. Every time you kill of the yeast you are killing good bacteria and back to zero.  If GFD makes you feel better...

Odd the timing with the diet change and all. Nutrient Deficiencies?

 

Thank you all for your advice. I have booked in for an endoscopy and I am now starting the gluten challenge for 4 weeks prior. Any advice for me? 

Thank you for your reply. 
in a nutshell, yes I barely eat gluten if I’m honest. Except for the odd time where I look at something and think ah I really want it and the gluten free is not the same.

Last week I went home (UK) and went mental on foods I’d not eaten for a long time. I spent the whole time feeling ill but I had to do it just to do it. 
 

I take anti yeast medications regularly prescribed by the doctor as it is out of control at times. I wouldn’t say I ate a bad diet but for some reason if I eat anything not good it comes right back. I take probiotics, and I am not anaemic. 
 

The only thing that came back slightly out of the ordinary on bloods was my mean platelet volume is higher than usual. 
 

See below for coeliac:

C- REACTIVE PROTEIN)<1mg/L[ < 5 ]Antibodies

ANTI-ENDOMYSIAL IgA ANTIBODIES

Negativo título <1/5IFI

Reference Range: Title <1:5

ANTI-ENDOMYSIAL IgG ANTIBODIES

Negativo título <1/5IFI

Reference Range: Title <1:5

Ac deaminated gliadin IgA0,7UI/mL[ < 7 ]Interpretation of results:

Negative: Less than 7 IU / mL

Indeterminate: 7 - 10 IU / mL

Positive: Greater than 10 IU / mL

For celiac disease

Diagnostic sensitivity: 82.7%

Diagnostic specificity: 98.4%

Anticuerpos anti gliadina deaminada IgG<0,4UI/mL[ < 7 ]

Interpretación de resultados:

Negativo: Inferior a 7 UI/mL

Indeterminado: 7 - 10 UI/mL

Positivo: Superior a 10UI/mL

Para enfermedad celíaca

Sensibilidad diagnóstica: 87,8%Especificidad diagnóstica: 98,4%

ANTIBODY (IgA)<1,23U/mL

FluoroimmnunoassayReference Range:

<7 U/m

Equivocal: 7 - 10 U/mL

Positive: >10 U/m

Anticuerpos anti Transglutaminasa IgG<1,23U/mL

Sorry about how they’ve come out the results but they look super negative! 
thanks for any advice. 

I am wondering if any of you can help. 5 years ago when we moved to Spain everything changed. I could no longer stomach food, I always felt ill and I was so bloated, miserable and angry. After a few months I deduced it was the fresh bread I was eating every morning and cut it out. I have never really gotten better. I have had so many coeliac blood panels done but they always come back negative however I have kinda cut gluten out of my diet. Maybe there will be trace amounts every week or when I am desperate to eat something I really want. 
here are my symptoms and I’m wondering if I should go ahead and have the biopsy: 

sore throat upon eating 

feeling out of it 

pain in lower right abdomen 

recurrent thrush everywhere

mouth sores all over mouth

bladder pain

tiredness weakness hair loss pale skin. 
 

on another note I do actually think my son has it, this is based on a mothers instinct and the fact his adult teeth have so much discolouration (he’s 8 years old) but my husband thinks I’m insane! I almost need to prove I have it to get him tested. Does anyone have any advice? 
 

Thank you