I'm new here (though have spent countless hours as a guest learner) and am finally ready to post! I stumbled upon all of this when I did a gluten free trial myself this fall and am literally a new person (headaches, fatugue, daily nausea, bloating and indigestion). DD had frequent tummy aches, constipation, pale stools, canker sores and unexplained mood swings. All symptoms cleared up within days on a gluten free diet. I'm willing to stay on the diet myself without a confirmed dx but was not willing to commit a 5 year old to it so decided to do the gene test on dd through Enterolab (which I hoped might also shed light on my genetics!)
Her genes revealed both a celiac gene and a gluten sensitive gene. What this tells me for sure is that both my husband and I possess gluten sensitive genes, that DD will pass a gluten senstive gene to her children and that she could be, or already is, celiac.
Dr Fine maintains (hypothesizes) that everyone with a celiac gene is gluten sensitive. I plan on keeping dd on a gluten-free diet.
Is further testing necessary?
Should I have gene tests performed on my asymptomatic children? The chances are pretty good that they too will possess gluten sensitive genes.
Does everyone with a gluten sensitive gene experence some form of gluten sensitivity?
This network is wonderful and has provided me with so much comfort and information as we walk this road. Thanks so much to the veterans who share their knowledge and experince with us newbies!