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  1. Geoff--B6 isn't a no-no. Some doctors do not agree with taking it, some encourage it. You do have to be more careful with B6. I did take it for a while, I didn't see the improvement that my friend did.


    in my case, B6 is a no-no because of the nerve damage can cause for people with pressure palsy (extra B6 in the system does not flush out of the body - extra B12 in the system is ok because it flushes out) my disorder is called HNPP (heritary nerve pressure palsy), brought on by gluten intolerance. More later, gotta go.


  2. The pain is in both my hands and feet. It gets pretty bad at times. It's not my only symptom, I have GI symptoms as well, and insomnia. Since going gluten free 2 months ago, I have seen some improvement in my GI issues, and I sleep like a rock. I'm starting to suspect that I might still be having other food issues, I need to try cutting corn and or dairy, but I'm having a hard time motivating to do so. Overall, I feel MUCH better, but far from 100%.

    Unfortunately, I have seen no improvement in my hands and feet. If anything, some days I think it's worse. Perhaps I need to look into seeing an endochronologist and or trying B12 shots.


    Hi - bmw here, i've been to a Neurologist for the nerve damage, etc. and B6 is a no, no - but taking B12 is a good idea, i've found it at Trader Joes, but try online to find it in store near you. I've had no trouble with corn or dairy myself, but found cutting gluten entirely has helped, give it time (check your labels). Good luck! bmw

  3. Geoff,

    curious, is your leg pain/numbness your only symptom? i have arm pain, also, and pain in legs comes only when i'm sitting - making traveling and sitting intolerable.

    i've been on gluten-free since sept 06 and doing better... i'm noticing changes, still, and i think it's going slow because there's gluten in sooo many things.


  4. I've only been gluten free a few weeks, and not seeming to do a good job (or I have other food issues - :o ) Strangely enough, my nerve issues, painful "tingling" in my hands and feet, with numbness - How can it be painful and numb? I don't know, but it's the best description I can think of, it hurts, and tingles, but I can't feel other sensations -

    Anyway, that's poorly written, but that issues has been getting worse. I wondering if it was helped by something else that was in my diet, while simultaneously related to the gluten? Argh.