Celiac-in-AZ
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I will check out all these resources. Thanks again!
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Celiac-in-AZ reacted to a post in a topic:
Which Doctor/s to See...
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What a thoughtful response, KK. I take a lozenge that has B6 and B12, along with folate. May I ask, how did you learn this information about thiamine and ataxia? I'd love to read up on it so I can better understand before asking a doctor or nutritionist about it. (And no, I have not yet been to a nutritionist but am looking for one that understands...
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Celiac-in-AZ reacted to a post in a topic:
Which Doctor/s to See...
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Scott Adams reacted to a post in a topic:
Which Doctor/s to See...
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Thanks for the response, Scott. At this point, I'm more concerned about ataxia than malabsorption. My Vitamin D and B12 were slightly low right after my diagnosis, otherwise all looked okay. I have not yet found a neurologist I trust to address possible ataxia. Good advice about the possible reflux. Other than legumes and occasional nuts, I'm...
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Hi all, I'm amazed at how many of my health issues have improved since my diagnosis and quitting gluten and a few other sensitivities -- and I'm only four months into this! Neuropathy, pudendal neuralgia, brain fog, ADHD... all gone. However, I have two issues that are not improving at all: 1) Instability in hip -- despite months of PT, I...
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Body buzzing after being glutened
Celiac-in-AZ replied to AutumnSky's topic in Related Issues & Disorders
That buzzing was my primary symptom pre-diagnosis. All day, all over my body, face, and head, getting worse all the time. It's pretty freaky when you don't know what it is! -
knitty kitty reacted to a post in a topic:
Test Results / Cyrex Labs / Datis Kharrazian
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LCAnacortes reacted to a post in a topic:
Test Results / Cyrex Labs / Datis Kharrazian
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LCAnacortes reacted to a post in a topic:
Test Results / Cyrex Labs / Datis Kharrazian
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Scott Adams reacted to a post in a topic:
Test Results / Cyrex Labs / Datis Kharrazian
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That is very telling, indeed. It helps me a ton to read the accounts from you and others who've been navigating these waters for awhile. I have been taking 6,000 IU of D3 daily for over a year and just got blood work done -- I'm at 30ng/ml. Exactly where I was before I started supplementing. And homocysteine at 14.5 despite taking a good amount of B...
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Thanks for the thoughtful reply, Wheatwhacked! There's a lot of great info in this. We went ahead and had a celiac panel done on her (she had started complaining of an intermittent sharp pain in her side anyway) and her TTG IgA is 540. We're still in the process of coordinating a biopsy, but... yeah. I am still awaiting results of my own (non-Cyrex...
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Celiac-in-AZ reacted to a post in a topic:
Test Results / Cyrex Labs / Datis Kharrazian
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Scott Adams reacted to a post in a topic:
Test Results / Cyrex Labs / Datis Kharrazian
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Scott, thanks for the reply and for creating this resource for all of us! You have a great point about insurance that I had not considered. That said, I decided more information can only be useful in the long run. For the time being, I'm being extremely cautious about cross-contamination, not eating out, and treating all of the cross-reactivities on...
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Hey friends, I am so confused and am curious if anyone here might have clarifying thoughts. (And bear with the long story, it is definitely celiac related.) I've been dealing with brain fog, balance issues, adult-onset ADD and vertigo for 8 years. I've had several normal brain MRIs in that time. About three years ago, I started to develop nerve issues...