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About myrottndog

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  1. Thank you for the replies. It helps to know that I am not the only one out there having to deal with this. I was frustrated today (okay, pissed!) that my dermo office did not return my call regarding biopsy results......probably still waiting........but a return call would have been nice since I'm hurting so bad right now. If this is dh.......I want my dapsone and I want it NOW! That's got my husband up in arms and he is doing the calling tomorrow.......YIKES! I am very fortunate to have such an understanding husband. I really need to count my blessings every 5 minutes or go crazy! I have been taking warm oatmeal baths.......just being in water feels better. I just may sleep in the tub tonight.<g> Any favorite books on Celiac related topics? Is there a central newsletter or anything like that? Does anyone use relaxation tapes? Where can I get a giant ice pack?<s> Many thanks!
  2. Hi Until a few days ago, I'd never heard the word Celiac and definitley not herpetiformis. I'm 49 years old and have never had any food allergies. About a month ago I got a rash on my torso and elbows that wouldn't go away....it just kept getting more intense. My dermatologist did a biopsy a week ago, but we've not gotten the results back as it was sent on to another lab for a 2nd opinion. I hope to have the results today. If it comes back positive for dh then they will start me on dapsone. How long does it take for the dapsone to 'kick-in'? Right now I am surviving on Vicodin, anti itch cream from the doctor and ice packs. I feel like my skin is on fire! I realize that 95% of the food in my house is now off limits.......depressing. I live in a big city and did go to Whole Foods Market and buy up a bunch of gluten-free frozen meals and munchies to tide me over until we have a definite diagnosis. If I have to I'll eat plain rice for the the rest of my life if it will take this rash away!! Thank you for reading this. It's all very scary right now.
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