Until a few days ago, I'd never heard the word Celiac and definitley not herpetiformis. I'm 49 years old and have never had any food allergies. About a month ago I got a rash on my torso and elbows that wouldn't go away....it just kept getting more intense. My dermatologist did a biopsy a week ago, but we've not gotten the results back as it was sent on to another lab for a 2nd opinion. I hope to have the results today. If it comes back positive for dh then they will start me on dapsone. How long does it take for the dapsone to 'kick-in'? Right now I am surviving on Vicodin, anti itch cream from the doctor and ice packs. I feel like my skin is on fire!
I realize that 95% of the food in my house is now off limits.......depressing. I live in a big city and did go to Whole Foods Market and buy up a bunch of gluten-free frozen meals and munchies to tide me over until we have a definite diagnosis. If I have to I'll eat plain rice for the the rest of my life if it will take this rash away!!
Thank you for reading this. It's all very scary right now.