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carnesfamily9

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About carnesfamily9

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  1. I'm 36 years old and I'm very frustrated. When my eldest daughter was 2, she had severe constipation and abdominal pain. After taking her to a pediatric GI, she was diagnosed with all the DNA markers for celiac, but her villi were normal. He said just watch her for any GI signs in the future. No need to change her diet. Her constipation resolved with Miralax and she's been fine for 7 years. Three weeks ago, more severe constipation and belly pain. Abdominal xray showed significant constipation. More Miralax. With all the literature I've been reading about possible cancers and other sequalae, we've decided to put her on the diet today. I'm very hopeful she will have complete relief and decrease chances of anything terrible in the future. Now...no one ever suggested my husband and I be tested or my other children. But since my last child was born 6 years ago, I've had a myriad of symptoms that now I'm beginning to believe my be celiac disease. Joint pain, muscle pain, pain with any deep pressure, fatigue, intermittent numbness in my arms, migraines, a persistent visual disturbance in the left lower field of my left eye, irregular periods, abdominal pain accompanied by nasty diarrhea and gas, insomnia, and dizziness. I've seen my GP, a rheumatologist, an opthamologist, and two separate neurologists. I've had blood tests, evoked potentials, EMGs, MRIs, CTs..blah,blah,blah. Even looking at my list, I think I'm crazy! Today I saw a new neurologist who just might be able to help me. He's ordered a ton of blood work, including celiac stuff, but still wants me to have another EMG for my intermittent numbness. He thinks I may have MS. I don't believe that, but he's the doc, right? Also, my 30 year old sister was diagnosed with lupus about three years ago, but has many other symptoms not related to lupus; unexplained anemia, joint pain, muscle pain, deep pressure pain, constipation and diarrhea, premature deliveries, migraines, painful rashes on her skin, Raynaud's phenomenon, and recurrent urinary tract infections. I've read that lupus can often co-exist with celiac disease. Should she also be tested and will any of our symptoms improve on the diet? You know, we grew up healthy and we're not hypochondriacs. Why am I so afraid being treated like I'm nuts? Why is the medical community so cold and dehumanizing?
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