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About woolwhippet

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    Victoria BC

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  1. Happy birthday and may God bless you today!

  2. Hi all, I have never been officially diagnosed as having celiac disease and the genetic test I had done showed that I was DQ4/DQ7. BUT if I eat gluten I get sick, so I don't eat it. Last week I found myself in emergency with stomach pains. I wound up being kept over night and having loads of bloodwork and a ct scan. There is something going on but the drs can't put their finger on it. I have low folate, elevated liver enzymes, and chronic diarrhea. i have been sick on and off for about two years and I had hoped that a strict gluten free diet would have solved all my problems. My questions for you educated folks are: 1. anyone ever hear of something similar? and 2. could accidental gluten cause this? 3. can gluten cause other reactions beyond classical celiac disease? Thanks very much. Lenore
  3. Where I am, in Canada, Boxing Day has become a major shopping frenzy. Amazing sales. When I was a child boxing day was a lovely day when everything was still closed and we spent the day playing board games and visiting friends. What does the USA have the day after Christmas?
  4. Ha ha ha! The image of this is great! I can see your Dad eating that filling and passing the empty shell to his wife--true marital harmony. It's sad that you won't have that food haven you were hoping for. I also truly believe in the "spectrum" theory of gluten sensitivity. My Uncle is super super sensitive and of his 4 children one is slightly sensitive and one moderatly sensitive and the other slightly more than the other two. Fascinates me.
  5. I've been there! I don't know how to make the glutening feel better--seems to be a matter of time thing. But, my secret to not needing those foods I should avoid is to have even better alternatives in the house and to try to never let myself get so hungry that I don't care what I eat. I hope you feel better soon!
  6. Go gluten free for a good amount of time. I am about 8 weeks gluten free and the mystery rash on my buttocks and scalp has really cleared up--just purple marks and a few spots with the surface area of insanely itchy spots being greatly reduced. For years I thought I had an odd ingrown hair problem or psorisis or something but was too embarassed top talk to my dr. I'd never have connected the rash with what I was eating. I gave up gluten for digestive reasons and, go figure, the rash starts to clear. I am very happy to be gluten free and not have to itch in the wrong places all the time!
  7. I am so happy for you. You are lucky to have wonderful parents but they are alo lucky to have a child who appreciates their efforts!
  8. Hi Jen, you can still be reacting even with a neg blood test. People here will attest to that. Listen to your body--you are probably right!
  9. Here is an excerpt from the University of Dublin, July 07. I was excited to read it! Anyone know more or is this brand new? "A new study which involves joint efforts of researchers in UK, Holland and Trinity College Dublin has resulted in the identification of a new genetic association of coeliac disease with the immune-related IL-2 and IL-21 genes. This study provides the first clear evidence of a second gene for coeliac disease. Trinity researchers Dr Ross McManus, Prof Con Feighery and Prof Dermot Kelleher contributed to this work which now permits new insights into the mechanism of the disease. Patients with coeliac disease cannot eat bread, pasta and other wheat containing foods. Understanding of the mechanism of disease could pave the way to new ways of treating this condition. This is a very exciting development that should offer a new level of insight into this common and debilitating condition. More work will be required to track down the exact gene involved. However it shows the value of new genetic research methods in tackling these sorts of diseases and offers hope to the many patients involved in the study that progress can be made in understanding and treating the disease"
  10. I just have to say how much I appreciate all of you here. This board has given me the courage to listen to my body and the support to stick with a diet that has made all the difference to my health. If I couldn't come here and see that there are others out there benefiting from and sticking to a gluten-free diet despite neg blood work and gene tests who knows how long I would have suffered! So, thanks.
  11. Thanks all for the great suggestions. I will talk to her about it--you are right, it's better she know from me because there is a lifetime of family functions ahead. This is such karma for me because I used to be a little critical of "those people" with "food issues". Now I am one! Serves me right.
  12. I have a lovely mother in law who is bending over backwards to accomodate me. Last sunday she took the time to prepare 'gluten free' meal and dessert for me. I have had d all week and I know it came from that meal. She is a very strong minded woman and for her to go to all this trouble is a big deal and I don't want to insult her but I also can't continue to be glutened. I was wondering how to tactfully approach this. Is there a pamphlet out there designed to educate family?
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