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jdp364

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About jdp364

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  1. According to the chef at our local Thai restaurant, all Thai curry dishes are gluten free, including red, green, massaman and panang (my favorite). I'm not sure if the gluten free aspect varies from restaurant to restaurant. As a bonus, I find the coconut milk in these curry dishes to be very soothing to my GI tract. Avoid anything with a brown sauce.


  2. Sounds like you got yourself an allergist worth keeping!

    Oh yeah, he's my favorite doctor in my current "arsenal" of doctors. Very thorough, open minded and up to speed on all the latest research.

    By the way, I have the sunlight/sneezing thing too. Very often when I walk from a darker interior out into very bright sun, I sneeze exactly three times. Thereafter, I'm fine. I always wonder why when it happens, it produces exactly three sneezes--no more, no fewer. I've been told that this kind of reaction is a genetically transmitted trait.


  3. I recently told my allergist that my allergy symptoms (sneezing, runny nose, post-nasal drip, coughing) seem to be less severe when I'm gluten free. He said he's had several patients report their environmental allergies clearing up when they go on gluten free diets. He said that there may be a connection between gluten and allergic reactions in general, but added "it's something that we don't really understand yet." Although I haven't officially been diagnosed with celiac yet, he told me that I should stay gluten free even if my endoscopy results are negative, as long as it seems to be beneficial to me.


  4. You're doing exactly what I don't want to do, but understand why you are doing it. Is ther such a thing as IBS w/an intolerance to Gluten? God knows I don't want to repeat that the rest of my life!

    I told my hubby @ lunch my plans - keep the follow up appointment & go back on Gluten after the vacation the 1st of July & see what happens. Thank you for the IGA thing. I will ask and see where that leads me. Anyone out there get diagnosed by diet change alone? Say, by an allergist etc????? <_<

    FYI, the main reason I am going with the endoscopy is because my symptoms are not classic celiac symptoms (my main complaint is gas/abdominal cramps and I have no elimination issues other than mild constipation). My symptoms do seem to improve when I'm off gluten, but they don't go away entirely. If there is any doubt that I have celiac, and it appears that there is based on my symptoms and ambiguous bloodwork, I want to turn over every stone in finding out for sure.

    Oh, and I dunno about this IBS w/intolerance to gluten stuff. Sounds like BS to me. :lol:


  5. Well, ugh... just as I thought....blood test was negative. They want me to keep my follow up appt. I told hubby and he said the follow up sounds like a waste of money. He said "Just go back on your food and see what happens." I think I'm going to do both......eventually. I'm going to keep my appointment to see what they have to say now that the test was negative AND go back to wheat but not until the beginning of July. We have a tropical second honeymoon planned in June (6 weeks) and I just feel too great right now to screw that up right before this trip. If it wasn't for needing to prove it, I would just stay on the diet & leave it alone right now. I don't what you officially would call what I have... Celiac or a gluten intolerance IBS (per the doctor) , but taking that delish' food out of my diet has radically made me feel better. I just do not want to go thru my life saying ..."I can't eat that." "Why?" "Oh, it'll make me feel bad." and get that look on faces like I'm a hypocondriac. Okay... I'm being a bit pissy right now. It tweaks with my mind when I just KNOW something and have no proof to back it up.

    Be sure to ask what your overall IgA number was. If that number is below the normal range, you can pretty much ignore any additional "normal" levels indicated in the test, and the result is deemed ambiguous. But not all GPs are aware of that. My GP told me my celiac bloodwork was negative. But I went gluten free anyway and felt better. It wasn't until I saw a gastroenterologist a couple of months later that I learned that because my overall IgA was low, the celiac panel's "negative" result is not a reliable indicator. So now I have scheduled an endoscopy to get a biopsy of my small intestine. I'm back on gluten until the biopsy, and guess what, I'm feeling lousy again.


  6. I'm considering asking to be tested for my overall IGA because I tested negative through blood test and barely positive via Enterolab, but my symptoms where horrible. I asked the NP that ordered the test and she said some people just have low IGA and the level has nothing to do with severity since some produce more and other less. I worry that other family members could have the same problem and would also affect their test results. It will be interesting to see if others have had this problem as well.

    I thought that total IgA was part of every celiac panel? In any event, you could still try getting an endoscopy to biopsy for celiac. Apparently the low total IgA does not affect a biopsy, which will show the celiac damage (if any) regardless of whether one's IgA level is low. All the low IgA does is reduce the amount of celiac-specific antibodies one would normally expect to find in the bloodwork if there was celiac damage. That's my layperson's understanding, at least.

    Hopefully more knowledgeable low IgA folks will correct me if I'm wrong.


  7. About a month and a half ago I was told by my GP that my celiac panel was "negative." Since then I have gone gluten free anyway and my gas/abdominal pain/constipation issues have generally been getting better.

    Today I asked about the test result in a follow up appointment with a gastroenterologist. He told me that while he doesn't think I have celiac (because I don't have D), technically my test result was ambiguous because my overall IgA is "slightly low".

    What does having low IgA signify? Is having low IgA in itself an indicator for celiac? Or does it simply mean, as the doctor suggested, that it may just raise some ambiguity about an otherwise negative panel?

    (Fortunately the doctor offered to do an endoscopy just to make sure and I am taking him up on the offer.)


  8. Technically it should be gluten-free. Did you tell them to make it gluten-free and use newly cleaned utensils and a clean wok? If not you can get sick. I found this out myself the hard way. I tried my local chinese place a few times without success. I explained everything to them but it never worked out for me. I now stick to PF Changs for gluten-free chinese where they are familiar with safe gluten-free food preparation.

    Donna

    Thanks for helping me solve this puzzle (I'm new at this). No, I did not ask for a clean wok and utensils. Normally I get the same dish steamed with the white sauce on the side and haven't had an issue. But last night they accidently stir-fried it and I ate it thinking the sauce was OK, without even realizing the wok/utensil issue. Argghh!

    jdp


  9. I have blood tested with elevated TTG antibodies and my endoscopy shows an inflamed/ erythema duodenum, but no lab results back yet. My symptoms are occasional minor bloating, occasional minor upper abdomen burning sensation after a meal and occasional flatulence, but no other typical celiac symptoms. My overall health and feeling is good. I have eaten gluten related food all my life and never felt a correlation between my symptoms and gluten. Furthermore, I can eat a gluten free meal and still have immediate flatulence/ minor bloating, so it would seem that there is too much bacteria in my body ? My stools are mostly well formed, they sink mostly, and I rarely have Diarhea. My question to you is can some other bacteria ( H-pylori ) or candida cause elevated antibodies / inflamed duodenum and give me these symptoms?

    Any thoughs are appreciated.

    Thanks

    You might want to look into the possibility of SIBO (Small Intestine Bacterial Overgrowth). That is a condition I am investigating with respect to my own as yet undiagnosed symptoms as well, which are similar to yours. SIBO is treatable with anitibiotics, but I suspect more is involved in my case than just that. My celiac panel was negative, but I have been noticing a correlation in my case between ingesting gluten and the onset of my "attacks" of gas/pain etc.


  10. I have been having symptoms for the past 4 months that come and go. My main complaint is excessive gas and gas-related cramping/pain. But I also feel occasional pressure in my chest area and heartburn-type pain in the center of my abdomen, which seems part of my overall sense of indigestion and digestive unease. I also have constipation and have noticed my stools have changed, although I don't have D.

    I have had numerous tests/scans that have all been normal. Also, my celiac panel came back negative. (Apparently the lab gave no numbers, just reported the result to my doctor as "negative".) I was put on Prilosec for two months, but it didn't seem to do any good.

    I have been keeping a food diary for about a month now. The only clear correlation between food and symptoms has been with gluten. Almost invariably, whenever I eat wheat (or other forms of gluten), I get the extreme gas and abdominal pain symptoms about 1 to 3 hours later. Similarly, when I have gone gluten-free for 3 or more days, my symptoms begin to clear up and I feel better. No problem with milk, nuts, or any other foods when they are eaten in the absence of gluten.

    My "gut reaction" tells me that I am clearly having some kind of problem digesting gluten, but my test results and my doctor do not seem to agree! Perhaps it is a rare kind of non-Celiac form of intolerance???