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About mganstin

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  1. Hello, I just wanted to let you know that when I was a child (4 or 5) I got Henoch-Schonlein Purpura. It came shortly after I had pneumonia and had it for about 6 weeks. I am 22 now but I still remember how terrible it felt when I was young, so I can sympathize with your daughter. Since it was so rare, especially then, doctors barely knew anything about it and I don't think my kidneys were ever even mentioned. I hope your daughter recovered well and has no long-term damage as a result. Anyway, I have tested mildly positive for Celiac in the recent past and I'm just wondering if there could be some link to this "allergic purpura" as a sign of what is to come in the future. I hope your daughter doesn't get Celiac D., like I did, but it would be smart for her to be tested for it. If you have any questions please feel free to email me at boysenberry_14@yahoo.com and I will do my best to help if I can. Sincerely, Meghan Ganstine
  2. Hello all, I was diagnosed with Interstitial Cystitis 2 weeks ago and Celiac Disease the day after. I'm overwhelmed and frustrated just like most of you that are newly diagnosed and I'm struggling to find a diet plan as well. Thankfully there ARE still some safe foods are ok for both diets and I'm searching online everyday trying to find as many as I can. Now, so far, I've been sticking primarily with the gluten-free diet because I feel that gluten does more damage to your body than acidic (IC- unfriendly) foods. While acidic foods DO hurt the bladder and have a tendency to be really painful, gluten can be like a poison to some of us. One thing that I have noticed so far on this gluten-free diet is that my bladder symptoms have begun to dissipate. This leads me to believe that celiac disease and IC are very much related. I have had IC symptoms for a year now and this is the first time that my bladder is actually starting to feel better and I truly believe it is because I have gone gluten-free, even for only 2 weeks. I should add that I have also been taking Prelief for 4 weeks and I have no doubt that it has been helping me as well. I'm hoping that as my intestines begin to heal from my 21 years of damage by doing this diet, I will be able to absorb acidic foods better. I know that this is just a theory but I'm going keep going gluten-free and see what happens. So for those of you newly diagnosed and feel that you need to go full on the IC diet as well as the gluten-free diet, maybe going primarily gluten-free, with the addition of Prelief, will work for you. But depending on the severity of your IC or Celiac, this may or may not work, but I would think it is certainly worth a shot. I am still going to stay away from the big no-no's for IC such as pinneaple, coffee, and tomatoes, but I'm definately not eliminating everything considered "unfriendly" for IC just yet. I'm going to give this a real shot, though, and I'll let you all know how it turns out soon. If anyone has tried this with or without success please let me know. My goal is give hope to Celiacs and ICers that feel they have no good food options left. It may not be as bad as you think . Meghan IC, Celiac, GERD, IBS, Endometriosis, TMJ, Fibromyalgia, PFD, RLS
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