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About onthemend

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  1. I have been on several cruises with wonderful results. On one cruise, the kitchen even made me a "gluten free" birthday cake. Just make sure you talk to the head chief and they will take care of you. Have a blast.
  2. I have maintained a gluten free diet for 13 years and dh has been managed quite effectively. Recently, I have had a tremendous outbreak on my arms. ( ANd it is dh....nothing else feels the same) I am treated by a very good dematologist, however, I think I am more knowledgable than he is since I have more experience. Has anyone else had this experience and what causes it? I rarely take dapasone, but am currently taking 100mg per day.
  3. dh I am brand new to this....never done a blog before. I am 61 years young and was dxs with dh ten years ago. I maintained on a glutin free diet with rare breakthru until last January. I am now using only certified glutin free products and on dapasone and STILL expeeriencing blisters. Have anyone heard of this complication before? Thanks Much
  4. If you have been gluten free for a year, your colon biopsy and blood panel will likely be negative. When you have a skin biopsy, the physician needs to specifically ask for it to be tested for DH. What they are look for is an over abundance of eosinophils( a type of white cell that will be present on your skin, that usually is there is LIMITED numbers. How many DH patients does you dermatologist treat? You may need another opinion. When I stay gluten free, my skin is ok. I will be 60 next month...was dx 8 years ago.
  5. I have been dx'ed with DH. Has anyone else experienced excessive sleeping?

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