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Walter S

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  1. thank you to all who have posted responses so far! I appreciate all of the input. I guess in some way I am in some denial about how much I need to do/change in my diet and lifestyle. The gluten free products do seem to send my stomach into an absolute mess. I had some gluten free bread with dinner and I am alreday paying for it terribly! So I am going to try what many have mentioned and go to an all natural (no processed gluten free diet) and let things heal up more. I am not sure how to plan a menu with no processed gluten free stuff because I am a picky eater to begin with so if there is any advice on that I would be glad to hear it. (thanks in advavce!) Also. it could be the Crohn's that is acting up but it seemed to have gone into a remission period (which can happen but I and the doctors cannot predict when that starts and stops) so perhaps I am having a flare up. Nut allergies? maybe. That is one I did not consider as I just assumed it was not applicable to me, but with the intense stomach pain and upset that the sesame seeds cause dI suppose it is more than a possibility. So I need to change more drastically, call the doctor, and try to come up with a way to eat all natural non processed gluten free until I figure out what's going on with my stomach or until I feel better and heal. I am disappointed with myself and honestly fed up with all of the things I need to do but that is my own fault. I need just deal with what I need to and get on with things. As for what may stop me from eating gluten free at all times, I will refer to the post with possible reason and I will list reasons for my mistakes below and if anyone has suggestions please feel free to post. It am ready to do whatever I need to do...

    - gluten-free is not as convenient?

    - gluten-free food too expensive?

    - Don't know how to cook tasty gluten-freee foods?

    - Don't know what to eat? (sometimes I do and sometimes I am not sure)

    - Don't know how seriously sick you can get from eating gluten?

    - Don't have the will power?

    Thanks again to everyone fo rhte insight and suggestions. I was doing much better for a while some time ago. Then when depression and anxiety hit me very hard I slipped up badly and didn't follow the diet as closely and ate gluten at times and now of course my stomach is a mess again. It is also very unpredictable.


  2. Hi all, it's been a long time since I have posted, but I hope everyone is doing well on the site. I have been coping with a lot of stress- depression and anxiety lately and I was getting some intense help for that. I have a question/concern though. Lately I have had a problem eating gluten free products. Here is the thing- sometimes I will eat thigs that have gluten and my stomach will be okay, the only symptoms I will get are the brain fog and exhaustion which are not good of course, but it beats having an upset stomach. The reason I have been doing this is becasue not too long ago, when I was eating gluten free bread products (bagels, etc.) I would get intense severe painful cramping diarrhea afterwards! I felt better sometimes stomachwise when I just ate regular bread products. So, I do not know what to make out of that. Sorry to be so graphic here, but as an example, I had a sesame bagel that was gluten free one day and with in a short time after eating it, I had an awful diarrhea attack that was simply terrible AND the toilet was filled with sesame seeds (way more than I could have possibly even eaten) So, that is what confused me. AGain sorry for the gros details but I am scared and concerned. I evenb have had some blood and mucus in the diarrhea after eating gluten free products. Now, I had a colonoscopy done and they did a small bowel biopsy last Spring and the doctor then diagnosed me with Celiac Disease, si I assume it is accurate. What could be going on with me? I am thinking of starting and trying the elimination diet next week after my birthday passes. I don't want to miss out on some good food on my birthday. Please post ANY suggestion, ideas, or possible explanationss you might have. Thanks in advance!


  3. Hello everyone. I have to be brief here because I do not have much time to post so if more info is needed or if anyone has questions I can pos more details at a later time. The short version is, i have been gluten free for a while. For years, I have suffered from chronic diarrhea, long beofre I knew I had Celiac. Now I am alternating between severe diarrhea and severe constipation, never being "regular". I never used to have that problem. It was always strictly diarrhea. Any idea what could cause this? Anyone else have this? Any advice especially for coping with the constipation as this is new to me nad quite uncomfortable? Thanks in advance!


  4. I have not been online in a long time, but I miss and think of everyone on this site. Unfortunatley I am suffering from severe depression and cannot get past it. I am taking meds and going to extensive therapy, but nothing helps! I don't know what else to do I am even taking high dosages of antidepressants. I am still having a lot of diarrhea and upset stomach (vomiting at times even both ends at once ! UGH!) I'm sure depression is adding to that problem. Anyhow I wanted to say hello to everyone here and I hope I can find a way to get better. This is very painful emotionally and I have no family support in coping with this!


  5. I have been gluten free for a while. I really miss the good tasting foods especially now that it is Summer. I just want to go and have a good burger and a beer or something like that! Anyway, I am still getting diarrhea pretty often and I don't know how to deal with it in a public restroom anymore. I have posted about this topic before, but I had another problem with it yesterday! I was at the local community center when I got a sudden stomach ache and needed to get to the bathroom as diarrhea struck. This happens more often than I would like it o but I can't help it. So I go in and I use the stall only to have (what sounded like younger teenage kids enter the restroom). They immediately started laughing and whispering going look eww, etc. because I was using the stall and pooping. I was soo embarassed and that is not the first time that happened to me lately. It has happened a few times and I am so sick of dealing with that! I hate using public restrooms when I have diarrhea in the first place and this makes it ten times worse. SO frustratuing! Also I am still suffering with depression and my docotrs have tried different meds but they don't seem to work so I am sick of that too! uggghhh! Does anyone have any suggestions?


  6. Hello everyone. Can anyone help me with getting on the elimination diet? I am unable to get my insurance company to pay for a nutritionist, and I need to go on the elimination diet. Does anyone know a website that migth explain step by step how to follow the diet? I'm not sure what exactly to do or how long to eat certain foods and what to eat or how o prepare the food. Thanks for any help in advance!


  7. Thanks everyone. I'm doing a little better. There have been a couple days here and there when my appetite is back and I am hungry- that hasn't happened in ages. On those days I eat a little bit more. Not a ton of food, just a little more, and I tend to get very bloated and sick forn that tiny bit of extra food. It's annoyinh, I just have to stick to small bland portions still if I want to function. I'll be taking my class on a field trip on June 11th. I have absolutley NO IDEA what to do about bathroom stuff on that day! I may not eat the night before or the day of! Any suggestions to help with that?


  8. Hello everyone. I am a little down tonigh. I had a couple of good days near the end of this past week. I even had an appetite for the first timein months. That all ended yesterday (Sunday) morning. I had diarrhea when I woke up and I have pretty much had it since. It's MOnday nioght now and I keep getting struck with diarrhea. The only good part is that I am not in a lot of pain with it (while going or after going), but the need to go when I get hit has been extremely urgent. I have had some close calls! :(


  9. I have been dealing with memory loss and dizzy spells/ brain fog for months now. Also, I have been dealing with exhaustion. But, yesterday I came dangerously close to passing out in my classroom at work. First it felt like the ground was moving under me and tilting me back and forth and side to side. Then I got weaker and dizzier. Then, I statred to not be able to see. I was only able to see a tiny bit of the filing cabinet in front of me. I was trying to grab onto something for support and began to moan and groan. Then I just kind of came out of it without keeling over and hitting the floor. It scared me terribly though. I saw the doctor today and he wants me to get to a neurologist right away to check for seizure disorder. I did have a seizure problem when I was a kid, but it went away and hadn't bothered me since. Has anyone had a similar experience? Is there any connection with Celiac?


  10. Hello all. I was terribly sick in the middle of the night! Yesterday afternoon I found myself starving hungry! So with my sandwich, I tried something new. I had a few peanuts. Aren't they gluten-free or no??? The nutritionist has told me to have peanut butter on toast at times and I have with no problem, so I figured peanuts must be okay if penut butter is ok. During the middle of the night I woke up with the most intense cramping and pain in my lower stomach that I have ever felt in my life seriously! I ran to the bathroom and was having diarrhea and vomiting and extreme dizziness. I was also inso much pain that I was practically in tears and yelling for help even though I was alone! I am going to the GI doctor tonight at 5:00


  11. This may be a stupid question, but if I was to contact a company and ask about if their product is made in the same factory with other products that do contain gluten, what exactly do I ask them? How do I word it? Is there someone specific I should ask for? I just am imagining talking to someone at a factory and them sayng "I don't understand? What are you talking about?" So I want to be prepared to know exactly what to say and how to word it so I get the information I need. When I was first beginning to eat gluten-free, I would ask at stores for gluten free products and people would look at me funny and then not be able to help me. I would say, "Do you have any gluten free bread?" They would look confused and then answer and say yeah, I guess so. All of our bread is in Aisle 5" Of course they would not actually have the gluten free bread and I would soon discover that nobody knew what I was looking for.


  12. Hello All. I had another party yesterday. It was a second birthday for my friend's son. I have a lot of friends with young children and many godchildren, so I attend a lot of parties. Well, I thought for sure I had everything planned out to be safe this time. I brought all of my own food (wrapped) and onl ate what I brought. I had a gluten free bagel before the party (I was there very eraly helping set up for the party and picking things up because the boy's mother and I are very close friends and she is going htrough a divorce so I try to help her as much as possible!) So then during the party I had a plain baked chicken cutlet (which I cooked at home) on gluten free bread. I drank decaf tea (black), which I have been drinking right along, and water. The only other thing I had was a handful of blue organic corn chips which I understood to be gluten free as per the literature I received from my nutritionist. I have been having blue corn chips on accassion for a snack or with a sandwich at lunch. The only thing different is that I got a different brand at the supermarket when I was picking up the food for the party. Could that be the problem? The fact that it was a different brand. I was doing ok most of the day, but after most guests had left I was helping to clean up when the diarrhea struck very bad. I was running in and out of the bathroom and just barely making it. Eventually I had to leave without being able to help finish cleaning up. I felt bad about that, but of course I couldn't help it. Basically anytime I eat away from home (even though I bring my own food) I still get sick. It's frustrating and embarassing. I'm not sure what else to do or what I am doing wrong? The only thing I can think of is that the brand of blue corn chips was different and so next time I will take care of that, but is that likely to be the culprit here? I'm just not sure. Thanks in advance for any input you might offer. I know people have said I should give it time becasue it takes months to heal and feel better, but it doesn't seem like a coincidence that everytime I eat away from home that I get sicker than usual. Perhaps it is just a matter of time, but I wonder if I am doing something wrong and not realizing it.


  13. Hello All. I had another party yesterday. It was a second birthday for my friend's son. I have a lot of friends with young children and many godchildren, so I attend a lot of parties. Well, I thought for sure I had everything planned out to be safe this time. I brought all of my own food (wrapped) and onl ate what I brought. I had a gluten free bagel before the party (I was there very eraly helping set up for the party and picking things up because the boy's mother and I are very close friends and she is going htrough a divorce so I try to help her as much as possible!) So then during the party I had a plain baked chicken cutlet (which I cooked at home) on gluten free bread. I drank decaf tea (black), which I have been drinking right along, and water. The only other thing I had was a handful of blue organic corn chips which I understood to be gluten free as per the literature I received from my nutritionist. I have been having blue corn chips on accassion for a snack or with a sandwich at lunch. The only thing different is that I got a different brand at the supermarket when I was picking up the food for the party. Could that be the problem? The fact that it was a different brand. I was doing ok most of the day, but after most guests had left I was helping to clean up when the diarrhea struck very bad. I was running in and out of the bathroom and just barely making it. Eventually I had to leave without being able to help finish cleaning up. I felt bad about that, but of course I couldn't help it. Basically anytime I eat away from home (even though I bring my own food) I still get sick. It's frustrating and embarassing. I'm not sure what else to do or what I am doing wrong? The only thing I can think of is that the brand of blue corn chips was different and so next time I will take care of that, but is that likely to be the culprit here? I'm just not sure. Thanks in advance for any input you might offer. I know people have said I should give it time becasue it takes months to heal and feel better, but it doesn't seem like a coincidence that everytime I eat away from home that I get sicker than usual. Perhaps it is just a matter of time, but I wonder if I am doing something wrong and not realizing it.


  14. I know it can take months to get better after starting the gluten free diet and I know that I could be getting glutened by accident either from hidden gluten or form CC, but it just seems to be taking soooo long to feel better and I am finding it so tough to be patient. Have others had that experience when they first went gluten free? How did you cope and keep your "cool" while you waited for your body to adjust with the gluten free diet? Am I likely to have stomach and bathroom problems everyday of my life or might a day come where my stomach can be "normal" for a day? On Sunday, I went to a Christening. I think I mentioned that in an earlier post. Well, at the reception afterwards of course there was a lot of food- buffet style. I had a piece of baked chicken that was marinated in lemon and a piece of sausage. I have been eating chicken lately so I think that was ok, but this was my first time eating sausage since I was diagnosed. Now, the piece of sausage I ate was truly the size of a quarter. That was it! It was so tiny, and I thought it was safe to eat, but since it was new to me I ate only that tiny piece. So, soon after I began to feel sick to my stomach. I wound up getting a ride (since I didn't drive myself) home from an acquaintance (just someone I know through my friend's wife and who I have seen at a few functions in the past) becasue she was the first to be leaving. I barely made the car ride home and she insisted on staying with me for a while since I was so sick. As soon as I got in the house, I ran for the bathroom to throw up. After that I was in and out of the bathroom with diarrhea for a long time. It was super nice of this person to stay a bit until I settled down, and I am grateful, but also this continues to be an embarassing situation for me also. Things have been so down fo rme lately all around that I just am losing my grip and patience! I need things to take a tuen for the better soon!


  15. It definitely is frustrating and I certainly am making all efforts to eat healthy food and avoid gluten. I have noticed that diary seems to upset my stomach and so I have been avoiding it. Maybe it was the pretzels or risotto, but I have eaten them on other days without a problem. What might be the best way to find other possible food intolerances I could have? I have called the GI doc, but he has not seemed too worried and does not seem to be much of a help. So I continue to feel sick and suffer. Very annoying and frustrating. I guess I should get a new doc but I don't feel like starting over again.


  16. I have been on the gluten-free diet for about 3-4 weeks now, I think. Also, I used a George Foreman grill in the kitchen which I always clean after each use. However, I am glad to have learned about the outside charcoal grills and contamination that it can cause. Now I will be prepared and able to head off a future problem when I start grilling outdoors in the summer. I did make it to the Christening today, but I had to leave early becasue I got very sick during the reception afterwards and now I have been painfully running to the bathroom non-stop since I got home. Is there any way to keep a positive attitude and not get frustrated and down when that is going on???


  17. WHOOPS! SO SORRY!!!!! I was trying to quote and respond and instead it seems I quoted TWICE without a response! I did cook the chicken on my grill at home and I made the risotto at home. I seal the meal in a tupperware and I heated i tin the microwave. The only way I may have come in to contact with the pizza or cake is by helping clean up the plates after the kids ate.


  18. according to their website, the balsamic vinagrette dressing is gluten free. http://www.consorzio.com/gluten_free_dressings.php

    Walter, I'm sorry to hear that you had a reaction. I'm not sure what it is that you could be reacting to...did you touch any unsafe food (pizza, etc?) Did you rill your chicken at home or did someone else do it? When you grilled, was it on a safe grill?

    I hope you are feeling well enough to attend the christening. I would just decline the food anyways, regardless of if you were feeling ill or not. Tell them its more important to you to enjoy the occassion than risk getting sick. Bring your own food.

    By the way, how long have you been gluten free?

    Get some immodiums to ALWAYS keep with you...in your car, your wallet, etc for those moments. It is a lifesaver.

    Hope you feel better soon...let us know how you are doing.

    Laura


  19. according to their website, the balsamic vinagrette dressing is gluten free. http://www.consorzio.com/gluten_free_dressings.php

    Walter, I'm sorry to hear that you had a reaction. I'm not sure what it is that you could be reacting to...did you touch any unsafe food (pizza, etc?) Did you rill your chicken at home or did someone else do it? When you grilled, was it on a safe grill?

    I hope you are feeling well enough to attend the christening. I would just decline the food anyways, regardless of if you were feeling ill or not. Tell them its more important to you to enjoy the occassion than risk getting sick. Bring your own food.

    By the way, how long have you been gluten free?

    Get some immodiums to ALWAYS keep with you...in your car, your wallet, etc for those moments. It is a lifesaver.

    Hope you feel better soon...let us know how you are doing.

    Laura