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aquamarine_queen

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About aquamarine_queen

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    Western PA

  1. I don't get why there are so many "family" issues with this disease. Take my father (please!): he says things to me like, "get a life" (he thinks this is a diet phase), "a bite isn't going to kill you" (we've all heard that one before) and my personal favorite "there's something wrong with you if you won't eat (fill in the blank)" (meaning how stupid am I not to eat pizza?). I go through this routine with him nearly every time I see him. He has been provided pages and pages of information on this disease and I know what he hasn't read (probably all of it) has been drilled into him by my mother, who is well-meaning but doesn't quite "get" it, either. What's frustrating is that I'm 36 years old! I've been "out of the house" and married for 13 years and yet this disease has created some serious control issues in my family. Believe me, my father does his best to get me to eat what will hurt me, if only so he can "prove" it won't hurt me.

    It's twisted and backwards and totally the opposite of what "family" is supposed to mean. And I know I'm far from the only one out there who is dealing with this sort of thing. There have been times where I've considered moving out of state just so that I won't have to deal with my father on this issue. Move out of state! How ridiculous is that?

    I think it would be a lot easier for families if the diagnoses were definitive in all cases. One simple test, positive or negative. No ifs ands or buts. Here's the test result, leave me alone. I don't know.

    Anyway, hang in there. You are ultimately in control of your own health; the family issues should become less stressful with time. :)

    A.Q.


  2. If you both are willing to try anything, you should take a look at Emotional Freedom Technique (EFT) -- see http://www.emofree.com/ which provides a ton of free information and instructions on how to do it. I saw a therapist who used this technique on me. This is a woman who I respect 100% and who has helped me tremendously with other issues using other respected therapies (biofeedback, neurofeedback, CBT, etc). I was experiencing an extreme reaction to someone and I couldn't get past being very angry at him. She performed EFT on me, started tapping on my face and on my hand and asking me to roll my eyes, count and sing while I thought about this person. I honestly thought she had gone cuckoo, but since I was paying a lot of money for the session went along with it. And it worked! Most of the issues I had with this guy just went away! (I had been battling these emotions for years and they were just gone... now he doesn't bug me at all.)

    The EFT folks use this technique for just about everything, including the phobia you describe here. Give it a shot and see if it helps. You can do it yourself or find an EFT practitioner to work with you.

    Now, I will admit that while this does sound a bit kooky to me, I'm certainly in no position to dismiss it out of hand. I will look into this therapy. Thanks for posting about it :)

    AQ


  3. activated charcoal works really good if you can get it!

    I second that! Charcoal capsules are great! For milder cases, I've tried chewing on a teaspoon or so of fennel seeds, which works ok but charcoal's better.

    Also, I try to have a cup or two of pure peppermint tea each day, (just pure dried peppermint, about a tablespoon, steeped for 10 minutes in boiled water. Remove the soggy peppermint, drink the tea:)

    I'm not sure this helps with gas relief, per se, but I think it helps aid digestion so that gas is less of a problem when it does come on.

    Also, for really bad gas pains and no relief at hand, try bending over (gently) from the waist a few times, this helps to expel it. Also, gentle but firm pressure with your (flat) hand from the top of your ribcage down to the top of your pelvic region will help to expel it. As unpleasant as it might be, you want, ultimately, to get the gas OUT. :):)

    AQ


  4. How cool is that! Thanks for sharing that with us. Do you find that it helps with other symptoms, or mostly just the GI ones (which is plenty)?

    Nancy

    I have found that activated charcoal capsules work extremely well when I'm doubled over with gas pains. Unfortunately, I don't always remember this right away and suffer longer than needed. I have no idea if charcoal is "recommended" for celiacs, but it certainly does work! :)

    AQ


  5. Beginning my third week gluten-free and I find myself: feeling vaguely "sick" (swollen glands, slightly stuffy, slightly feverish); with a full-blown acne breakout (I have trouble spots here and there, but a face - and scalp! - full of acne is not usual for me); and a huge cold sore on my lower lip that doesn't want to go away. A naturopath explained to me once that when the body rids itself of toxins (like gluten?) they have to go someplace, and often show up on the face, etc.

    The other side of this is that I have never felt more clear-headed in my life and I should be grateful for that and ignore the nastier aspects of healing. My joints feel somewhat less achy, too. I am also beginning to learn (by trial and error) what other foods are giving me problems (soy, and to a lesser extent, corn). What's odd is that I've always been somewhat sensitive to coffee (only ever drink decaf) - and now I find that it doesn't irritate my stomach at all! Well, at least not at this stage.

    Anybody else experience such things? :)

    AQ


  6. Also, rather than just eating it straight, use it for all of your cooking and baking, which is a more pleasant way of getting it.

    Coconut oil is supposed to be the healthiest fat on earth. using it will be one of the best ways to boost your health.

    Ursa Major - that's what I'm hoping to find true for me :)

    NoGluGirl - I have never had a colonoscopy; I don't doubt they're much worse than having a little blood drawn. I'm just squeamish about all things "vein", always have been. Seems silly when you compare blood tests to other, scarier, procedures, I know. For instance, a novacain shot right between my toes left me nothing but fascinated; I watched my own foot surgery and it didn't bother me in the least. Go figure! :P

    confused - others may have better ideas, but amazon .com has 54-ounce jars of raw, extra-virgin coconut oil for $20 (everyone there seems to think that's a great deal); unfortunately, it won't be in stock until late May or early June. I've seen it at various places on the internet and Amazon does seem to have the best price. I think Whole Foods and health food stores probably carry coconut oil; I think you want the unrefined oil, someone here will correct me if I'm mistaken. :)

    AQ


  7. NoGluGirl,

    I agree, thryoid disease is NO fun! And I'm a really big baby when it comes to having my blood drawn; no matter how many times I've had it done I'm still a nervous wreck. :unsure:

    And I had no idea that coconut oil had antiviral and antibacterial properties. You know if coconuts were a huge cash crop in this country (like soy, corn and wheat) this kind of information might be common knowledge. Kind of thing that makes me :angry: !

    AQ


  8. NoGluGirl,

    Thank you for your input :) Interesting to know that you are able to manage your thyroid disease without hormones. I'm sure everyone's different, but it gives me hope that, if the hormones fail for me (I take Armour), I may still be able to improve my thyroid function.

    I knew about coconut oils' benefits topically for moisturizing skin and hair, but I have never heard of it as beneficial for acne! I would love to be able to eliminate the chemicals I use to keep acne (somewhat) at bay, so I will certainly do the research on coconut oil for that as well (I assume you meant a topical application of it vs. ingesting it?)

    :) AQ


  9. I tried to do a search on "coconut oil", but due to the oddity of the search function (no three-letter words) I came up short. "Coconut" didn't get me the results I was looking for, so I thought perhaps I'd ask if anyone could point me to some non-coconut-oil funded information that has made it into discussion on these boards. Much of what I found on the internet seemed to come directly from those with a vested interest in coconut oil; I don't discount the information completely, but I would love to have some untainted evidence.

    My reason for asking is twofold: first, I am looking for the BEST possible diet (diet meaning style of eating versus diet for weight loss) I can achieve since going gluten-free; and, second, I have Hashimoto's disease/hypothyroidism. Coconut oil has been mentioned as both necessary to general good health (vs. polyunsaturated oils) and as beneficial to those with thyroid disease. I have seen vague and brief mentions of the Paleo diet on these boards, but didn't see a whole lot related specifically to coconut oil.

    I welcome both pro and con opinions on research as well as personal experiences. :)

    AQ


  10. Dori,

    Congratulations on your upcoming wedding! :) I remember well the fears I brought into my own marriage about "bathroom" issues (wish I could say I found a way to get over them). I saw a therapist over this condition who tried Cognitive Behavioral Therapy with me. It didn't help me, ultimately, but I saw the validity in the way the therapist approached the problem, which was basically a series of increasingly difficult "homework" assignments. She started me off very slowly by attempting to change one small behavior; one of my habits was to remove the toilet paper roll from the holder (because it was audible how many times I rolled off tissue), so leaving the roll on was my first assignment. I did that successfully, but in time I developed another way of dealing with that issue, which in effect defeated the purpose of the exercise. I got through 3 or 4 assignments in this way when I gave up on the therapy.

    Although it didn't work for me, I understand that there are others for whom this type of therapy HAS worked successfully. There's a good deal of information about CBT on the internet; five or ten minutes of research should tell you if this is something that might be able to help you. :)

    Hang in there ;)

    AQ


  11. Lisa,

    Thank you for sharing your story. It really helps to know I'm not the only one with this problem (although, of course, I'm sorry to learn that you have it, too :( ) I never quite thought of it as having a "secret". That gave me pause to consider it in a new light. I don't expect to be as simple as telling my "secret" and poof! problem solved, but it does give me hope that there's another way to look at this condition and possibly find my way to overcoming it. Thank you :)

    AQ


  12. Thank you for the thoughts :)

    Unfortunately, this just isn't something I can talk about with my husband. I'm mortified at the thought. And, believe it or not, I have never "heard" my husband in the bathroom. We're both extremely discreet people (been together 18 years), which doesn't help matters. I know he would understand if I told him, but this is something that stems from my childhood and goes much deeper. It's a phobia.

    All of the information I've given him to read about celiac is carefully edited by me to exclude the more graphic aspects of the disease. I've been known to stuff towels at the bathroom door and run both the exhaust fan and the shower to help muffle sounds, but ultimately, 99% of the time, if he's home, I can't go. It's not a logical thing and I imagine it's difficult for most people to understand. I was just hoping that there was someone else out there like me who can identify and maybe share how they deal with it.

    I appreciate that you took the time to read and answer (I read your post on the other board; normally I'm not so sensitive. After I posted I regretted it almost immediately - when I realized that it was PMS-driven :rolleyes: ) Anyway, it was kind of you :)

    AQ


  13. I know I've got to learn to become comfortable talking about this in some venue, and you all seem fairly relaxed about the subject, so....

    ....anyone out there understand the truly awful combination of celiac and well, um, shy bowel? Any advice to offer on how you are dealing with it? I am frequently literally unable to use the bathroom when my husband is at home, which is creating some interesting situations, particularly on the weekends. I'm sure I don't need to go into the details that you all know so well regarding celiac/gs and the "bathroom". But the end result of this combination is becoming increasingly intolerable, not to mention how much worse it is when I have a moment of privacy and can actually go. I have actually seen a therapist for this condition (before my diagnosis) and it didn't help (and was terribly embarrassing to boot!).

    Anyone? I'd love to know that I'm not alone.

    AquaQ


  14. I guess I should say I'm tired of talking to DH about it because I feel like a burden and like I'm annoying. I know I shouldn't feel that way but I guess I'm tired of hearing about it myself.....

    I know I'm still in the stage where this seems to be all I talk about with my husband, and like you, I'm tired of talking about it. Every other day it seems I'll bring it up just to keep all the "rules" fresh in his mind. Just last night as he was preparing himself a snack, I caught him slicing a wheat muffin near my gluten-free toaster and yelled "don't you dare slice that muffin anywhere NEAR my toaster!" and cringed as soon as the words were out of my mouth. For the most part, he's been very good about everything but he's a forgetful sort of person (always has a lot on his mind) that I know I'm going to need to nag him forever. And I really don't want to be that wife, but there isn't any other choice. :(

    AquaQ


  15. I had a viral infection several years ago that no doctor was able to explain. (Tested for "everything", everything supposedly "negative" - I have strong suspicions it was West Nile Virus.) I had a high fever for over a week, spent 4 days in the hospital receiving IV doxycycline and a month's follow-up of antibiotics at home (for a viral infection??? I got better but never recovered fully. A year after the infection I began having what I thought were extreme hormonal issues (PMS), did some research and testing and learned I had some problems there, including low adrenal function, for which I was eventually treated. But I still didn't feel "right" and my energy level was dropping as time went on. A naturopath treated me with a detox/supplement regimen and recommended I get a thyroid panel, which I did, and was diagnosed with Hashimoto's disease and hypothyroidism (thyroid disease runs in my family; I have a brother with Graves Disease). In the course of researching my new "conditions" I came across some information that suggested that autoimmune thyroid conditions often co-exist with or are even caused by Celiac disease - something I had never even considered!

    As I read into Celiac, I realized that I had many symptoms that suggested I might have it and asked my doctor for a bloodwork scrip. And the rest is, as they say, history. I've been gluten-free for 9 days now and the headache I've had every day for over two years is gone! It's a small first step, but it's a step! Funny thing, I have been bloated all of my life (among other things) and I never thought to look into it. I thought it was just "me".

    For whatever it's worth, I'm also doing the gene test through Enterolab. Not so much for me ( I already have all the diagnosis I need) but for my highly skeptical family. I figure the more documentation I can produce, the better. Sad that it has to be that way, but such is life. :rolleyes:

    AquaQ


  16. New here, but I've tried virtually all the "natural" deodorants out there and thought I'd chime in.

    Most of what I tried wasn't effective for me. I'd say I'm fairly "normal" as per sweat/odor issues, so I believe it was product ineffectiveness (possibly combined with my natural chemistry) that was the problem, not any inordinate sweatiness or stinkiness on my part.

    What DID work (and very well, I might add): the Thai crystal stone and Kiss My Face Liquid Rock, but however well they worked, they weren't 100% perfect. Liquid Rock was effective all day, but took forever to dry once applied and I felt the product liquify during the day, which made me feel like as if I were perspiring when I wasn't. I didn't mind this as much in the summer as I was usually sleeveless and the coating didn't cling to my clothing. The crystal stone dried reasonably quickly and thoroughly but stung like the Dickens when first applied (especially right after shaving), and it took several months (yes, you read that right!) for the scaly redness to subside, even with daily use. My underarms were like sandpaper! That said, I stayed dry in most conditions (the exception being a mid-summer run) and I never detected any odor - and I have a keen nose.

    Ultimately, I returned to aluminum-based deodorants simply because I can't stand to feel that icky wetness, not from sweat, but from the product. (I hated using the hairdryer 4 or 5 times during the day!) And the crystal was simply too brutal on my skin.

    An honorable mention is Aubrey's calendula spray-on deodorant; it kept odor at bay for about 8 hours, it DID sting a bit when applied (grain alcohol), and it never completely dried. But it was still better than the Nature's Gate, Tom's of Maine, Dr. Haushka (sp) (which was REALLY expensive), etc, that I've tried. My husband uses Burt's Bees Herbal Deodorant and LOVES it. But he doesn't have much of a problem with perspiration and he doesn't mind feeling "damp" throughout the day.

    I'm of the opinion that, no matter the brand, "natural" deodorants are a big compromise. Over the past five years, I've gone back and forth between natural and aluminum-based because I hate the thought of absorbing all of that aluminum. But I hate the thought of feeling disgusting or uncomfortable more. <_<

    AquaQ


  17. As I'm still rather new here (and to the gluten-free lifestyle), I hesitate to throw my opinions on different products into the mix (especially food). However, having read through many posts on this topic, I've learned that many of you are constantly on the lookout for great gluten-free bodycare and cosmetics. And it is here that I believe I can recommend a line of cosmetics worth looking into:

    http://www.monave.com/index.php

    I had been using this brand happily before going gluten-free (mostly the lipsticks and lip glazes - but I've sampled the foundations, eyeshadows and blushes, as well) and I thought I'd recommend it to anyone looking for gluten-free cosmetics, especially those who prefer mineral/natural makeup, once I'd contacted the company about the ingredients they use. The response I got (directly from the head of the company, I believe - and whose mother is herself a celiac) is that all of their products are safe to use. Here is a portion of her response:


  18. Guilty as charged! :)

    I am a brand-newbie who, for a couple of weeks, has only "lurked", mostly because I've been so busy reading through all the boards (and gathering a LOT of information in the process) that I simply haven't had time to post anything myself. And, I almost don't know where to start! :)

    These boards are a wonderful resource for a newly-diagnosed celiac (and those who care for and/or about them) and I certainly appreciate all of the thoughtful responses I've read as I've perused the various topics. No "cheap" answers here! Which makes me feel entirely comfortable about posing a question or joining a discussion in the future.

    Thank you for the warm welcome and I'm sure I will become more active on these boards in the days and weeks to come. :)

    -- AquaQ