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About mamaloca2

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  1. I am in the same boat as you are. I know that my two kids and I have it, but none of us have an official diagnosis. My daughter was tested at 18 months old but it came back neg. I had started her on the diet while waiting for test results and she improved so much, I said screw the results-they were not accurate! I had a really hard time convincing my Mom for a year. Be persistant and be confident. It's not till I finally got really angry that I said to myself " I am their mother and I know them better than anyone. I've seen what gluten does to them and I will NOT back down to people who don't know anything about this." Even if you had run a celiac panel, they are not as accurate as the doctors like to believe. Just read other testimonials on this site. Many do not have an official diagnosis, but the hell they have been through is proof enough. Trust yourself and don't back down to others. You're an awesome Mom! Best of luck to you. Stacy
  2. Did his docs put him on a stool softener of any kind? My daughters gastro specialist put her on Miralax (it's over the counter.) It has no flavor and helped tremendously. We had to use it every day for a few months so that her bowel could get back to normal. You really need to keep his stool very soft for a long time since it sounds like his have been traumatized. I also want you to know that she tested neg. for Celiac disease but I tried gluten-free anyway. In a week she greatly improved, and within a month, she was completely normal again. Now whenever she gets gluten, she is constipated and very emotional for a few weeks. Hope you find the problem soon. Stacy
  3. This was the problem with my kids too. They now it it w/out complaint. The trick: I mixed it with sugar syrup, putting just a little of the real stuff into the sugary stuff. Gradually I dilluted it more and more, until they were eating pure maple syrup-and loving it! I used to hate the stuff, but it worked on me too. We buy the Costo pure maple syrup and it is very good. good luck!
  4. Do you have an in and out burger? Everything there is fine except their buns, of course.
  5. I started work in a dental office in August, and was feeling pretty good after being gluten free for5 months. However, about two weeks into the job, I started having increasingly bad brain fog and problems with my eyes. Sometimes my whole upper jaw will just ache, even though I have no cold or tooth problems. I use the powder free gloves but the dentists uses powdered. Does anyone know if the powder in the air could be causing my problems? I feel like I am being paranoid and am afraid everyone else will think I'm insane if I ask him to use non-powdered. By the way, non-powdered are still slightly powdered-are they not? If anyone has information on this, it would be greatly appreciated. If there is gluten in gloves that is making me sick, I need something I can show the doctor-and I where the heck would you find gluten free gloves?? Thanks everyone, Stacy
  6. Promethius is the only one that has credibility with any of the doc's I've talked to. Enterolab does not have enough scientific evidence out there to back it up and my gastro specialist called them scam artists. I don't know if that's true, but if you are looking for the offical "proof" of celiac disease, you need to go with prometheus.
  7. My husband has not been diagnosed w/ celiac, but has it in the family and both our kids have it. He recently developed a rash on his forehead on both sides, and on both sides of his nose. There is a little on his chest. The rash is red and if he doesn't exfoliate and moisturize it is very dry and flakey. It is very noticeable and not going away. My question is, even though the rash is not charactoristic of DH, could it still be from Celiac Disease?
  8. I just had krispy kreme moment this weekend too. Doughnuts are my FAVORITE junk food so it is the hardest to deal with. When I have one of these moments, I indulge myself in my favorite gluten free dessert. I helps make the longing go away! Feeling your pain, Stacy
  9. If what they are making is playdough, then Quinoa flour is a great substitute. It's what I use. I would see if the teacher would use that instead for the whole class, so you don't have to worry about airborn flour or cross contamination.
  10. Your daughter sounds just like mine. She was neg for celiac. Have her tested through enterolab. Both my kids tested positive for gluten sensitivity and the diet has done wonders for them. https://www.enterolab.com/Home.htm
  11. I got glutened from cheetos, no doubt. I won't try them again!
  12. That all sounds very scary. I would definately check into what the other two suggested, they may be onto something. Also, you may need to go gluten free and Casin free, and just see what happens. Visit this website and read the testimonials http://www.gfcfdiet.com/ It's definately worth a try. Good luck. Stacy
  13. What are they testing the stool for? My daughter had three day stool sample, but it was to check for bacteria and white blood cells, not celiac. It came back normal except for some bacterial overgrowth. She also had a celiac panel drawn. It took over three weeks for the test results to come back. She had such terrible constipation, I couldn't wait that long. I started her on gluten-free diet and she improved w/in a week. When the results came out she was Negative for celiac. I was very confused. I took her off the diet to see if it had been a fluke, but instant constipation again. I heard celiac panels are not very accurate, especially when it comes to children. Eventually I had her tested though enterolab https://www.enterolab.com/Home.htm and found she was gluten intolerant. Also, you may want to look into the gluten-free/casin-free diet if eliminating gluten alone does not help. Hope this helps. Good luck! Stacy
  14. Thank you for your imput. I think I have seen a website like that. I will check it out again and give them the site. Much Appreciation, Stacy
  15. Yes, he has physical therapy sessions 3 times a week. I don't know what program it is. We live in California. Thank you for sharing your experience with me. I am desperate to find out if this is what is holding him back. It is a difficult disease, but if it we know that he had celiac, at least we could do something about it. Much Appreciation, Stacy
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