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MaryAnne729

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About MaryAnne729

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  1. I had severe leg/joint(hips and knees) pain that was so bad it woke me up at night crying!!(among other symptoms like exhaustion, intermitent N&D) I also had very low iron saturation levels. My hematologist tested me for celiac saying, it's probably not what's wrong, but I'll test you anyway just to be sure. Well, sure enough I was called a week or so later telling me to stop all gluten. After about a month all my leg/joint decreased and after about 3 months it was completely gone!! (however I was also put on Iron supplements three times/day and my iron level is now normal) I'm not sure if it's the gluten free diet, or the increased iron, I think it's the gluten free diet as a month after I started gluten-free my iron was still not normal on repeat blood test. I don't know if this helps, but after only 5 days, it's hard to say....but good luck and if you do have celiac it's something I have got "use to" if that's how to look at it. I don't miss how bad I felt, so it's all worth not having all the things I thought I couldn't live without!!
  2. broncobux, Thanks for the list at least if I have to grab something on the go I have some choices!! I printed it out and will take it with me shopping. happygirl, I guess I just have to get use to feeling comfortable enough taking food with me to a resturant. I still feel quite uncomfortabe, but I guess it's better than how I felt after eating at TGIFriday's!!!
  3. Thanks for all your replies. No the mashed potatoes didn't have gravy, but I will remember that about gravy!! I did go recently to Outback and they have a gluten-free menu. The waitress was very helpful and most importantly I didn't get sick!!! I need to start doing more cooking, I made pepper steak once, other than that I've been eating cheese quesadillas, brown rice, salads and fruit.
  4. Anyone have a problem with resturants asking if food has wheat, rye, barley or oats and still get sick. I'm newly diagnosed, with no real abdominal sx. After 1 1/2 weeks gluten-free I went to TGIFriday's asked if the grilled chicken with mashed potatoes had any of the usual, and OH BOY AM I SICK!! How is the best way to get across what I can't eat. (Other than not going out, which just might happen!!) I'm thinking the chicken may have been marinated. Help!!
  5. Thanks for all the encouragement! I know it will get easier, and I keep telling myself I'll feel better. Knowing i've gotten some improvement helps. What helps even more is all the positive comments I've gotten here and reading other posts. It is very encouraging!! I think I'll have a little cheese with my whining!!(Oh wait that will not be good!! LOL)
  6. TrilliumHunter, I keep telling myself it could be worse, and an MS diagnosis is much worse! Good luck with your children. I think it would be nice to know, so they can start on a healthy lifestyle if they need to be gluten-free. My nephew has many food allergies, wheat being one of them, however his reaction is anaphalaxis. I still wonder if he has some component to celiac disease or if it's an allergy. My daughter actually has some mild symptoms, something like I had growing up, so I wouldn't be suprised if she tests positive, my son, such a good kid, told me he'd eat what I would so I wouldn't be the only one eating different. (of course I haven't let him yet for testing.) Thanks again, and have a nice day!
  7. I just have to say thank you all very much! I guess like everyone who starts in this process of diagnosis, you have some degree of denial about whether you actually have celiac disease. I'm here for the long haul, because I'm not willing to give in to the concequences of not following a gluten-free diet! Another question, I have two teenagers, 17 & 14, would you have them tested, and would the blood test be positive if they don't have symptoms? I've had vauge symptoms for as long as I can remember, the intermittent D, lactose intolerance off and on, things just started to get out of hand with exhaustion, low iron, sore joints, irritability (actually according to my family I've had that one a long time! LOL) I also have hypothyroidism. I guess you have to laugh, or cry. Today I just feel very emotional! I guess it's just realizing THIS IS FOR LIFE. It's so overwhelming! Sorry for the whinning!
  8. My blood test was done by Cleveland Clinic. I wonder how accurate they are in this diagnosis. I'm trying to keep a positive outlook, only having followed the diet for 8 whole days. I've only noticed less foggy feeling. I know I need to give it a lot more time. My feeling I guess is it's not going to hurt to try and see how I feel, or if my other symtoms start to get better.
  9. Hi I'm new to all this. I have a question about lab results and the need for a biopsy, or not. My doctor ran Gliadin IGA and IGG . My IGG AB was 44 (Mod Pos to Strong Pos:>30 units), and Gliadin IGA AB was 8 (Negative: >20 Units.) My doctor told me I did not need a biopsy, according to my results I have celiac disease. (what started all this was a severe iron deficency along with misc. symptoms which I have found are common) I was told last week to stop all gluten products, so I have been using this site to try and make sense of all this, and finally just thought I'd put this out there and see if you all can help. Thanks so much.
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