Celiac.com Sponsor (A1):



Celiac.com Sponsor (A1-m):


Teacher1958

Advanced Members
  • Content Count

    193
  • Joined

  • Last visited

  • Days Won

    1

Teacher1958 last won the day on June 5 2018

Teacher1958 had the most liked content!

2 Followers

About Teacher1958

  • Rank
    Star Contributor

Recent Profile Visitors

6,229 profile views

  1. One thing I am happy about at her school is that they do not allow sharing of food. That way I know she won't be getting anything at school that she shouldn't have. However... Some of the teachers will pass out treats for all the kids and then tell them they can have them if they are able to. This is upsetting to me because it is up to the kid to determine what is safe for them, and then if it is not safe, to dispose of it. Even though I try to be there for all the parties, not all of the parents know of her allergies or can seem to remember them even though I've told them. So her desk will get covered with pretzels, cookies, cupcakes, etc. while they are passing out the treats. This is very upsetting to her because she wants to eat them and can't.

    I don't know how well you know the kids in your daughter's grade level, but I have a suggestion:

    Ask the teacher to pair your daughter up with another girl who will help her to deal with the issues surrounding parties and other events. In every classroom there are always a couple of kids, usually girls, who are like little moms. They take it upon themselves to watch out for the other kids, especially those with any special needs. I've seen it with students who had food allergies, Asperger's Syndrome, a hearing impairment, selective mutism, etc. Kids like this LOVE to help out, so once you or the teacher explains the situation, this child will take her job very seriously.

    At party time, have the teacher show the two girls which foods are off limits. Then when the treats are being passed out, either both girls or just the helper can assist by making sure that no forbidden foods are put on your daughter's desk. It's so hard for kids to assert themselves when they have to do it alone and with grown-ups, but when another kid enters the mix, it is so much easier.


  2. Hello,

    I was diagnosed in April. I'm 49 and have had symptoms since the age of six or seven. I had an upper GI in first grade, and the diagnosis was "nervous stomach." Of course, once I got older, they had a new term- "irritable bowel syndrome." Those were just catch-all diagnoses for hypochondriac, which is exactly what they thought I was, lazy people that they were.

    I started to feel better within the first week after eliminating gluten. It was very, very strange because I didn't just feel better physically, but my senses were much more heightened. Driving to work was almost overwhelming at first because the light was brighter somehow and I had better access to my peripheral vision. I have always been smart but very spacey- the kind of person who asks dumb questions and then thinks, "Oh no, why did I ask that? I already knew the answer." :(

    I worry about getting cancer, too, although not as much as I did at first. As for adjusting to the diet, it does get better. The hardest thing now is having to be constantly vigilant. There are still times when I will go to reach for something and then realize that it's off limits. Hopefully, in October when I reintroduce dairy, I will have more food choices. I've also been a lacto-ovo vegetarian for thirty years so right now I am just eating veggies, fruit, grains (rice mainly), peanut butter, an occasional egg, beans, tofu, and things like that.

    I'm sure you will do fine. You're only 27, so your body should heal nicely. I'm sure you're aware that each day you're gluten free decreases your chances of serious health problems, and once you reach that 5-year mark your chances of getting cancer are similar to the "normal" population.


  3. The children I read about on here are perfect candidates for a 504 Plan. For your child's safety and your own peace of mind, you should insist upon it. There are so many parents out there who demand 504's for the most trivial things (child should be excused from timed math tests because he can't handle the pressure?), I would think that your school would be happy to write plans for both of your children. I certainly would be.


  4. Toward the end of the school year there was some type of celebration at work in the lounge. I like to go to the lounge and relax and grade papers during my plan time, so on that particular day I sat and stared at the cakes and baked goods and just felt really badly. I also was mopey on International Day, because I remembered all the years past when I had been able to sample a lot of the foods. We're going to New York City soon, and it will be my first time there since having to go gluten free. We will hit the restaurants with gluten free menu items, but I also want my son and husband to be able to visit some restaurants that we used to go to as a family. I don't know if I'll eat before I go there or just go to the park and read and skip those restaurants altogether.

    It's weird, though, because sometimes when I'm at the store or in a restaurant I just look at all of the things I used to be able to eat, and I think, "Jeez. It's just food. It looks so harmless. How bizarre that my body has such a reaction to it." :(


  5. I need something badly for my anxiety, I just couldnt manage it without something to help me. I started on Paxil 5 weeks ago.

    Since Ive started it Ive been having a number of side effects such as excessive daytime sleepiness, muscle aches, fatigue, nausea, nervousness, and overall malaise. It has improved my ability to fall asleep though, and that was a big problem for a while.

    What I wanted to know is, is it normal or expected to feel a little worse before you start to feel better in the beginning? And, how long does it take to reach the full effect on this stuff? Does it vary from person to person?

    Any imput would be greatly appreaciated.

    Steph

    I've been on Lexapro, Wellbutrin, Celexa, Paxil, Elavil, Trazadone, and Cymbalta. If your body isn't adjusting to the Paxil, maybe you should ask to try something else. Sometimes it takes awhile to find just the right one (hence the aforementioned list). :D Right now I am taking Cymbalta, which my psychiatrist prescribed to deal with my fibromyalgia symptoms and depression before I realized that the gluten was causing the fibromyalgia. Cymbalta not only hits the depression, but it has norepinephrin to fight the pain of fibromyalgia (your symptoms sound like fibromyalgia to me). Elavil was the first one I took seventeen years ago. It worked well, and I eventually went off of it, but got depressed again further down the road. That's when the doc tried Wellbutrin (didn't do a thing) and Paxil (completely destroyed my sex life). He then settled on Lexapro, which was fine, but he eventually wanted me to try Celexa (maybe for the ADD?). I came down with full-blown fibromyalgia symptoms, so he switched to Cymbalta for the depression and pain and added Trazadone for sleep, because I wasn't getting much sleep. I can take up to three Trazadones a night, but I usually only take one. This combination works well for me. The fibromyalgia symptoms are nearly gone with the gluten free diet. It's all very strange how gluten causes so many symptoms.


  6. Most doctors don't know jack about celiac disease. I have to give my doctor information on it. She's clueless. She didn't even know that it affects the small intestine, not the colon. Eventually, I want to see if my insurance would cover a visit to Columbia in NYC, but I'm too busy right now. I just feel like most doctors don't have a clue. By the way, TUMS have gluten in them, even the ones that aren't supposed to. They actually make the gas worse! Avoid gluten at all costs. If it looks like a duck, walks like a duck, and quacks like a duck, it's a duck!


  7. You've been here longer than I, so I'm guessing you know that some corn tortillas have gluten in them. Maybe the product itself has changed, and the restaurant isn't aware of it. Is there any way you can check the ingredients on their corn tortillas?

    That would be very discouraging to suddenly have a problem at a "safe" restaurant. I'm always so thankful to find someplace like that.

    I wish you the best. Let us know what you find out.


  8. My vet told me about a technique for giving a pill to a cat that's worked well for me. First, make sure there's a bath towel in the laundry room near the washer or dryer and that the pill is closeby also. Take the cat in and wrap him in the bath towel like a papoose from the neck down so he can't struggle. Pry open his mouth and pop the pill in as far back as possible and then blow into his face, which will cause him to swallow. This has worked every time for me, and my cat is a complete psycho (God, I love her) and prone to some rather vicious attacks. :D


  9. I'm in English 102 Research Writing this quarter. I figured a Celiac Disease/Gluten topic would be a good thing to research (because I was diagnosed with Celiac Disease earlier this year), but I'm drawing blanks. Can anyone give me some ideas on what to research? Perhaps a thesis statement to work off of. Thanks.

    I haven't been in college for nearly a hundred years, but I'll give this a shot-

    -Impact of diagnosis on low income vs. middle income patients.

    -Tax breaks for gluten free food items and number of people who use them

    -How the 504 plan can be utilized for a child with celiac disease

    -Strategies that might be used to identify a greater number of persons who have celiac disease/gluten intolerance

    -Percentage of various symptoms that lead to diagnosis

    -Challenges of parenting a child with celiac disease/gluten intolerance

    -Problem of physicians who are unfamiliar with celiac disease/gluten intolerance

    -Number of patients who comply with the diet vs. those who do not

    -Comparing the rate of diagnosis among different countries

    -Comparing/contrasting the recognition of the impact of celiac disease/gluten intolerance on the population in different countries (for example, these diseases are highly recognized in the country of Ireland, where it is common to see the words 'gluten free' on restaurant signs, etc.

    Hope this helps.


  10. You should also send in special nonperishable treats for your child for those times when unexpected "goodies" arrive in the classroom. Elementary schools are big on special events, some of which you may not know about in advance. For example, during "Right to Read" week, all the kids go to the gym for 20-30 minutes to quietly read. Each kid gets a package of animal crackers. During the week of standardized testing, the PTA provides a treat each morning before the testing begins (that's one you will know about in advance).

    Among the teachers on my second grade team, we have a teacher who has a diabetic husband, so she takes any of the diabetic kids. Ask other parents about the teachers their kids have had. You might learn that some are more accomodating than others and you will also get a good idea of the teachers who might not be best for your child. Most schools won't let you choose your child's teacher. However, my son's school allowed us to write a letter stating what kind of teacher would best meet our child's needs. We did write a letter one time, because we had heard that one of the teachers had a passion for gifted kids and geared her instruction toward the higher end of the spectrum. Our son had had academic problems the year before, so we wrote a letter stating that our son needed a teacher who would take things slowly, etc.


  11. Just wandering who is all from Minnesota. I live in northern MN in a small town and feel like no one arround is like me.

    Hope to hear from all you minnesotans!!

    I'm from Ohio, but am curious: Do you have cool summers there or do the temperatures get into the 90's sometimes? I'd like to find somewhere to retire where the summer are cool. I'm about ready to move to Siberia.


  12. My only suggestion would be to find a dietician who specializes in celiac disease. You're probably near a major city, so you should be able to find someone. I live close to Cleveland, and there's actually a dietician who has celiac disease at MetroHealth Medical Center. I'm thinking of going to her because she would know what she's talking about.

    I can't help you with the lifestyle. I'm a teacher and auxiliary police officer who sticks close to home except for the yearly vacation to New York City. I'm sure someone on here has a fast paced life, though.

    Good luck to you.


  13. I had many symptoms of gluten intolerance/celiac disease, but the one that really indicated that gluten was the problem was when I started having poos that stuck to the sides of the toilet and wouldn't go down. Floating above them was what looked like an oil slick. In addition, the actual poo smelled like something you'd smell in a campground outhouse/porta-potty. :o The first signs were typical of malabsorption, which indicates that the body is not able to absorb nutrients.


  14. Your theory makes sense. Many medical studies are funded by the drug companies, though, so anyone who would dare to try to investigate this hypothesis would run into problems, at least in this country where so much is profit driven.

    Just as an aside, both my father and grandfather had particularly virulent forms of Alzheimer's Disease. My father suffered psychosis, vivid hallucinations, etc. Interestingly, he also had stomach problems most of his life. I don't really know anything about his dad's medical history, as he was of a different religious persuasion than we were, so I only ever met him one time when his mind was still intact.


  15. Hi, friends. I know a lot of you have Fibro or RA, so I figured I'd ask you guys...How do you know which you have and did you get tests and is there any medication for it??

    I'm confused because I have the symptoms of fibro mainly the swelling and affected by change in weather, but anywhere I researched it said inflammation is RA, not fibro (and I DEFINITELY get inflamed joints!)

    It's driving me nuts...during the thunderstorms yesterday morning I basically couldn't even move, I was aching everywhere. And I've been getting sharp pains in my left hand, so bad I couldn't even bend a finger, which made me useless seeing as how I'm a lefty.

    Please give me your suggestions, I would like to get things fixed somehow before I start university in just over a month from now!

    ~ lisa ~

    Fibromyalgia does not cause inflammation. That's why anti-inflammatories don't relieve the symptoms. I had all of the symptoms of fibromyalgia, and when I went gluten free, they disappeared. Prior to that, I had been prescribed Cymbalta (anti-depressant), which is a serotonin reuptake inhibitor combined with norepinephrine, and is used very successfully with people who have fibromyalgia. It helped my pain symptoms a lot, but didn't totally get rid of them, and the fatigue and other symptoms remained. The two times I've been glutened, the fibromyalgia symptoms came right back. There may be other causes of fibromyalgia, but in my case, gluten plays a huge part.


  16. I'm sure your doctor - and any other assisting technicians - would appreciate personal cleanliness and grooming but are unconcerned about makeup and hairstyles.

    I find the whole thing pretty invasive and humiliating. I had a flex sig done with no anesthesia of any kind and was really traumatized by it. Hard to explain, but I felt violated... almost like I'd been raped. I sat in my doc's office after the procedure and just boo-hooed while he was trying to talk to me. He looked at me like I'd lost my mind. These procedures are so common place to them, they never give any of these things that concern us a thought.

    This didn't even occur to me, but now I realize that it was because the GI was a female and so was her assistant. I don't think I would've felt so comfortable with someone of the opposite sex.

    I had a similar experience to you when I was in premature labor. I was admitted to a teaching hospital, and shortly after I arrived, I was given an amniocentesis and dye was injected into my uterus to see if my water had broken. If the dye showed up "down there," then that would have meant that the water had broken and I was susceptible to infection. Well, believe it or not, there was an entire group of medical students awaiting the results of the dye test. How humiliating. :(


  17. I am becoming mildly nervous. For some reason I keep worrying that I will not maintain an appropriate level of grooming. I know that doctors probably don't care if my toes are painted or not, yet this is all I can worry about. Its kinda funny that I am not freaking out about whether or not they find something in my colon, no, its trying to allot enough time to make sure I am well groomed.

    Some day I am going to look back and laugh at this.

    Don't laugh, but proper grooming would have never even crossed my mind. Don't get me wrong, I showered and put on a little bit of make-up, but that was about it. My best friend, though, would have been making certain she looked perfect. My biggest obsession was counting down the hours and minutes until I could eat again.


  18. Hi all,

    I was just diagnosed with celiac disease today, after going to my docter for having acute, severe abdominal cramping that started about an hour after a strenuous tennis match. The cramps lasted for approx an hour, then subsided. I then got them again after a match I played 2 days later, and then the cramps just stayed in mild, chronic form for the next 2 weeks. I feel a little better now. The puzzling thing is that the cramping was triggered by the exercise, but I can find no evidence that Celiac is triggered by exercise. What are your thoughts/Knowledge?

    Sandylulu

    There weren't any suspect ingredients in your sports drink, were there?