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ravenwoodglass

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Everything posted by ravenwoodglass

  1. ravenwoodglass
    That teacher is a sadist and need to be fired and prevented from ever teaching again. Schools don't need teachers like that. Although I am not a fan of lawsuits If your child starts being bullied in school in relation to her celiac because of this teachers actions a lawsuit might just be in order. She should at least be required to pay for any counseling...
  2. ravenwoodglass
    I like the Kinnickinnick crusts for a ready made one. Gluten Free Pantry makes a great french bread mix that makes a really good pizza crust if you want to make from scratch.
  3. ravenwoodglass
    You have gotten some great responses. As you have seen cheating is not an option, unless of course you would eventually like a signature like mine. Be glad you were diagnosed while the condition was at a point where you can heal fully. Cheat and eventually it won't.
  4. ravenwoodglass
    Scott got his info straight from the FDA website (I just checked to be sure). At no place in the FDA website does it say that corn is the most common source but it of course could be.
  5. ravenwoodglass
    I avoid it unless I call and find out what it is made from. From the Unsafe list on this website: /celiac-disease/forbidden-gluten-food-list-unsafe-ingredients-r182/ The problem with caramel color is it may or may not contain gluten depending on how it is manufactured. In the USA caramel color must conform with the FDA standard of identity from 2...
  6. ravenwoodglass
    It sounds like you are doing the right things. Have you eliminated gluten from all supplements, OTC and script meds, all personal care products? It can also take some time for us to heal and things can be up and down for a bit. Refractory celiac is very rare and hopefully it isn't the issue.
  7. ravenwoodglass
    If that is what you need to do I would ask the doctor to schedule the test for August and get back on a full gluten diet until then. If you have been gluten-free for years did you already get diagnosed as a child? Or did you have problems as a child that lead the doctor to advise the diet? If so perhaps your ped already diagnosed you, I would give them a...
  8. ravenwoodglass
    If the egg is in direct contact with the heat pouch it is most likely 'cooked'. Also do you know how long it was on the lawn before you snatched it? It may have been 'gone' before you noticed it and picked it up. You should never disturb an egg if you can possibly avoid it as the mother may be coming back to it.
  9. ravenwoodglass
    What are you typically eating? Gluten can be sneaky. Also do you have a gluten free home? CC from gluten eaters is not uncommon and we really need to take precautions against it. Go gentle with your system and go with whole unprocessed foods as much as you can as that makes it a bit easier.
  10. ravenwoodglass
    You should be taking a sublingual B12. It will bypass the damaged gut and go straight into your bloodsteam through the mucous membranes in your mouth. You are right your numbers need to be higher. Some places want the levels at least at 500 but in the US the low level in the 200s. You should feel a difference in a relativesly short time with the sublinguals...
  11. ravenwoodglass
    I would be happy if they just clearly labeled food. Rye, barley and oats need to be declared on a label even if they are in small amounts and don't even get me started on gluten in script and otc meds and supplements. Meanwhile, Garneir Nutritioneste, Suave and Dove will clearly label gluten in their products. Giovanni and Burt's Bees are good if you are...
  12. ravenwoodglass
    Clearly your gluten challenge is positive however you can fully expect to have negative blood work and endoscopy. You were fully healed and you must redamage yourself enough to destroy your villi for an endoscopic exam. Three days is definately not enough of a challenge for either positive blood work or biopsy if you have been gluten free for 7 years. Your...
  13. ravenwoodglass
    I am really glad to hear you are getting help with this. Celiac can have some significant neuro impact. Be sure to be super strict with your diet and IMHO you should stay away from distilled gluten and gluten in toiletries at least until you have well healed. I hope this resolves quickly for you and it sounds like you have a good doctor.
  14. ravenwoodglass
    Can you give us a link to this research? I would be very interested in learning more about this. An allergic, or histamine reaction does normally take place in the time frame you referenced but according to my allergist the intolerance reaction from gluten antibodies can take up to a week for reactions to develop as the antibodies need to build up in the...
  15. ravenwoodglass
    If this gets overwhelming do seek help for it. My anxiety escalated to the point where I became agoraphobic and barely left my house. I have been under treatment for it now for a year and am much better but it is still a struggle.
  16. ravenwoodglass
    The biopsy. False negative blood work is not uncommon. For that matter so is false negative biopsy but when either or both are positive it is pretty conclusive.
  17. ravenwoodglass
    It can only rule it out if they check for all the genes. Many companies only test for DQ2 or DQ8 and not the other 7 associated genes. You can still be a diagnosed celiac without those 2 genes.
  18. ravenwoodglass
    I have learned the hard way to call a maker whenever I see the words 'natural flavors'. Most times the item is safe but at times barley malt can be hidden in the flavoring. Other than that I would want to know if the company makes gluten containing items on the same lines since I am very sensitive to CC.
  19. ravenwoodglass
    This is my understanding also.
  20. ravenwoodglass
    DH doesn't come from other intolerances. It is a for sure diagnosis of celiac. It can take the antibodies some time to clear the skin until then you may be very sensitive to the least amount of gluten. If you go back to the doctor he may want to give you dapsone. If he does make sure you read the side effects and warnings. DH will clear on it's own if you...
  21. ravenwoodglass
    If your having symptoms then yes do give the diet a shot.
  22. ravenwoodglass
    This would be what I would do. A positive is a positive. False negatives are common but not false positives.
  23. ravenwoodglass
    He doesn't know what he is doing. Hopefully you are back on gluten and have been for a while. If not if you want any chance of an accurate diagnosis you need to be back on the full gluten diet for 3 months. Even then there is a chance of a false negative. How did you feel gluten free?
  24. ravenwoodglass
    It can take a while to heal. Try to be patient with your body as we usually have some ups and downs at first. You may also want to post this question in the section for Leaky Gut, you may get some more helpful advice.
  25. ravenwoodglass
    Celiac is not just a gut disease it is an autoimmune disease. Gluten can cross the mucosal tissues and cause an antibody reaction as your doctor stated. It is a matter of personal choice whether to eliminate it from toiletries. I personally don't use gluten containing cosmetics, shampoos or conditioners. I feel why risk it when safe gluten free alternatives...
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