Jump to content
  • Sign Up

scotty

Advanced Members
  • Content Count

    226
  • Joined

  • Last visited

Everything posted by scotty

  1. scotty

    Candida Diet

    april, wow that was alot of different things. i dont have a clue about....let me see here dry brushing? i assume juicing would be blending or pureeing veggies and fuits maybe; should i cook them would that help. i dont have a juicer was thinking of getting a blender though to feed like a baby you know as far as the pau d' arco and probiotics and all that stuff i'm not sure what feeling bad is cuz i always feel bad. it is hard to recognize the difference i guess. my nose runs everytime i eat i tell you that much. i dont get flu or cold like symptons when i take them. the only time that happpens is 12-18 hours after eating something i think. some nights my throat get sore, back of my tongue gets fungy. they usually make me feel good at first then my kidneys or something start hurting i mean to the point if i am in the car i got troubles and pain. i need diapers i swear but mostly for the urination. very rarily do i feel the urge to poop in public anymore -thank god! could have been what i was eating back when though that flared everything around my hips. have to see how it goes this time around. i dont think i want to be increasing acidity. i have many similar symptons to IC. things like cirtic acid, vitamin C, vitamins in general flare me up, maybe is why supplements do and even veggies. so no apple cider vinegar. i tried that once....when i first started my gluten-free candida dieting, big big gut wrenching pain. not sure if enzymes would be right then, but i always get into the 'what kind?' is for me crisis. just have to try some. i searched for an ND anywhere near NW ohio, SE michigan.....not much success. you have a better search engine then i am aware of. scotty
  2. scotty

    Candida Diet

    all the information helps tremendously. FYI though i have been on meats and veggies for about--since June '07 now. perhaps was a bad idea to try the antifungals and probiotics back when. i am taking it slowly this time. i have had die off and have had it spread in that rashy reactions have surfaced in different areas of my body not as great now though certain foods do cause a reaction, which kind of leads me here. i can only eat fish as my meat without a reaction or a miserable feeling. i am back to trying different veggies but some were causing reactions there. i had NO carbs until about beg. of December last year since i went on the diet. gradually might have been the carbs, but i got messed up and i'm back to square one as we speak. i guess with my prior experiences i am a little skeptical so to speak. mostly, i just need some guidance here. i can't find a Naturopath immediately. thought i had one yesterday, but she was Homeopath. huge difference. she was gypsy for all i am concerned. anyway, still searching. once i can afford it the fillings are coming out!! if not to just be sure i guess. i'm completely organic. i drink bottled water. i cook everything. have my own stuff though live at parents (and just want enough strength to get on my own--if not to just be sure kwim). i think i am at a level where i need to figure out the why part. cuz i generally feel i am not coming fully out of this at the moment. i'm just hoping to be able to bounce questions off some real experts who are going through this. general comparisons make one feel like they are not alone in this. so what i have started is antifungals (pau D' arco). two in the morning. meats (well fish) and veggies. i may try to keep a carb as well. any suggestions...i thought about like trying a goats milk or something. i generally am quite poor with vitamins they give energy but tear me apart, but i need some. i could porbably use calcium.
  3. NMD was a homeopath...why do i always learn things the hard way? she just wanted me to buy some sugar pills. my organic foods store recommended her. they failed to mention she was homeopath which i would not have known the difference anyway. said she was the only ND around. i was really hoping for someone to work with. what are these places set up for if they send you to people like that. i mean in all due respect lady i'm sure you have worked hard for your position but i REALLY need some help. makes me wonder where my poop is going right now. i hate having to live on this side of the fence.
  4. scotty

    Candida Diet

    i dont know maybe i did not do the process right since i never worked with anyone professional and never had diagnosis persay just lots of information from this website which all seem legitimate enough in that it helped i guess is my only argument. i dont know are u supposed to take antifugals first is that the way it goes? i can't remember how i did it but i did not feel bad at first in fact first few days i thought i was cured. perhaps i took probiotics first. i think that is what i did april, i can't do fruits. real weird feeling they give me. like all the life has been sucked out of me...something like that. course every time i have tried since gluten-free i was eating other things that eventually i determined bothered through this long eliminating process here. which is growing and growing. so i could try them again. i thought i was ok there and added carbs back in finally after 6 mos. or so then i got messed up and the carbs really clear me out in the mornings. huge loads. but they give me energy. then they cut off my circulation. had some over the weekend and froze to death with my extremities tingly. cut them out and i am functioning for the most part again. i really think i just go overboard but i just always have a hungry feeling in my stomach in my body. i can't stop thinking about it and when ifinally get there i slam stuff cuz as i am eating i start getting more and more hungry. i have to cut myself off cuz i could just keep going. i never have a full sense, but did when i introduced carbs for teh first time in....i cant back to that level. psipsina, the only coconut oil i tried was in a jar not pill. used it to cook mahi-mahi. was real good but really burrowed into my gut. i'm talking wrenched contractions here. might have been the fish cuz it did stuff to me at another time w/o the oil. i avoid it now, but i am afraid of the oil. i know stuff will mess up my gut and clear me out. i have been throuhg all that. and psyched myself up to do it many times hoping it will work but it seems to make me worse. its different every time. i can't find one that is right for me. it is like everything i tried hurt more than it helped. what is a good plan of supplements? whats the correct way to do it?
  5. i found a mercury free dentist in the area (the only one), but i dont get dental so that could be expensive not to mention my poor quality of teeth as it is. might have to check into him. i notice my back teeth with the fillings are even more bothersome at times now. like i am acknowledging the throbbing as being the result of the wedge of mercury in there. you would think after all these years the mercury would wear off. Igenex said 2 western blots are 190 dollars. i'm going to contact the LLMD in Penn. see what happen + i got a name and now an appt with an ND today see what she thinks is going on down there. i dropped my enterolab in the UPS today so here goes with that. still awaiting the bloodwork results. here's mindboggler i manage to come across........opposing sides to Prilosec??? Nexium makes it very apparent on their website that it is gluten free. maybe i will see if i can switch, but Nexium needs a prescription. anyone know??
  6. scotty

    Candida Diet

    i have been reading as much as i can of this post and must say.....wow what a mindjob!! fantastic information!! i might have had the worst case of candida known to man. i have done rotations and tried eliminatinos and tried all kinds of different probiotics and antifungals to see if i could get anything to consistently work. maybe i went overboard on them since at first they would feel like they had an impact but then they would seem to lose there potentcy and then seem to flare my prostate anymore??? all the way up my sides. something down there gets real irritated (but not when i stop taking the things that do) so i get not much of a chance to make the b-room and darn near piss myself at times where there is no bathroom and have to hold for longer than a minute. this bladder issue seems to be my downfall. i can't much of handle most things you folks survive on. i am reading through guessing that is your problem......but i seem to be the exception here. things like garlic, onion, caprylic acid, probiotics as i said, peppers, more; most veggies in general (even cooked to mush) have a tendency to build up this burny incinerated feeling in my belly, like things are not absorbing but melting my insides to mush. here i go kind of twisting symptons all into one though. i have had leaky gut my tongue remains white and fungy. i can't seem to cleanse with the foods that are supposed to work, fruits are never gonna work i swear--they just floor me, almost make me dizzy, like they are kryptonite!! i can't get a steady flow of carbs.--i have said this many times and sorry if you have read this somewhere in my other posts, but again just looking for the right response; maybe one of you is it. boy i could keep going with things but i won't....just searcing for a parallels and wanted to mention my presence i guess--awaiting test results and possible alleys to pursue with other tests; not to mention slow at work. mostly just trying to figure what to heal with.
  7. I believe besides my 10+ mercury fillings I was mercury toxic from my mothers mouth full of amalgams. (in utero) Mercury was also in contact solution years ago, (thermerisol) truth, i have 3 fillings that are shiny looking and assumign these are mercury.....did you have them replaced? maybe this TMJ somebody mentioned is in my near future. closer than i expected.
  8. ok thats a good idea. i usually never have a problem. like when people talk about struggling to get a urine stream started.....i get in there every time like a little kid dancing out of my pants. although it is nice to not have D past few days, this is where it gets tricky usually thanks
  9. these all sound like my bowel patterns when i was younger and still now. i can get regular to the point i am going every morning, but one morning i will miss or wont really have to go and next couple days i am all messed up again, constipated in some medical understanding. GI doc gave me Miralax as well. what is this supposed to be some miracle stuff!!!! i never took it. here i was doing everything i could to keep from going what with the subsequent fatigue--never understood how folks could go and then go through there day without needing to immediately eat afterward--doing evrything i could to slow the D and the doc wants me to take Miralax, "you wont even know it is there" he told me. gluten-free has rid me of the painfully large BMs and though i am sill searching for answers, D today well BMs today are much less painful. still in a state of knowing where the bathroom is at all times..... btw--i notice my son has the same patterns, but no one wil believe and grandma loves to give him chocolate cakes for b-days you know...he has CP and is 8 and still in diapers, when he BMs the cakes it is awful, rank, they all go with a laugh, "what did you eat kid?" then discuss it like it was fruit probably the sugar in his juice, maybe the kid ate too much, 2 days later he does it again and they follow suit.....
  10. not sure about the bloating feeling. i know my guts always feel empty like i am starving then next thing i know i have a tremendous D. i dont get it. it felt all empty next thing i know more comes out then i thought i even ate. i use to have the pain too---i think it is gallbladder, which seems common around these parts
  11. i will just have to ask how much 2 Western Blots with a side of fries and a large Strawberry milkshake (mmmm) "to go please" will run me. do they have a value menu? see what they email i guess. i got a response from 'my' doctors office that my doc wants me to ask the gastrologists? Gastroenteroligists? the GI guy to "precertify" enterolab. i just get the feeling my doc does not want anything to do with my current situation. at least the allergist was more helpful and actually was curious to see how i will be doing in a couple months for a follow-up. not sure why he suggested that my bloodwork results be copied to 'my' doc. i'm sure he won't look at them any more than he would look at me!! i can't get a large enough quantity to put in the bowl right now. which is strange. usually i fill the larger bowl, but ever since enterolab arrived i been having small BMs, a fingers worth not always in that state. hardly anything comes out. i think it is a good thing, at least better. i'm thinking of splurging on some rice or quinoa, some good carbs always bring a load for me, but it porbably wont come at the right time. unless i have to go i generally cannot. who knows maybe by some miracle the carbs will work again. i got to get some results, something to work with here.....
  12. OK--two Western Blots I can afford.....get this--i have gone 180 here! i feel so much better today then i have in weeks. grant it i have to cut this and that, i'm going to pick up some more caulflower just to see my reaction since i think it was Tuna (which is wild that you mentioned the mercury thing Carla--kind of reminded me that i had eaten it--see i used to eat cans of it, and i tried a fillet) that i had couple days ago, finally started to attack or whatever and why it seemed like caulflower was not working anymore. got to give that another shot. as well last week had "regular" cucumbers since i was at krogers and did not care. those had to mess me up. i had "organic" one today so we will see--but i can just tell you know. i feel pretty good today. i was also eating ground beef last week. this stuff i been continually eating since it gives me energy, but at the same time i think it the source of my recent rashing and bladder pain, it makes the tip of my well pinched sensation--too much detail maybe.....not saying i am cured, but what a relief today is. i have not felt this in over a month or two. that sense of healing. last night i dreamt i was coordinated again and playing basketball again, quite well mind you; instead of feeling like running in a swimming pool and fighting sleep....is that weird. i have dreams where i am fighting to stay awake (used to; still do time to time). i feel like i can wait to eat....and that when i do it will feel real good like i need and it.....well it feeds me. we'll have to see how lunch goes. i'm not really even hanging on its arrival. this is what happens. i think this inspires me to restart my food diary to help pinpoint problem foods. i wonder if things that are working here will build on me again? i wonder how long this will last again? this is why i hesitate to try things and back myself into corners eating the same things. i just want stuff to work for awhile, to get THIS, this sense of healing...so of course i can have confidence to try things that might not work. once the doctor calls (hopefully i can speak directly to him--doubt it though) i will mention the Lyme tests to set the best possible plan. maybe i will just set another appt. what a trip, i'm really beginning to believe certain foods effect me differently when certain "bad" foods or foods that just won't work are going through me. i have no clue why i can't handle a lot of stuff though and most times where my problems are coming from; i have no idea how to control any of this, yet this is all happening right there inside of me
  13. ok thanks a bunch. i did not realize the thing was so xpensive. they emailed me back with a price of 450 bucks!! saying it is the 6050 panel, whatever that means. not good to go bllind into this. ugh the research is worse than the symptons
  14. OK so i wait and see a LLMD....they can do those specific tests and i dont order the ones through Ignenx? my understanding is they are the best of the best. will i get the same from an LLMD? or do i still order them but take them to the LLMD instead?
  15. so just do the Western Blot one? it seemed both of the tests (maybe there is more than 2...anyway) are blood serum tests...i suppose some instructions will given by igenex. what does it mean sign for it? should i have them send it to the doctor? i have to talk with the doc anyway and maybe i can coordinate all this with him. i can't imagine what he will say. i dont really care i guess. it is nice to be having tests done that relate at least. i guess i intend to have an LLMD at least give me an interpretation of the results; that seems the best. i will have to be contacting one.
  16. maybe i can get an LLMD to consult over the phone anyway you look at it i need to contact one. and order the tests. i'm not sure in which order; soon as i hear from igenex i will order them...could you intrepret them? will they send me results or my doc?
  17. i think i have one filling. not sure what it is made of....? have not been regularly to a dentist though---how do you measure toxicity? man i have so much to research can't i just wander through life and smell the flowers--i mean is there tests like allergy tests? is there toxicity testing? i have seen this mentioned quite a bit on the site. i used to eat onlt tuna and rice because they were the only things that went through smoother. tuna now makes my heels hard and my body stuffy makes me urinate almost right after eating in this sort of grumbly hunger growling sensation. does not burn clean. which the caulflower is starting to do, which all my foods do eventually, so i stop eating them, but to a point now i dont want to go back to anything. thats not good with fish!! thats all that i have in the fridge right now!! but i tell you poultry and ground beef, this lamb, even this rice protein mix, heck ostrich paties, they all do something negative........i have been down those roads......maybe a blender, puree all my meals and eat like a baby; same quantities even
  18. i just had the impression of getting a really good doctor for something. i guess i will if i have jaw problems. now this metals thing...has always intrigued me in that i dont know where i am getting metals: for instances, bottled water, organic everything, baking soda to brush, mineral salts deoderant...let's see what else...i'm not really taking in metals far as i know. how do you i avoid or recognize where i am getting this. will research the doc
  19. well i hope that was in good humor. i am a little slow at times and not one for (comprehending) jokes when i feel like i am dying. i got blood drawn today specifically for Ige ANA IgA anti-gliadin and IgA anti-endo---somehtingor other cant read the writing here of the doc. seen the allergist. seems that apple was a 2+ as well as sesame and both dust mites were 4+. and evrything else was fine --on the surface anyway. did not have regular allergy tests done like ragweed or pollen but doc was not concerned and neither have i ever been. mmmaybe in the follow up. he is going to scrounge up my endoscopy from years ago to see exactly what they tested for and give a response for the bloodwork. he seemed more thourough then other docs i had seen, but recommended i try a lamb-rice diet....? and thinks i might have eosinophilic gastroenteritis. i'm not seeing it and just took two seconds to read it. i had a CT once that looked nothing like the photo on wikepedia. he suggested i try tablespoons of stuff i am not tolerating to see if i can tolerate that much, just to see what happens....for the record: i had to cut lamb due to the awful candida it produced. i mean is it wierd that safe foods are giving me candida at times, or that clogged greasy feeling. my tongue is white and he sadi nothing about it. said my white blood cell count was not terrible but low since i showed him bloodwork from last week. this caulflower is starting to not work anymore. is giving me candida. i got an email out to the lyme test people...igenex and a name of Dr. J in Pa. (Dr, J J? are you serious?! i'm not sure which test to order. not sure how to go about this. i'm going to be talking with my regular doc about him referring Enterolab, will ask then if he might do me the same favor for igenex....
  20. hello everyone, i figure to drop in and at least introduce myself to The Lyme Thread as i will be pursuing this avenue for what the @$*% is bothering me all the time. i was really bad there about week-week and 1/2 ago to the point i cried for help and CarlaB had a long afternoon discussion with me suggesting that i check into Lyme. i am not going to go into my whole story on this post as i am working and quite fatigued since these episodes that have arose out of nowhere after i was going quite well towards 100% on just a gluten free diet. something got me and again and again and again and i have had D since i started gluten-free (April '07). though incredible turns have been made in my system and i am much better with the D today then the D of years prior...i still think something is not fully right. i am very limited on foods. Caulflower, fish, and ground beef (which i cannot tell most times, but thats what brings me here....) seems as though there is still some issue holding me back and i have multiple troubles with multiple foods and no matter what i try i can't get it right. everytime i get really messed up i end realizing a strong food needs to be cut, but am running out of things to cut. i had major strides and major success the somewhere i went bad again as i said...i''m searching here for what to say to describe all this in short. i guess i noticed here recently that i cut the carbs and it released the clogged tingly cold extremities feelings. i'm not sure if i am still healing or what is going on. sometimes (like this lettuce) i will eat and a great shot of energy runs through me and i want to do everything i have never imagined but a couple hours later i am plummeting and feeling the feelings of being glutened. thats the strangest one. when i finally have a moment where my food tastes all good and like it should and feel it work everywhere like it should i am ususally worse off afterward. its like if food makes me feel rotten and run-down then slowly it will absorb and give energy and almost work better. well enough trying to describe the inexplicable.... i have an Enterolab at my home and allergy testing tomorow, but have come to realize i will be wasting my time with the latter. i am going to go anyway maybe i can have a good nutritional/internal doc recommended. i guess that is the only reason. my doc(s) just sigh that it is IBS and offer no feedback and offer no impulse that they even care to help. obviously i am going to need Lyme testing. does anyone know an LLMD near NW Ohio SE Mich...? how much and what are the right tests to have done? can i get these through my regular doc, who will be someone new --cross my fingers the right one falls into my lap here--? thanks for listening Scotty
  21. scotty

    She's Still Saying I Need A Colonoscopy!

    ok. thanks. so........if i was to try and determine if conclusively i had Celiac, going up the rear is a waste of time energy pain and money....? my docs are trying to convince me i have IBS and want to do one now, but imagine they wont find anything, which seems pointless to me. why would they want to look if they are convinced they wont find anything. i told my doc a diet is working. he is not a believer in diets, but he isalso not a beliver that i have anything other than IBS. is it worng to try and get a doc to bring up Celiac, cuz in 5 years i have never got them to. should i go into my new doc when i find one that is, like i know what i am talking about. i guess it is a trust thing. i need someone that will work with me. i wish i could find one to say "i wont stop til i figure out how to make you feel 100%!!"
  22. scotty

    She's Still Saying I Need A Colonoscopy!

    alright i will show my ignorance here too...why would you not want a colonoscopy? and what is the difference btween a endoscope and an gastroscope? i had an endoscopy and results were "fine" but celiac was never discussed in fact i was not aware of it yet, i'm wondering though should i have a gasrtoscopy now after 8 months, should i have a colonoscopy as well, will these tell me anything? i though they could get farther in the intestines from the other end....and was the better test for celiac---i was right about to call the GI spec. to set up my colonoscopy too...cuz i got to figure out if i am really fighting the gluten or what here
×