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DesertRatCeliac

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About DesertRatCeliac

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  1. You hit it the nail on the head. The fairly nice hotels with microwaves that seem clean are iffy. I don't know if it's safe to heat water in them. The very remote places offer me a single-wide trailer. I have to pack some cookware and utensils for those places. It's getting very hard to travel with food I can eat. When I try and pack vegetables, they just go bad. I eat a lot of canned stuff and it can't be good. I am more concerned about not getting sick than getting adequate nutrition, at this point.
  2. Chrissy and all, I knew you'd come through. No, I have not had my iron level checked. Anemia is a classic symptom, but I didn't think about it. I live in hotels when I'm on the road. I mainly live on rice-noodle soup that just needs hot water. I haven't figured out why the cramps and GI pain won't stop (except while on prednisone) -then I read the thread about corn. BING BING BING. Corn syrup is in everthything! I thought that hummus, made of chick peas was ok. Guess what, I looked at the label tonight and it has corn syrup as an ingredient. I think somebody's onto something here. When I was a toddler and diagnosed with "failure to thrive" I was put on a gluten, dairy and corn-free diet. I remember eating rice cereal a lot. I developed a minor case of rickets from lack of Vitamin D and calcium, but survived. When the celiac came back as an adult, I became very careful about grains. I don't eat at restaurants or even risk McDonald's french fries, which were determined to be gluten-free, but not healthy. Geez. We at least get to enjoy french fries. I have a love/hate relationship with predinsone. It stops the symptoms by depressing my immune system, with quick relief. Then I get sick because of my depressed immune system. My weird craving? Sardines. I figure it might be the zinc. My cracked lips and mouth sores heal pretty quick when I eat them. Kinda yucky, though. Zinc Oxide tablets cause awful nausea. Hopefully my employer will take the time to look up Celiac Disease online. Fatigue is common, I think. It's tough mentioning that I might have to be near a bathroom when a hospital signs me on. My doc says that 6 months of strict gluten-free diet will clear my system of antibodies and I'll feel better. This has meant buying new cookware and utensils. Problem is, whenever I visit family I can't be assured about cross-contamination and have to start the six-months all over again. Well, thanks for your responses, big time.
  3. Hi. I need to vent this and nobody around understands. I am a pharmacist, and after I got very sick a few years ago I was unable to work full time in a busy retail setting. I was lucky that the gastroenterolgist asked the right questions (was I on a strange diet as a child -yes) and thirty years later I am again. Today I work at remote hospitals in Arizona. One hospital serves gluten-free meals at the cafeteria. I like that place. Anyway, the agency I work for wants me to work 40 hrs a week, and drive 600 miles a week to work at a clinic. When I try to explain that after a 3-day stint it takes a whole day just to get energy enough to take a walk, they don't get it. I get tired. I get flare-ups, take prednisone and then get an ear infection. It's a cycle. When I'm on the road, I eat whatever I bring with me. It's not just an allergy, is it? They make me feel like such a malingerer.
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