MissCici

Question for all of you more experienced SCDers:

I can't have cow's milk. Could I make the yogurt with goat's milk yogurt? Anyone tried this before?

Thanks!

Cici

My doctor had just attended a conference - I think specifically for Lyme. I think that's where he got the Pringle idea.

I'm not feeling great this morning, but I'm hoping it gets better. My stomach pain gets extremely intense, so I'm nervous today will be rough.

Cici

It is the Olestra in the Pringles to help detox. I was surprised by that as part of my treatment, as well, but I like chips, so I'm good with it.

I have Rx for Nystatin, Plaquenil, Cerefolyn, and something else - starts with an M. I did 3 IV treatments of zithromax last week, as a response to my horrible immune levels in my gut, but I think I may have had the die off symptoms from that. What should I expect in terms of herx?

I appreciate all the help and advise from everyone!

Cici

I had my follow-up appt this morning. He said my lyme test was one of the most positive he's ever seen. He changed my digestive enzyme and probiotic, plus gave me some new supplements (in addition to the 12 I'm already on) and 4 new prescriptions. He also told me to eat 1 inch of fat-free pringles every day to help detox. I thought that was very interesting. My diet is based on my immunolab results and adding in some specific carbohydrate principles. He did tell me that I have to do all of this for at least a year.

I'm a little overwhelmed at this point.

I have never tested positive for celiac, but have allergies to wheat, rye, oat, etc, so am on a gluten-free diet anyway.

Cici

I just found out today that my Igenx test was positive. I don't see my doctor until Tuesday, so I'm trying to do some research on my own until then. I didn't expect a positive result, and neither did my doctor, because my symptoms really don't fit well. I guess I will have to see how the doctor visit goes.

Cici

I knew that the author had passed away, so I, too, was confused by what my doc and naturopath said about a new edition. I know that it is odd and confusing that they gave me this information.

Cici

Sorry, I forgot some questions that I had.

Do all of you avoid canned foods? I know this is the guidelines of SCD, but I see some that state "no sugar added" and wondered if those and/or canned organics would be okay?

What are your thoughts on diet soda? Again, I know it is recommended to not have more than one per week, but I guess I don't understand this. Saccharin is deemed safe on SCD, but I have more concerns about saccharin than aspartame.

Thanks!

Cici

Can't quite figure out what you mean by the 'new book'. At the end of the day if it includes rice and potatoes it ain't the SCD! The whole point of removing those foods apparently is to allow the gut to heal. It might still work after a fashion but surely would take a lot longer as the starchy foods would be feeding the rogue bacteria.

Can you find out what this book is and who it is by?

Based on what both my DO and my naturopath said, they are about to print an updated edition of "Breaking the Vicious Cycle" in the next few weeks. We will have to wait and see if this comes true, but they both told me the update will be not be as strict on a few foods.

Cici

Yes, I am talking about a new version of the book, at least according to my doc. The naturopath I saw last week says he was consulted on the new book and that it will be more flexible than previous additions. My doctor said rice will be allowed in the new book and that he thinks potatos are fine, too. Not sure about the potato status in the new edition. New book should be published in a few weeks, at least according to the naturopath.

It will be interesting to see if these changes and/or any others do appear in the new edition.

Cici

I guess you could say I'm starting SCD today. It isn't all that different from my ImmunoLab plan, so I will be adding SCD principles to what I've already been doing. My doctor said rice will be allowed in the new version of the book and that I should be okay with potatos, too. Biggest changes for me right now will be no corn and he wants me to keep my fruits to just berries for a few weeks.

I'm also going to start on 3 anti-parasite meds and do 4 1hr IV antibiotic treatments.

I am having intense abdominal pain, so hopefully all of this will start to give me some relief. I've been sick for at least 3 years, but the last couple of weeks have been awful.

Cici

I have symptoms for at least 3 years. No real diagnosis yet. Nausea, vomiting, bloating, belching, stomach pain, etc. I've been working with my doctor on food allergies based on my Immunolab report. Wasn't seeing any relief in symptoms, so he referred me to a naturopath. That is who wants me to try to SCD.

We'll see how this goes, I guess. I have an appointment with the Mayo clinic in December that I have rescheduled several times. A part of me really wants to go see them, but I also want to try what I can first.

Cici

Hi everyone -

I'll probably be starting on SCD this week. I'm a little nervous, just because I've had to change my diet several times due different doctor's recommendations.

Any "getting started" tips you all have to offer?

Also, what is the thought behind the canned vegetables? Would even organic canned veggies be banned on SCD?

Cici

I'm so frustrated. I've been on Gluten-free Casein-free diet for almost 5 weeks, and I feel like my symptoms are worse! I know that healing is a process, but my doctor told me I could expect some relief w/in 4-6 weeks. I think the past week and a half have been the worst I've felt in a long time. I've always had some nausea and stomach pain, in addition to bloated stomach, belching, etc. But the nausea and pain have been very intense. It is interfering with my ability to think clearly and I was so worn out from feeling this way that I started to lose my voice one day last week.

I've been on a two-day rotation diet based on my ImmunoLab results for about 5 weeks. Positive for: broccoli, cabbage, cauliflower, brussels sprouts, green pepper, kidney bean, cow's milk, cheese, wheat, barley, rye, oat, egg, cranberry, baker's yeast, brewer's yeast. I am very careful about my diet and always read labels before eating something. I haven't eaten out and always prepare my own food.

Cici

My current doc is a D.O., not an M.D. I like that he tries more homeopathic remedies first. I had my gallbladder tested several months ago and the results were normal. I think my doc is recommending the flush because I have had had several digestive problems for a long period of time. I have also had issues with constipation lately - not sure if this is related to the flush or not, but he recommended it as part of the same conversation.

I have not been diagnosed celiac, but have intolerances to the gluten-containing grains (and many other foods). I have really struggled to find a doctor who can help me feel better. Been sick for at least 3 years. My skin-prick allergy tests have been highly inconsistent, which is what led me to try my current doc. He used ImmunoLab and I'm now following a diet plan based on those results.

Cici

My doctor recommended I do a one-day gallbladder flush. I've been looking into it - it sounds interesting and not fun. Does anyone have any experience with this?

Thanks!

Cici

no one?

I started with a new doctor recently who ran allergy tests on me via ImmunoLab. I reacted to 16 foods, including wheat, cow's milk, egg, and yeast. I have been on this diet for about three weeks with no symptom relief yet. My doctor told me to give it 4-6 weeks, but it seems I should feel somewhat better by now.

Was anyone else tested through ImmunoLab? What was your experience?

Thanks!

Cici

For some reason, I am confused by this. Is it just lunch meat ham that contains gluten? I looked at the ingredients of deli ham the other day and didn't see an ingredient I recognized as wheat/gluten, but it also had an allergy statement saying it did contain wheat and egg. I'm allergic to both, so this is a problem. What might I have missed as an ingredient? Does regular (cook yourself) ham contain wheat in some way? Is any ham safe?

Thanks!

Cici

I don't have a recommendation, but wanted to let you know that the waiting list for Mayo in MN is very long. I've been on it for about 3 months already and they told me today it would be another 6.

Cici

Thanks. I'm nervous my biopsy is going to be negative, even thought I think gluten is part of my problem. I'm trying to eat a lot of gluten until then. I don't feel wonderful, of course, but I'd rather have an accurate diagnosis. I think I will go gluten-free even if I'm not positive to Celiac. I think it would help me have less symptoms.

Cici

My blood test showed negative for Celiac in late May, but since I have many of the symptoms, by doc is going to do a biopsy in a few weeks. She also suspects that my stomach lining has eroded, so that in itself may be the problem. I went gluten-free for about a month do to suspected allergies (I know it's not the same, but a nutrionist suggested I give it a try). I did feel better in that time, but starting eating some gluten again after some craziness with my food allergies. Now I'm really trying to eat gluten to make sure my biopsy results are accurate. I'm not feeling great, so I won't be surprised if the biopsy shows Celiac.

Anyway, has anyone ever had a negative result in their bloodwork, but then been positive for Celiac after a biopsy?

Thanks!

Cici

I'm really struggling to find things to eat. My blood work tested negative for Celiac, but my allergist and dietician want me on a gluten free diet due to my symptoms. The problems is I am also allergic to many, many foods. Yeast, apples, melon, tomatos, rice, potatos, tuna, strawberries, nuts, and more. I'm really struggling with finding foods to eat. I visit my allergist again in a few weeks, but I'd love any advice any of you have to offer. I'm basicly sticking with meat, veggies, some cheese, and popcorn for snacks.

Any thoughts?

Cici

Sorry if I wasn't clear - they tested me for both allergies and Celiac. The allergies are definate based on the skin test. The blood on the Celiac came back normal, but I've read that those results aren't always accurate. Although they are different, I think that it's odd that the allergies can be so strong (3s or 4s on the scratch test), with the Celiac being normal. It's seems as though there would be a high correlation between the two.

I had a skin test two weeks ago for food allergies and discovered that, among many other things, I'm allergic to wheat, yeast, barley, rice, potatoes, etc. Today, they called to say that I was negative for Celiac Disease. I know that my diet will be the same either way, but with all the related allergies, I'm curious why the gluten didn't show up. Also, the blood work they ran to confirm the allergies was very inaccruate - it showed no allergies to foods I've had a reaction to. The nurse told me that the blood test isn't as accurate and to go off the skin test since it confirmed some foods I had a known allergy to. Should I trust the negative on the Celiac? It seems that it is frequently misdiagnosed or shows a false negative.

Thanks!

Cici

I'm still waiting on my blood work to come back, but based on my symptoms, my nurse practicioner is pretty confident I will test positive for celiac. I've had stomach problems for a few years and just discovered I have many food allergies.

Apples, canteloupe, cashews, coconut, peaches, peanuts, potatos, rice, rye, spinach, strawberries, tomatos, tuna, walnuts, watermelon, wheat, baker's yeast, and brewer's yeast.

I just had the scratch test, so I'm not worried about everything I wasn't specifically tested for. It looks like it will be a while before I can see a dietician, so I'm just afraid of food.

The gluten-free products almost always have rice or potatos, so I can try them at all. I've been eating a lot of turkey, yogurt, oranges, and cheese because I'm pretty sure they are safe.

Can any of you give me some suggestions or advice? What should I? Avoid? I feel very lost right now.

Cici