Celiac.com Sponsor (A1):

Celiac.com Sponsor (A1-m):


Advanced Members
  • Content Count

  • Joined

  • Last visited

  • Days Won


jas322 last won the day on May 1 2015

jas322 had the most liked content!

About jas322

  • Rank

Recent Profile Visitors

1,981 profile views

  1. Anyone else with celiac disease taking Budesonide (or Entocort)? Just started taking it and I'm itching like crazy similar to when I eat gluten. I checked the active and inactive ingredients but couldn't find any. Was curious if many other celiacs are using it.



    Anyone else with celiac disease taking Budesonide (or Entocort)? Just started taking it and I'm itching like crazy similar to when I eat gluten. I checked the active and inactive ingredients but couldn't find any. Was curious if many other celiacs are using it.

    Yes, I have been on Entocort for about a year.  It's used for refractory celiac and completely changed my life.  It is a steroid that does not pass the liver and therefore doesn't give the nasty side effects of prednisone.  It comes in a coated gelatin capsule that is designed to break down in the colon for ulcerative colitis patients.  Since celiac affects the small intestine, my doctor has me open the gelatin capsule and swallow the little granules (I even crush one of the pills to be sure my duodenum gets some drug).  I have spoken to the company and the sales reps.  It is gluten free.  Hope it works as well for you.

  2. I just got back yesterday from a three week trip to Prague, Budapest, Sarajevo, and the Croatian islands.

    I have to say that Budapest has the best gluten free environment of all the places I visited. The store that a previous post describes is in the Lehel Csarnok market literally in the Lehel Ter metro station (line 3) in Pest, T

  3. I'll be staying in around for a few days in the Cleveland Clinic area and was wondering if there wereany restaurants that are gluten free friendly or placestobuy glutenfree food close by? Any help wouldbe greatly appreciated.

    Amy from Chgo

    Diagnosed 2003

    You are in luck! There is a great Whole Foods just down the road from the Clinic: go East on Cedar Rd (one of the hospital's main roads)about 2-3 miles into Cleveland Heights. As far as restaurants there is a thai restuarant also on Cedar Rd (corner Lee Rd) which is great and I have never had a problem there. Other options are Chiptole if you want to try it (one in Coventry area about 1 mile from the clinic and another across from the Whole Foods). If you want to travel a little farther there are several places in Eaton Collection (about 20 min away on Chagrin Blvd). There you can find a Flemmings steakhouse and a great fish place that have dedicated gluten-free menus. Along the way you will also pass a PF Changs. The quality of care at Cleveland Clinic is second to none- you will be amazed!


  4. I will be travelling to Prague as well and contacted the Czech Celiac Society. They forwarded me to this website which is pretty good: http://coeliac.cz/en It has a good vocabulary section as well as a restaurant card. I too am very confused about their assertion that wheat starch is gluten free. What does that mean for us? Nina12488, please keep us posted of your experiences once you return. Happy travels!

  5. Thailand has a virtually gluten free diet. They use fish sauce instead of soy sauce (no added wheat) and eat rice noodles. They don't eat bread and have very little wheat/oats/rye anywhere in the country other than in their beer. Excellent and safe cuisine is available throughout, albeit spicy. There is no real need to deviate from the normal Thai diet, and one can intelligently order at most restaurants without any modification. Highly recommended!

  6. gluten-free eating in BKK is very easy! Most of their food is naturally gluten free. Their soy sauce does not contain wheat and they have plenty of dishes with rice noodles and without soy sauce. Curries are a really safe bet. Plenty of cheap fruits also. Be confident and save your gluten-free food for China. Don't worry about Thailand its a very gluten-free friendly travel destination!

  7. Tampa Bay is home to Outback chain of restaurants so there's lots of gluten-free options within that celiac-friendly company, and the restaurants are everywhere: Outback Steakhouse, Bonefish Grill, Flemings Steakhouse. South Tampa's Westshore Mall has PF Changs and Mitchells Fish Market, both of which have gluten-free menus. Near North Tampa/USF/Busch Gardens area is Trangs Vietnamese Restaurant which is almost entirely gluten free except for some wonton type wrappers. Their noodles and soy sauce as well as rice wrappers are all gluten-free- never had a problem there. Other good bets are sushi and if you're willing to spend bigger bucks, Bern's Steakhouse which does not have a gluten-free menu per se, but is very accommodating. Unfortunately I don't have as much experience dining in St. Pete, but I'm sure they have similar restaurants. The Publix grocery stores often have a great supply of gluten-free food and can serve in a pinch. Happy Travels!

  8. I just got back from a trip to Asia and had wonderful travel experiences. Eating in Tokyo a challenge since the language and cultural barriers make it hard to know exactly what you're eating. As a whole I didn't feel that they really believed me and felt like they dismiss the "allergy". Soy sauce is everywhere so definitely learn to say "no soy sauce please" before you go. All their noodle dishes seem to have some wheat contamination. Even the buckwheat soba noodles are cooked with the wheat noodles or contain wheat flour also. I ate mostly sushi which I love, but after a week of sushi and raw eggs three meals a day, it gets boring. It was definitely a challenge eating there, but overall I was very cautious and felt fine. I also brought a suitcase full of gluten-free food with me for snacks and for occasional dinner when I didn't trust the restaurants.

    I flew over on Continental and traveled within Asia on Singapore Airlines and Thai Airlines. All had excellent gluten-free meals ready!

    Thailand was a different story alltogether. I was able to spend quite a bit of time touring the country. It was very easy to eat in Thailand as they don't often use soy sauce and when thet do, it does not contain wheat (poorer quality by Japanese soy sauce standards but great for us!). Furthermore they usually cook with fish or oyster sauce which I had no problem with (I am usually very, very sensitive and even take immunosuppressive medication for my celiac).

    Their food was very tasty, albeit spicy, and I felt like I could order with very little modifications. They don't eat bread and wheat plays little role in their cuisine. Their noodles are rice based! The restaurants were very receptive of food sensitivities, but I was very direct with them and obviously used lots of common sense in choosing a restaurant and in ordering (no fried or heavily sauced foods just in case).

    The only thing I was worried about is I met a fellow traveler who was allergic to peanuts. They put nuts on everything and when he asked for no nuts, they simply scraped the top layer of nuts off the dish. Be careful as always! It's probably harder to travel in Thailand with a nut allergy than with celiac. Overall this was a great experience and only got sick once- but I think it was from eating fish out of a bamboo shack in a tiny remote island village with no electricity, so hardly gluten realted.

    The Thai people are wonderful and very helpful. Many speak English. Stay away from Bangkok if possible as its really dirty, overly commercialized, and just gross. Instead take advantage of the beautiful countryside and islands in the south without worry of being glutened. Happy travels!