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Everything posted by alexa11219

  1. alexa11219

    Skin Issues

    Hi everyone. I just found your messages and want to share my experience (no need to say I'm gluten-free for my celiac disease). For skin: KISS MY FACE. They have very good soaps, i.a. Olive & Herbal Soap, some other olive soaps. They are gluten-free though some others are not. AVALON ORGANIC BOTANICALS. Facical Cleansing Gel (also good for shaving). Hydrating Toner. Moisture Plus Lotion with SPF 18. They have other products for other types of skin (mine is combination). NATURE'S GATE. Fragrance-Free Moisturizing Lotion (For Sensitive Skin) with Aloe Vera, Extracts of Coffee and Wild Pansy, Safflower Oil & Organic Jojoba Oil. For hair: PURE & BASIC. Natural Clarifying Shampoo. Natural Lite Conditioner. For lacerations, cuts, scrapes: DESERT ESSENCE. Eco-Harvest Tea Tree Anti-Microbial Cream with Green Tea Extract (I have severe allergy to lots of antibiotics and iodine so can't use almost none of existing antiseptic creams and ointments). All of those products are natural, organic, don't contain that s... acid. I finally got some relief of dry itchy skin though I don't have DH but often have skin allergy for lots of other allergens (food and in medications). I started using all of them after my last gluten accident which was really severe, when I grabbed all of my skin/cosmetic stuff, placed in a bag and gave to my girlfrien who does not have to watch gluten intake, and bought what I just listed above. That was about two months ago, and now I have no complaints regarding my new stuff. Hope it'll help you. Alexa
  2. Hi. It may sound funny, but for me it became a real problem. I'm a single woman, 54 years old and recently was diagnosed with gluten intolerance. I live in New York. Huge city, lots of single people. For some reason, almost impossible to start a serious relationship even for younger and healthier people. There were several occasions when I thought I met a good person and something promising might happen. The moment we start discussing where we're going to have lunch or dinner and I mention my problem, the guy gets cold feet, and it's over before it starts . I'm looking for people with a similar problem. Any comments and suggestions are welcomed. Alexa
  3. A week or two ago I bought from Whole Foods Natural Clarifying shampoo and Natural Lite Conditioner by Pure & Basic. Eacn 12 oz bottle is $4.69. Both are organic, no gluten among ingredients. My hair used to be dull and lifeless for years. Now it looks almost like normal hair should look. BUT... I just noticed there's citric acid in the shampoo. From this board I learned that citric acid my derive from gluten-containing grains. Anyone has any info on that? Alexa
  4. alexa11219

    Cornbreads and muffins

    Hi jhmom/Stacie. I tried the cornbread recipe you mentioned. It's a little heavy, but not only delicious, it's knife- and spreading-friendly. It keeps shape and never crumbles. I'd been keeping it on the lower shelf of my fridge for about two weeks, and it still was fine. To freshen it up I put it in the toaster (for about 4 to 6 min) oven or microwave (for 5 to 10 sec). The only thing I would change next time is the amout of sugar - that's in case I'll plan to use it with soups, meats, or cheese. And with marmalads, tea or coffee, and likes - it's just great. Thank you very much. Alexa
  5. Here's a similar recipe. I found it in a newspaper. Doesn't take long to cook and comes out always delicious. LUCKY SEVEN STIR-FRY 2 bags Success White or Brown Rice 3/4 pound boneless, skinless chicken breast or boneless tender beef, cut into thin stiprs 2 teaspoons Kikkoman Soy Sauce (I use gluten-free Tamari Sauce) 2 teaspoons cornstarch 3 tablespoons vegetable oil, divided 1 pkg. (16 oz.) frozen vegetables for stir-fry 1 cup Lucky Seven Stir-Fry Sauce* 1/4 teaspoon ground red pepper (cayenne) Prepare rice according to package directions; keep warm. Meanwhile, combine meat, cornstarch and soy sauce; let stand 10 minutes. Stir-fry meat in 2 Tbsp. hot oil in wok or large skillet over high heat 2 minutes. Combine Lucky Seven Stir-Fry Sauce and red pepper; pour mixture over vegetables. Cook, stirring, until sauce boils and thickens. Stir in meat to combine. Serve over rice. Makes 4 servings. * Lucky Seven Stir-Fry Sauce: Combine 1/2 cup cornstarch, 2 1/4 cups chicken broth, 2/3 cup Kikkoman (or gluten-free Tamari) Soy Sauce, 1/2 cup dry sherry, 1/3 cup light corn syrup, 2 Tbsp each minced garlic and grated fresh ginger root (for no aparent reason I never have it at the moment, so I use 1 teaspoon ground) in a 1 1/2 quart jar with tight-fitting lid. Shake well. Store in refrigerator up to 3 weeks. Just before measuring out or using, shake or stir well to blend ingredients. Makes 4 cups. Enjoy, Alexa
  6. alexa11219

    Support Group In Nyc

    Hi Erica. Last night I found the whole list of support groups in New York State, though I have a suspicion not all of them are functioning now. But the last Thursday, I attended a meeting of one of them in New York City. We met at a restaurant and had a nice dinner with even nicer conversation. It's Greater New York City Celiac Support Group. Contacts: Alice Dunnie Chenal 60 Sutton Place South New York, NY 10022 (212) 755-9541 (she doesn't have an answering machine) Merle Cachia 456 Riverside Drive, #8-A New York, NY 10027 (212) 662-2464 Initially, I contacted Dunnie, and later at the meeting met with Merle. Both these ladies and other celiacs I've met are very nice, sweet, sharing and sympathetic people. In case you're interested in such groups located in Long Island, Stated Island, or other places of our state, contact me. Good luck. Hope to meet you next month when we'll have a lecture. Alexa
  7. alexa11219


    Hi guys. I have been having problems with my sleep since I was a teenager (now I'm 50+). My severe celiac symptoms started 3 years ago, severe sleep problems - a year later, I was diagnosed with gluten intolerance 5 months ago. From bad experience, I don't trust doctors at all, at least I haven't found any I can trust to. I been taking different pills for depression and I couldn't tolerate any of them. Last fall I went to phychiatrist who prescribed Melatonin, a hormone responsible for sleep. She suggested my body didn't produce enough to help me sleep normally. I found one at Duane Reade Pharmacy, by Natrol, no yeast, wheat, corn, milk, egg, soy, glutens, artificial colors or flavors, added sugar, strach or preservatives, and it works for me. Recently, I bought Sleep Tight Factors by Country Life, Hypoallergenic Vegetarian from a Whole Foods Market, no yeast, corn, wheat, soy, gluten, milk, salt, sugar, starch, preservatives, artificial colors. It's not that good. At least on Melatonin I fall asleep sooner, I wake up only once or twice a night instead of 5 to 6 times, sleep is much deeper, nightmeres rare. Each body reacts for different meds in its own way. Maybe, maybe any of them will work for you. It's just a piece of info.
  8. Hi everyone. Today, I re-read once again your responses for which I'm very grateful. I oredered Gluten Sensitivity Stool and Gene Panel Complete plus Milk Sensitivity Stool Test from Enterolab. Hopefully, it'll clear up at least what exactly I'm sensitive and what's causing the symptoms I's still having though I believe I'm gluten-free. Unfortunately, they charge additional $19.95 for shipping, so total is $368.95 . Well, what the heck, it's worth it in any case. Everyone have a nice holiday , Alexa
  9. Thank you Mariann for your support and advice. $349 is a lot, but I believe will serve me well. I'll do it. Thanks again. Alexa
  10. VAGuy, you are asking me how my doctor came to that conclusion. Very simple, empirically, the way my allergologist did it - if he doesn't know that allergy can cause diarrhea, it means it can't cause it. If my biopsy showed the villi were intact (I'm not sure they were), it means for them there's no celiac disease. If there's no celiac disease but I'm much better being gluten-free, it means I have gluten intolerance. None of specific blood tests for celiac disease or stool tests were done. Tell you even more, when they perform biopsy, they knew I was gluten-free for MONTHS. I didn't know it changes the result, doctors are supposed to know those things, but I'm sure they did not. I asked them what caused all those ulcers. The answer was, "Since no virus or bacteria was not found, it means it's caused by gluten." Now, I'm between insurances. I can't use my previous one, and the next one will be avalable not earlier than in 3 months. I can't consult a different Dr. or do other tests. I feel much, much better being gluten-free, but still have some simptoms (bloating, gas, sometimes gastric and intestinal pain, not often though, joint pain, thinning hair). Allergy runs in my family. In addition to gluten, I have allergy to eggs, shell fish, lamb, some antibiotics and other medications, other stuff. Maybe it would be wise to spend that money (about $450) for Enterolab and get tested not only for gluten (but now I'm gluten free for about a year, will the result be correct? isn't it too late?) but in addition for yeast and lactose? I am totally confused, absolutely upset and devastated, and scared. I don't know who I can trust. Can it wait several months? Anyone, answer me please. You may contact me directly at alexa11219@aol since they misplace the posted information and sometimes it's difficult to find the necessary posting or section. Thank you. Alexa
  11. Well, it's called "Welcome to the club". I'm 54. For the whole my life, I've been having stomack/intestinal problems and a whole bunch of other ones. Recently was diagnosed with gluten intolerance. My Father and both grandfathers died of stomach cancer. My daughter is a smart, intelligent, serious girl of 24, studies alternative medicine. Her daughter is 4, extremely skinny, weighing just 29 pounds, her hight is less than average. The skin on her little legs and arms is covered with pimple-like rash (someone mentioned it - is it also a simptom of celiac disease?) since the moment she came to this world. My daughter takes a good care of me and my diet including all the precausions, when I visit them and stay there for a week or so, she is a good cook, she knows all the stores around them with gluten-free foods. They are not rich, they are not poor either. My daughter doesn't want to here about being tested for celiac disease or getting the little one tested though she also knows it's hereditary. She knows everything, all the consequencies. And she does not want to really know about it though she is quite aware of how much I suffered. It's like she is scared to have to face the problem and deal with it. I don't know what to do with her. This section of the board hasn't been visited for about 3 weeks. Where are you people? Any advice?
  12. Hi Jen. About a week ago, I saw information about gluten-free beer on this board, something like "Hi guys, I found gluten-free beer", with no additional details. Since beer is not the greatest loss for me, I don't remember where exactly I saw it. Try "search". It's here. Good luck.
  13. alexa11219

    Gluten-free Dating

    I want to thank everyone for your responses. I just found them, thought my post was lost. You're right, if such thing like a special diet can scare a man away, it says a lot about that man. It's better not to have a boyfriend at all than to have a shallow thing. Thank you for your support. Alexa
  14. alexa11219

    Gluten Free Dining In Nyc

    Here are three more restaurants in New York City which recognize our problem: GUS'S PLACE 149 Waverly Place (6th Ave.) New York, NY 10014 Ph.: 212-645-8511 888-850-1244 AMERICAN PARK AT THE BATTERY Inside Battery Park, across from 17 State Street New York, NY 10004 Ph.: 212-809-5508 BLOOM'S DELICATESSEN CAFE 350 Lexington Avenue New York, NY 10016 Ph.: 212-922-3663 There is COFFEE SHOP in Union Square, W. & 16th St. They have Brazilian Cheese Bread, which is made with tapioca flour.
  15. alexa11219

    Would like some feedback

    Naradowski, while you still have some time before your trip, I'd suggest find out online if there are gluten-free restaurants and organic food stores (they often have buffet bars) in destination area. If you find any, you won't have to take much food with you. Try this: Good luck. Alexa
  16. Hi, I'd like to share my experience with you, maybe it'll be useful to someone. I'm 54. Had severe stomach pains since my birth. About 35 years ago was diagnosed with gastritis and colitis. Didn't have much help from dieting. Depression, fatigue, sleep disturbance, severe headaches, joint pain, food and medication allergies, asthma - everything like from the text book. About three years ago developed severe diarrhea, sometimes up to over 20 times a day, and gas. Suspected, it was caused by some allergens. Went to a Dr. and had some blood work done for allergies which was positive for farina and negative for gluten (how is it possible?). My allergologist openly admitted he never heard that allergy could cause diarrhea. The symptoms persisted. Half a year ago, reviewed my test results and realized what the problem was. Went to my physician and GI and declared I had celiac disease, had a gastroscopy and colonoscopy with biopsy done. Result: erosive esophagitis, erosive gastritis, multiple ulcers in the antrum, duodenitis, lymphoid hyperplasia in ileum, colitis with edematous, erythematous and with petechial hemorrhages. Negative for celiac disease. All the demage in my intestinal tract was explained as caused by gluten intolerance which is kind of the begining of celiac disease but not it yet. Maybe that's what's going on with you? You don't have celiac disease but definitely own gluten intolerance? Would appreciate any comment on my story. Alexa11219@aol
  17. alexa11219

    Fast Food

    Thank you Shirley. At least I know I'm not alone dealing with this problem. Anyone else has any experience in talking their children into being tested? I'll appreciate your responces. Alexa
  18. Hi everyone. I began my research for gluten-free food all on my own, even before I had my gastroscopy and colonoscopy done, I was striken with grief and despair, didn't know what products were left for me that I was allowed to eat (in addition to gluten problem, I have a large variety of other food allergens). At book stores, cooking section, I found many books with very interesting introductory articles. They give so many useful tips! From there I learned that modified food starch is not allowed. Unfortunately, I don't know if it refers to modified corn starch. If anyone has info, let me know. There's a product ignored by Americans and loved by Russian - buckwheat (it has nothing to do with wheat) which is full of iron. 1 cup buckwheat, 1 1/2 cups water, 1 teaspoon or less salt. Boil the water, add grains and salt, bring to boiling, cover, and cook on low for about 15 to 18 minutes. Don't stir before it's ready. You can eat it as hot cereal with milk with or without sugar (I hate adding sugar, but my cousin loves it) or as a side dish with meat or fish. It's very cheap, less than a dollar for a pound. If you can't find it, I have a lot of Russian stores around here and can mail out some for you or anyone else to try if I have your address. Hey, don't feel embarrased to tell me you want it, OK? Let me know. Alexa, alexa11219@aol
  19. alexa11219

    New To This...

    Hi Angie. That's Alexa again. I want to warn you to be very careful with your Dad's meds. Lots of them have gluten in one or another form and it's never mentioned in the ingredients. Doctors sometimes forget to keep it in mind. So, it's you who have to keep track.
  20. alexa11219

    What Is Normal Now?

    Several weeks after I went gluten-free, my bowel movements got normal with a rear exception. And I used to have such severe diarrhea that sometimes I failed to reach the bathroom in my apartment (3 to 4 yard distance!). This expectation that you won't make it is such an embarrasment! I also used to be depressed for many years, when I had no knowledge of existance of such a disease as gluten intolerance, many years on meds. Now, it's OK, though from time to time I have very mild relapses. Generally, now I feel really good (I don't cheat on my diet at all). I don't consider myself as a sick person. I just have a special diet. Who does not now? Everybody is on some kind of diet. Mine is gluten-free. So what? Well, I still have a problem. I'm single, 54, it is a problem to find a boyfriend at this age, especially when you are looking for a serious long-term relationship. On several occasions, when men were about to take me out on the first date and I told them about my gluten-free problem, I never heard from them again. In all the other aspects my life is as good as never before. Alexa
  21. alexa11219

    New To This...

    Hi Angie. It is hard from the beginning. But your Dad's gone through such an ordeal! He'll be a winner in this situation also. Since I was diagnosed with gluten intolerance, every grocery shopping is like going to a library - I carefully read each label, all the info on packages, boxes, cans. Time spent is worth it. I learned a lot from gluten-free cooking books, their introductory articles were useful to me. From those books I learned that we should not use preground pepper for it usually contains (and it's never mentioned on the label!) wheat flour to keep it powdery. Blue cheese is prohibited as well as beer. I had a very bad reaction after eating processed meats, like ham, sausages, franks and similar, later I learned it also contains gluten. Actually, canned food is also prohibited. Watch for MSG for it's not only cancerous but in addition is not gluten-free. You should eliminate any product containing modified food starch. Dry wine is good, but some other liquors are not, since I'm not such a drinker, I don't remember which ones. I always loved pizza. Well, now I use mexican tortillas instead, three of them, layered with gluten-free pizza sause, cheese, mushrooms, some other stuff. Bake it in a toaster oven. Of course, it's not a real pizza, but it'll do, at least for me. I tried gluten-free pizza crusts and bagels, they are not worth the money. You may find a lot of good stuff in oriental food markets, Chinese, Korean, Thai. Prices there are low. Let us know how your Dad is doing if it's not such a problem for you. Good luck. Alexa
  22. alexa11219

    Fast Food

    I've just read Aimee's message with the listing of dressings and found blue-cheese one there. As far as I know, blue cheese is not recommended for such "freaks" as we are as its blue/green stuff may be grown on some glutenous grains. It was my favorite cheese and still is a big loss for me .
  23. alexa11219

    Fast Food

    Attention those who live in Rochester, NY. There's a restaurant Atomic Eggplant there. Almost all the dishes on the menu are gluten-free. The food is delisious, portions really big, prices lovely. My daughter found that place when I was planning to visit her family there (I'm the one with gluten intolerance). Since then, every time I visit them, we eat out there. Can you tell you even more. They and all their friends whom she talked into trying it, fall in love with that place and either stay there for dinner or order the food and pick it up an hour later. If anyone from Rochester is reading this message, that's my advice to you - try it and you won't regret it. At the same time, I need your advice, people. My daughter is 24, an intelligent girl, studies alternative medicine. Her daughter, my granddaughter, is 4 yo, very skinny, her weight is 29 lb, hight a little below average. They both have no signs of gluten intolerance. The problem is she doesn't want to hear about getting tested herself and the little one though she knows the danger of this disease. How can I make her do it? Do I need to do it? I don't want them to suffer the way I'd been suffering until I figured out what was wrong with me. Please, excuse my mistakes in English. I'm a former immigrant from Russia. If I stayed in Russia, I would've been dead by now for in Russia they don't know about this problem. Isn't that the great reason to be thankful to this country? I'll be glad to receave any response. You may also contact me at alexa11219 at aol.