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  1. Hi All,

    I'm having a terrible time finding ANY decent hair product for fine/limp hair (such as mine) that doesn't contain wheat. I don't think I have Celiacs, I either have a wheat allergy (most likely) or wheat/gluten intolerance - not 100% sure which. The majority of my symptoms from wheat ingestion are respiratory in nature although I do feel a bit sluggish and achy too sometimes.

    In such case is using a product with hydrolyzed oat protein safe?

    I know oats are okay for celiacs assuming they are gluten-free and that the biggest problem with oats is the CC as they are always processed in the same facilities as wheat.

    So, what are the thoughts about this being the only offending ingredient in a hair shampoo, conditioner, or styling product?

    Thanks

    sue

    I switched to Dove but after a month of using their shampoo and conditioner my scalp is breaking out. I have an oily scalp, fine/color treated hair but even with the color, I think it is too much moisturizer in their products for me.


  2. Wow that is great news!

    I've been mostly gluten-free since April. (Elimination diet - tried wheat/gluten a couple of times since to read body's response). I've been on BCPs solid for 15 years. I love BCP. I didn't want to come off of them but I had too. I was majorly bummed and scared at how terrible I'd feel while my hormones readjusted. I stopped the pill one time, about 14 years ago, and felt so horrific, I vowed never again. Well, I have to say, much to my surprise, as far as female hormones go, etc. It has been just fine coming off of them. I've been taking some supplements, which I think help too but mostly I think it is because I've been gluten-free (and not eating any real processed junk food). I agree - I think there is a definite connection there.

    But don't be too mad at your docs - I'm sure the thought never crossed their minds - at all. However, I'd definitely try to "educate" them when you see them next. Maybe they'll be open to it and learn and offer it to someone else going through similar problems.


  3. Due to generalized inflammation in my body, I went on an elimination diet in April / May and discovered the following respiratory reactions when I eat the following:

    Dairy (except some cheese seems to be okay), soy, eggs, onions: phlegmy coughing for about an hour or two. It begins immediately after I eat.

    Wheat: A few hours or even the next day after ingesting it I get nasal congestion, starts with several sneezes, and then trouble getting a deep, satisfying breath. Sometimes I get a bit achy all over and sluggish - mild but noticeable. The trouble with the breathing is the most uncomfortable of all these symptoms and it lasts for several days well after I stopped eating wheat.

    Last year, before I realized food could have such effects on the body, I was on prednisone for a couple of months and the breathing thing was twice as bad. (Or course, I was still eating wheat, etc every day). So medications can also impact such a reaction.

    I have yet to understand whether it is a true allergy or intolerance. Due to some other medical issues, I'm doctored out at the moment and the thought of going to an allergist (new doc in my rotation) and getting stuck so many times which may only end up in false positives or false negatives...yeah, none of that is appealing. Maybe next year.

    I used to have the occasional bout of acid reflux too but that is gone now as I avoid processed foods, wheat, and dairy. I never could tie the acid reflux to the breathing thing though. Possible but I doubt it likely for me.

    sue


  4. It may depend on what state you work in. For example, I live and work in Virginia and it is a "right to work" state (or something like that) meaning that any company can fire you for any reason and you can leave any company for any reason - at any time. In other words, where I am, they could fire me because of a health issue but to cover their rumps, claim it was something else (job performance, etc). I imagine other states, California comes to mind, that probably don't operate like that. I think you really should research your state's work laws first and become knowledgeable with what can be done in your area and what you can do to protect yourself.

    On a less litigious note, perhaps explaining to them a bit about your illness and providing a doctor's note may be helpful. When I was diagnosed with Scleritis and was missing time to visit doctors and such, I simply told my manager everything. I took time off when needed and worked extra hard when there. As long as my job was getting done, he was more than supportive. You don't have to go into the gory details but an honest approach may work. Think of it from their side or if you were a manager of a new hire that seemed to show a trend of missing work. New hires haven't built that trust up yet so if you are honest with them and provide doctor's note as proof, that may be all you need.

    You can spin it to make yourself look good and them to. Something like "I know this company values its employees and I value working for such a supportive team. I unfortunately have a health condition which may require me to miss some time


  5. Thank you everyone for your thoughts and suggestions. I've been trying to eliminate other things I think might be contributors to this problem. Last week I started to take acidophilus & bifidus, and some digestive enzymes. No real change. I also bought psyllium, thinking that since it was a nice, natural laxative and non-habit forming, it would help. Success--for the first two days. Then, I'm right back where I started. marfa, it's like you say with your son, it seems that no matter how much fiber I include in my diet, I'm still constipated. And more gassy than I was pre-gluten-free. I've started to think maybe I'm having a candida or bacterial overgrowth issue...I've been logging my meals for about a week now. Yesterday I started to eliminate all but my multivitamin and fish oil, thinking maybe all of the extra vitamins were contributing somehow. (I take a lot!) I seemed better until the evening, which was an improvement. But we'll see!

    Thanks everyone!

    Have you thought about adding in magnesium to help with the C? I take magnesium supplements after reading how deficient we are in magnesium - The Miracle of Magnesium by Carol Dean. The only problem in taking too much of it seems to be a laxative effect (hence Milk of Magnesia). Something you may want to consider.


  6. I had actually thought about the toothpaste...after...my appt (I really need to improve my timing). However, once a year - and this was that appt - I get them to "sandblast" instead of polish. It is a high pressure wash with baking soda. Not great on the tongue and it is very messy but boy the teeth feel and look much better!


  7. Hi All,

    Just thought you'd like to know I went to my dentist Monday for a regular 6 month cleaning. The dental hygienist asked if anything had changed in my medical history. I said, not officially. I had been doing an elimination diet and wheat seems to be causing some issue. She immediately asked "Celiac?"

    I said no, I think it is an actual wheat allergy but I go to by GP Weds (today!) and will discuss more with her then.

    Anyway, I barely got out the "trouble with wheat" and she was all over Celiac. Thought that was great! :)

    sue


  8. I'm new here too and found some similarities with your symptoms. When you say you've had a hard time breathing do you mean because you're stuffed up or does it feel like you just can't get a full breath into your lungs? So, what are your thoughts regarding the wheat allergy vs. celiac disease?

    Thanks

    The trouble with my breathing is primarily the hard time getting a deep / full breath. It also last the longest of all my symptoms - sometimes for several days - and is the most uncomfortable. I yawn a lot, not because I'm sleepy, but because sometimes the yawning actually helps me get that breath I need....sometimes it doesn't. The stuffy nose is a nuisance and makes it difficult to breathe when sleeping but not that bad during the day.

    I'm also trying to piece together the need to be completely rid of wheat such as in my hair products. Lotions I can sort of understand as being absorbed into my skin but my detangler? I just don't quite get that yet. My grandmother, who had the wheat allergy, certainly didn't go to that level. She even made the MOST delicious rolls ever, even though she couldn't eat them herself. She handled flour and wheat products all the time.

    As far as wheat allergy vs celiacs, I just don't know what to really make of it. There seems to be some sort of continuum and the lines are very blurry where one starts and the other ends: sensitivity vs allergy vs intolerance vs celiac. My main takeaway seems to be that anyone other than a celiac person can choose to eat wheat and just live with the uncomfortable consequences. Celiacs don't seem to have that choice, too much damage will occur. Still I'm very confused about all of it...but seems I'm in good company there! :)


  9. Thanks for the responses. Based on your help, I've been doing more research into wheat allergies and I'm leaning more in that direction since my symptoms are mostly respiratory... although I do feel sluggish and achy too after ingesting wheat/gluten.

    I guess I'm confused somewhat b/c I thought allergic reactions were more sudden. For me it takes several hours after eating wheat/gluten for the symptoms to kick in. So I'm assuming it is the later digestion of it that is problematic.

    My grandmother also had a wheat allergy but I was taking that diagnosis with a grain of salt since it was so long ago. Did they even really know about Celiac sixty-plus years ago? She is no longer around so I can't ask her what her symptoms were (nor is my grandfather and even my father doesn't know).

    Thanks again - this forum has been of TREMENDOUS help!

    sue


  10. First time post looking for some sage advice. Sorry for the length but I thought some background may be helpful.

    First let me say, I don't suffer from the normal or typical gluten sensitivity reactions. Never have. My gut and what comes out seems just fine. My grandmother was diagnosed over 60 years ago as having a "wheat allergy" but no one else in the family has issues with wheat or gluten.

    History

    I was diagnosed two years ago and treated for Scleritis (inflammation of the sclera) after a terribly stressful time in my life. Even though my eye is now fine, my blood work continues to show slightly elevated c-reactive protein and sed rate levels indicating inflammation somewhere inside. The rheumatologist said I don't have any autoimmune disorders so the cause of my Scleritis still remains a mystery. (He is not worried about the blood work results given they are not very high and my eye seems fine).

    Not completely satisfied, I turned to a pharmacist here in town. He put me on an elimination diet for 4 weeks. As you probably guessed, when I added gluten back in I noticed a few problems.

    First attempt: Gluten seemed to be fine until day 3. It was then I noticed I had trouble getting a deep breath and my nose was getting stuffy. I cut out the gluten and those symptoms disappeared.

    Second attempt (inadvertently) 2 weeks later: I ate a dish prepared with Campbell's cream of mushroom soup. I didn't think or even consider it may have gluten. The next morning, I had trouble getting a deep breath again. Suspicious, I did a quick Google search and found out here that it does contain gluten. Then at lunch that same day I had chicken at our cafeteria which apparently had been dipped in a bit of flour before baking. About 6 hours later, I started sneezing, my nose got really stuffy, and I was again having trouble getting a deep breath. Next morning I was in a bit of a brain fog (didn't sleep well that night especially with the nasal congestion). I was also a bit achy overall, very mild, but I noticed it. That was 2 days ago and I've since been very diligent at cutting out the gluten sources again. I'm starting to feel better.

    EDIT: I should mention that my degree of feeling good vs. feeling bad isn't drastic. I actually didn't realize I felt achy and sluggish until I actually did this elimination diet.

    Questions

    Is nasal congestion and trouble getting a deep breath related to gluten? I haven't seen these symptoms listed here but they seem to coincide awfully close to my ingestion of gluten. I go to my GP next week for a regular visit. Do I try discussing this with her? Without the typical gut symptoms, will I even be believed? Do I ask her for blood work testing - if so what should I request? Are there doctors that specialize in food allergies?

    I guess I'm nervous because I've seen how many people here have much worse reactions that involve the intestines and yet their doctors still don't help them.

    Any advice or thoughts about my next steps in even how to get diagnosed properly would be much appreciated!

    Thanks

    sue