
pmarklesparkle
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Posts posted by pmarklesparkle
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Thank you! I will try this.
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I was diagnosed with dermatitis herpetiformis and ultimately celiac disease in September 2024. I am trying to navigate the world with celiac, unsuccessfully, still having dermatitis herpetiformis outbreaks. Grocery shopping is difficult, shopping for toiletries is nearly impossible. Dining out is also a challenge. Can anyone recommend iPhone apps that will make these easier? Thanks so much!
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After seeing 2 doctors for a rash on my elbows and forearms, that did NOT get better with steroids or creams, I was directed to a dermatologist. She took a biopsy from one of the lesions, September 3, 2024. A week later, the result was dermatitis herpetiformis, positive for celiac. She prescribed Clobetasol Propionate USP, 0.05% cream. This is the only thing that helped with the rash. The dermatologist then took a second biopsy from an area that was near the rash that was clearing up. That biopsy came back negative.
Meanwhile, the dermatologist referred me to a gastroenterologist PA. The battery of bloodwork was mixed, some showing weak positive for celiac, but my IgA was considered normal. The PA told me I may have mild Celiac and should just monitor my gluten intake. I knew she was wrong. There is NO SUCH THING as mild celiac. So, I saw another practice's gastro NP. The bloodwork actually looked better, but she ordered an endoscopy biopsy. the only way to get a conclusive diagnosis for celiac. (In order to get an accurate result for this biopsy, one must be consume gluten for a minimum of 14 days before the endoscopy.) Finally, I had my celiac disease diagnosis.
As I continue to navigate a gluten free diet (so far unsuccessfully) now including shampoo, conditioner, toothpaste, lip balm, sunscreen, body lotion, soap, make up etc... my dermatitis herpetiformis pops up. The Clobetasol Propionate USP, 0.05% cream helps keep things at bay. I hope this helps you!
Best apps for people with celiac
in Dermatitis Herpetiformis
Posted
Thank you, Hopeful! I've downloaded both of those apps and will try them out. Much appreciated!