Tephie

Hi Cherry Tart,

Don't be scared, it's really not that bad. Both my husband and I went and we went over both of our medical histories and some of the tests that results that we had done. Then basically the dr ordered a couple of more tests for the both of us. Once we had completed all the tests they ordered we had another appointment to go over the results. They then went through some of the different fertility options and what they thought our best options were. So far we haven't been able to complete any of the additional treatments. I am hoping that we will be able to get a second opinion this year and then proceed with the procedure they recommend. I hope this helps. Let me know if you have any more questions.

Tephie

Hello Ladies!

After trying to conceive for nearly 2 years, my OBGYN urged me to go to a fertility specialist - my first appointment is on Monday. Needless to say, I'm terrified! I really have no idea what to expect on my first visit. Please let me know if any of you have been to a fertility doctor and what your experience was on your initial visit.

Many thanks in advance!

A few months back at the SL GIG meeting a Dr. Karnam (I think that was how you spelled it) from the Provo area spoke to the group. He seemed extremely knowledgeable about Celiac disease. I live in the SLC area and thought about driving down to see him, haven't done it yet.

Hi Bobohead,

Welcome to Utah (soon anyways). Vernal is a very rural place hopefully you won't have to hard of a time finding food to eat. Have you been to Vernal before?

I am sure you run into people all the time that have Celiac, they probably just don't know it.

I am not from Utah, yet. But in the end of february me and my bf are moving back to his home town, Vernal?? So it is good to see that there are people in Utah, and that I wont be the Only one with celiac. Growing up was difficult, I didnt know anyone else with celiac, and just recently met someone who had celiac. It is crazy if there are that many of us out there, why dont we run into each other more often?

Hi,

I have not tried the BRM, but I have tried the ones out of Wyoming and the ones in the red box....sorry, I know that is a lot of help My favorite have been the ones out of Wyoming. I used my regular old chocolate chop oatmeal cookie recipe and just subsitituted with gluten free featherlite flour blend and the gluten free oats. In fact I just made a batch last week and took some to work and had several people tell me that I should make and sell them. I really like them. I also just made a pumpkin roll yesterday and YUMMY!!!! I pretty much use any of the recipes I always used and just substitute the flours and don't seem to have any big problems. Hope you enjoy your cookies!

Stephanie

Hi,

I have seen that Bob's Red Mill has two kinds of gluten free oats, I was wondering if anyone has tried them yet ? If they have are they any good and can you make oatmeal cookies out of them ? I have a Wonderful oatmeal cookie recipe, but its not gluten free, but I was thinking I could use my gluten free flour in place of regular flour and these oats if they are good. If anyone has tried them please let me know I would love to order some if they taste like regular oats.

Thank you

Sue

I have read on this forum that the cheese packet is gluten free. You can also buy a can of just the cheese. It is actually marketed as a popcorn topper, but tastes just like the stuff in the packet. It is a tiny can, but I bought it at WalMart for around $1.50. Hope this helps.

Stephanie

Is the powdered cheese gluten free from Kraft Mac & Cheese? I'm hoping it is so that I can use that with gluten free pasta when I am in a pinch. It would be great on the go when I don't have access to a freezer!

According to my Living Gluten Free for Dummies book it states: To Diagnose DH, doctors take a biopsy of the skin near (but not in) the lesion.

I had rashes on an off for probably three years or so, the first time they did a biopsy it came back as some weird thing. I finally got fed up again and went and had another biopsy and this time it came back positive for Celiac. Maybe the first one they did was just in the wrong area....who knows?? I have also heard that the "fresher" the rash the better Hope that helps.

Tephie

I read an earlier topic that the biopsy of DH should not be in the actual rash area, but in the healthy skin around it. I would like to get this confirmed and more info. Can anyone help me with this??

I had a biospy on the actual rash area a year ago, but they were not looking for DH. They had no idea what it was and it came back 'normal'. Normal for what, I don't know.

If so, how did you like it? I want to order some from Amazon, but don't want to order a whole case if it's not that good.

Any help would be appreciated!

Stephanie

Thanks Sweetfudge! You have made my day, I may stop by there for dinner

just the ranch one, i think it has cilantro in it or something...

Sweetfudge,

When you get the salad at Cafe Rio which dressing to you get?

Thanks, Stephanie

hm, never tried this one. is it a bakery that just cooks gluten-free once a week? i'd be concerned about CC there, if they use gluten the rest of the week. hope you get feeling better.

i LOVE cafe rio! i eat there about once a week, and have yet to get sick. I get the steak salad or the tostadas. YUM!

i also really like pudding on the rice. can't remember if we discussed this earlier, but they do sell individual packages at reams across the street. good for lunches

YAY, thanks everyone for your input!

Stephanie

Hi All,

I have tried to google if Valtrex is gluten free, but can't seem to find any info. I have an outbreak of shingles and would really like to take this medicine, but not sure if I should. Any help would be appreciated.

Stephanie

Dan,

Were you able to speak with someone at Cafe Rio that confirmed their food is gluten free? I have called the corporate offices in Salt Lake several times and left messages and no one has ever returned my calls. I LOVE Cafe Rio and would be a very happy person if I could eat there again

Stephanie

Hello all, I just found my new favorite celiac friendly Provo/Orem restaurant last night:

Cafe Rio

2250 N University Pkwy # 816, Provo - (801) 375-5133

I had the enchiladas with steak, and it was very good. The price was about $6.95. I'm starting to think that ordering enchiladas at any Mexican restaurant is safe as I have yet to get a reaction from any of them. I just double check they use corn wraps instead of tortillas first.

Sweetfudge, yes I'm a student at BYU as an undergrad in Biology.

I tried the Pudding on Rice with the vanilla and cinnamon flavors and they were both good! I tried contacting the company to find a list of safe flavors but their website was down. Does anyone know which ones are safe?

Hi All,

I have tried to google if Valtrex is gluten free, but can't seem to find any info. I have an outbreak of shingles and would really like to take this medicine, but not sure if I should. Any help would be appreciated.

Stephanie

Sorry to laugh, but that is a great story I would never have thought to put maple syrup in it.

Thanks for sharing

Oh, I'm so glad you started this thread! I've been stewing about my two "misses" all evening. First, the stuffing that I made in the crockpot was a gummy mess! I obviously put too much liquid in it, and I also think I cooked it too long. I love the idea of doing stuffing in the crockpot, so I'm going to work on this. My second big miss - and it really was a disaster - was the chocolate pie that I made for my dd. The crust turned out great - GFP mix - but the filling never firmed up. I made it in a double-boiler, with gluten-free flour, cocoa, egg yolks, almond milk, sugar, vanilla. I think I should have cooked it longer. It was thickening up nicely, and I assumed it would continue to do so when it was refrigerated. It did NOT! I spooned some of the runny-pudding-consistency filling out of the crust and into a bowl, and threw some fresh raspberries on top. My dd ate it, but indicated that I didn't need to attempt this dish again (too rich, she said.) Oh, well....at least the pumpkin pie was a big success. I fiddled with the recipe and added maple syrup....it was yum! (Trying to end on a positive note here, lol!)

Rhonda

How did you make it Jenny?

Everything turned out great but the stuffing. I was going to bring it to another home for a secondary stuffing dish, but I did not even bother. I did put a ton of effort into it. Oh well.

Hi All,

I hope everyone had a safe and Happy Thanksgiving. This is the first Thanksgiving gluten free. My husband and I ended up alone this year, this was kind of nice though since we could experiment This was the menu....Turkey, home made stuffing, apple pie, pumpkin pie, mashed potatoes and gravy. The stuffing needs a little bit of work. But the impromptu rolls were the worst lol The whole cookie sheet ended up in the garbage I realized after the fact that I forgot the zanthum gum, so I am not sure if that is what caused the problem. But they looked like seriously mis-shapen cookies...Oh well, the rest of the food was pretty dang good. Haven't tried the pie yet.

Come on everyone, make me laugh

Stephanie

I used the featherlite blend, I used that for everything. Worked great!!! My only bad experience was the impromtu rolls that I attempted to make

I tried the search feature but the new format wasn't helpful.

Also, it's a bit too late now because I already did it but do you all just use corn starch instead of flour in the turkey oven bags?

Please say yes!

I personally hated the Mi-Del brand. My husband didn't really care for them either.

Hope that helps! Tephie

I always buy the Kinnitoos, but the other day at the store, I saw they also had Mi-Del and they were $2/pack cheaper than the Kinnitoos . . . are the Mi-Del "oreos" as good as the Kinnitoos?? It would be nice since they are so much cheaper, but I sure love my Kinnitoos since they taste so close to the real Oreos.

Thanks!

Hi All,

So I bought a bag of Ammarynth (sp) bread crumbs over the weekend and my husband just tasted them and said they were nasty, does anyone know of any that are good that you can purchase? We don't have any bread made at home to make are own.

Thanks!

Tephie

Hi Harrishart,

I live in South Weber, so we definately are close! I was also diagnosed in July. I hope you are doing well

Tephie

Hi all - I am from Utah as well - I live in Hooper (well it's almost Roy). I am new here too - just diagnosed in July. I am lost too!!! LOL Glad to see I'm not the only one here from Utah.

StevenD

I know this isn't super close to you, but they have meetings done by the GIG group in Pleasant Grove. I don't know how often they are as I attend the ones in Salt Lake. I have found them very informative. They are hosting a gluten free Thanksgiving feast mid November, it will be catered and everything is gluten free. Check out this website... Open Original Shared Link I am fairly new to this as well (diagnosed in July), but feel free to PM me or ask questions.

Tephie

Thank you for your kind response. A week ago I thought I could just breeze through this and now I am dealing with what feels like near desperation in my realization that there is much more to it than I thought. I was so excited to be feeling good and so chagrined to suddenly find myself feeling almost worse than before. Do you become even more sensitive as you clean yourself of glutens--in the sense that when you eat something bad, you now really know it, feel it, and recognize the impacts more clearly?

I know my villi are in need of serious healing. I was in a car wreck, followed by unusually high stress from various angles, followed by a supposed "healthy" super-duper high grain cereal diet for a few months that seemed to have put things over the top and to have led to sharp pains in my side (that left for about a week when I started the diet but are backnow most of the time), amongst the other symptoms you all understand in one way or another.

I look forward to learning from others and actually getting to talk to some of you. I am a rookie for sure. Do any of you attend meetings or conferences on this to learn more and to get support? I always thought I was independent but find myself needing to talk to others on this one. But, I ramble. Thanks.

StevenD

Last month at the Salt Lake GIG meeting they had a Dr. Karnam speak. It was very hard to understand him as he not from America, but he is super educated in Celiac Disease. Even though I have my diagnosis already, I have been contemplating on going down and meeting with him. Here is his info...

Karnam, Umaprasanna S, MD

1175 E 50 S 251

American Fork, UT 84003

801-772-0775

I hope that info is right, I pulled it off my insurance's doctor list.

Thanks sweetfudge for the reply. I'm planning a trip into SLC next week to do some shopping at some of the health food stores I've seen in this forum. I plan on maybe mixing up some baking mix, finding some kind of pizza crust stuff, and getting some frozen waffles or pancake mix. My family loves when I cook home-made pizza and we try to have breakfast for dinner at least once a week, so I need to get going on that at least.

I don't have the insurance problem you do, just needing to find a dr up north on my providers list who knows something about celiac. Does anyone out there recommend someone in the Provo-Orem area?

thanks everybody

Hi Cherry Tart,

I can't help you with your answer about the monitor, I have also wondered myself. I just wanted to say good luck, as I am in the same boat.

Tephie

If you go to www.redbridge.com somewhere on the website it has a store locater...it worked for me. I was able to find several local stores that carried it. Hope it helps and you find something soon!

Tephie

Thanks for the info. I think the below sauce recipe is used for their fish tacos, but I guess I could give it a whirl. Thanks everone!

Here's a recipe I found on the web for it-

Sauce

1/4 cup mayonnaise

1 tablespoon whole milk

1/2 teaspoon fresh lime juice

Combine together with a whisk cover and refrigerate until ready to serve.

Salsa

2 medium tomatoes, diced (about 1 1/2 cups)

1/2 medium Spanish onion, diced (about 3/4 cup)

2 tablespoons chopped cilantro

1 teaspoon fresh lime juice

1/4 teaspoon salt

1/4 teaspoon ground black pepper

1/8 teaspoon ground cayenne pepper

I hope it tastes good, I havent tried it

Hi,

I was diagnosed with DH back in June of this year. My DH doesn't nessarily match the "textbook" descriptions in my opinion. I would get red bumps, that would BURN if I touched them on anything. Mine were never blisters, would never pop open or scab over. I would get them on my elbows, knees, the back of my calves, sometimes, rarely, I think I would get them on my butt. I would also get clear water blisters on different spots on my face. I would pop them, and they would just keep filling back up. They never itched either. I would also get stuff on my fingers. I thought they would look like a blood blister, and those were SORE. I usually couldn't touch that finger on anything for the first two days. Then the soreness would go away, but the brown under the skin would stay for several weeks until it worked it's way up and out.

Give you a little back ground on my story. It took me over three years to get a diagnosis. I started getting the rashes and I finally went to a dermatoligist. They took a biopsy and it came back as something, can't remember. They recommended that I go off all my pills to see if I could pinpoint what it was. I changed my calcium and I thought I figured it out. I didn't have rashes for quite awhile and then they started coming back again. I would schedule an appointment with my derm and by the time the appointment rolled around the rash was gone. I finally was able to get in and with a rash. I had one on my finger. They did a biopsy, and it came back fairly positive for DH. They sent me to the local University Dermatology department that has researched DH and Celiac for years. By now I had kind of figured out that beer was a very large trigger for me. So the days leading up to my appointment with the specialist I drank a beer each night. I went in saw them, they also took blood and another biopsy, this time from my elbow. They called a week later and based on both the blood and biopsy test result I was definately positive for DH. I have been gluten free since June and it's very rare, but I do get an occassional rash now, but it doesn't seem like they are as bad as before. I have read that the toxins can stay in your skin for a very long time.

So long story short, I just wanted to let you know that my DH did not look or act like "normal" dh. So I would definately find a good dermatolgist and speak with them about it.

Hope this helps.

Stephanie