jjiillee

She finally has her appointment today. They said in their opinion it’s likely celiac. But repeated the bloodwork today. Her frost bloodwork was weak positive 5.3 (4-10 is a weak positive) Dr wanted her own labs.
And they will be calling us to schedule the endoscopy. 
They told her to keep Eating gluten. She has been eating is again for the last couple weeks. 

Her appointment ended up getting canceled for today. So now we have to wait until Dec 3.

Let us know how things go.

Thanks for the replies. They had a cancellation and now she can se the gastroenterologist tomorrow! 

Fantastic! Be sure to ask about continuing gluten until the procedure should the GI doc want to do an endoscopy/biopsy. He/she may also want to repeat antibody testing.

Hi @jjiillee,
Call the doctors office and tell them about the improvement with gluten free diet.
Diagnosing Celiac Disease is as much an art as it is a science.  Many go 10 years of suffering various symptoms before finally being diagnosed.Most celiacs have vitamin deficiency, it is part of the diagnosis.  Especially vitamin D.  Ask for her to be checked.
In the long run, showing such improvement she would do best eating gluten free regardless.  She has positive blood and responds well to gluten free.  At the same time you and your family should consider GFD, even if you don't think you have symptoms.  About 40% if first degree relatives of a diagnosed celiac have undiagnosed celiac.  There are 200 non classical symptoms other than gastrointestinal.  In 1976 my son was diagnosed when he was weaned and his doctor recommended we all try.  In 2014 I was very sick and finally started GFD.  Improvement was quick, many lifelong symptoms I had been told were normal went away and I've spent the last 10 years undoing the damage.  Shouda, Coulda, Woulda.  
Are You Confused About Your Celiac Disease Lab Results?
 
 

It is fine to keep her gluten-free at this point, and she can do a gluten challenge if you decide to get a formal diagnosis and do the endoscopy. You did not mention the reference range for her test result, as they differ depending on the lab, but the fact that she had a positive test AND feel better when avoiding gluten, make it very likely that she has celiac disease.
This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. 
Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy:
and this recent study recommends 4-6 slices of wheat bread per day:
 
  
 

To be certain that the "gluten challenge" results in valid testing down the road, I would plan on having your daughter restart gluten consumption four weeks prior to the blood draw or the endoscopy/biopsy (whichever the GI doc wants to go for first) to the tune of 4-6 slices of wheat bread (approximately 10g of gluten) daily. But be aware that once you withdraw gluten from the diet for a significant period of time, going back on it may produce more sever symptoms. We tend to lose whatever tolerance to gluten we may have had while consuming it regularly.