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Meemsy

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About Meemsy

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    Female
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    Reading, gardening, baking, and my family
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    Norcal

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  1. I'm in San Mateo (about 15 minutes south of San Francisco). Just wanted to give you all an FYI on prpobably the least expensive place to get your gluten free flours and noodles: Ranch 99 Market. I go there for all my noodles (rice, tapioca, bean thread, and sweet potato flours) and I get my tapioca and rice flour there also (rice flour for $.79 versus $4.89 for the same brand at Whole foods). Plus alot of the Malyasian, Thai, Vietnamese, and Singapore style sauces/curries are gluten free (no soy sauce). Of course any Asian market will do, but Ranch 99 has the best prices...plus you can sign up for one of their "membership" cards (like a Safeway Club card) for free and get special discounts. I would have to say my family does about 60-70% of our shopping there and fill in the rest at Trader Joes, Whole Foods, and Molly Stones (they have fab produce!).

    Meemsy


  2. I too have only suffered from a handful of "major" flareups (each lasting several months), other than that I would get the diarrhea (D) a few times a week. Until I went gluten free it never occured to me that it isn't normal to get D that regularly.

    The majority of the symptoms that I experienced were always explainable by other things...the migraines (stress), the exhaustion (busy lifestyle), the neuropathy (must just be that bad circulation that runs in the family), the severe anemia (another family trait), the frighteningly low blood pressure (yet another family trait), the funny rash that would appear and disappear (there goes that stress again), the fact that my stomach was constantly gurgling (it's just sensitive).

    I think about the only unifying thing between everyone here is that we have Celiac...otherwise I would venture that the ways our disease has shown itself to us is as varied as the personalities here. Please just remember that just because you may not have the most severe of outward symptoms does not mean that you do not have damage where you cannot see it.

    All that being said the list of symptoms, that I didn't even know were symptoms, that have disappeared since going gluten-free have boggled my mind. Other than a case of being glutened the D has disappeared as have the: headaches, constant exhaustion, and the gurgling belly. The neuropathy is not nearly as severe as it was before and while I haven't had my blood pressure taken since I was at the doctor's last, I have not "grayed" out when standing up in weeks (would happen all the time before).

    Best wishes to you and congratualtions on the newest addition to your family.


  3. Okay yesterday (Sunday) I had:

    breakfast: the regular coffee with rice milk, Erwhon(sp) corn and amaranth puffs w/rice milk and a couple of dried black figs

    lunch: grilled chicken salad w/fresh corn and black beans tossed with olive oil and balsamic vinegar

    snack: a bowl of blueberries

    dinner: baby bokchoy stir fried in sesame/soybean oil and gluten-free tamari sauce, steamed rice, shrimp cooked in Malaysian red curry sauce, and something like 5 glasses of water because the curry was SO spicy (but boy oh boy was it good)

    dessert: one cocoa merengue cookie and a glass of Pu-errh tea

    Plus the family and I went for a crazy long walk together yesterday on the levee (like over an hour).

    Today I will have:

    breakfast: 2 Trader Joes gluten-free/dairy free pancakes with blueberries and of course I can;t forget my coffee with rice milk!

    lunch: 2 warmed corn tortillas wrapped with roasted turkey and hummus (this really good one from Trader Joes that has cilantro and jalapenos in it...tastes better than it sounds!)

    snack: an apple and some medjool dates

    dinner: probably some left over rice with the curry sauce and more bokchoy cause I am working late tonight.

    Excercise: I did a 45 minute pilates/yoga workout this morning.


  4. Thank you KarenB and GFpaperdoll for the info on the cast iron pans. I have my Gramma's set and have been using them for years. Last night I felt as though I had been glutened but for the life of me I couldn't figure out from where (since I cooked the whole meal myself with known ingredients). I just assumed it was something else going on with my body. I will try reseasoning the pans and see if that helps.

    Missmommy, you can also try driniking the high calorie Ensure (I just checked online for an ingredient list and the one posted shows that they are gluten-free, though I would check the label at the store). Definately look into your pre-natal vitamins, and check the labels on everything going into your mouth extra carefully.

    Best wishes to you and your family on your impending arrival...meemsy


  5. I never had much of an apetite before I went gluten-free, then again if my stomach was acting up, I would just ignore the hunger pangs. Since I have gone gluten-free I am RAVENOUS...for the first time in years I wake up in the morning and I actually want, no need, to eat breakfast. What I am doing now is eating several small meals throughout the day instead of just the usual three, I find that the hunger is much more under control and I am lessening the feeling of wanting to binge. If you are a vegetarian and cannot eat soy, then definately try and get some protein from eggs or dairy or a gluten-free supplement.

    Good luck!


  6. I have seen so many people here who have struggled to get a diagnosis, and I find myself thinking back to all the ridiculous things I have been told by various doctors over the years. Just wondering what the best advice/opinion you recieved from you doctor, and what was the absolute, most God awful thing you have heard?

    The best advice I got was just after I got diagnosed. The doctor told me I need to think about gluten as though I have a peanut allergy. He said the effects of ingesting the gluten are not as immediate or dramatic as it would be were it a peanut allergy, but the long term effects are just as deadly. After hearing that, I have not once had the urge to cheat!

    The worst thing I was told (and I can laugh about this now, but at the time? Not so funny) came after my fourth or fifth visit to the doctor several years ago. I was rapidly losing weight, I had such bad D that I was practically housebound, I was fatigued, I was having episodes where my feet and hands were going numb on me, my blood pressure was ridiculously low, a whole laundry list of symptoms. I was 29 at the time. I was begging the doctor for a referral to any one in any department who might be able to help me. Her response was that the only referral I was getting was to a psychiatrist because it was obviously all in my head...that I was just too young to be having all the symptoms I was complaining of!

    Your turn!!!


  7. This is my first Friday weigh in. I'm at 155 (up from 146 about 6 weeks ago)....AAAAAARGH!!!

    Yesterday I had:

    my normal morning coffee with rice milk

    one Glutino blueberry breakfast bar and a bowl of rasberries (breakfast)

    a roasted turkey and hummus wrap for lunch (I used a Vietnamese rice wrap, SO good and the hubby's idea!)

    an apple for a snack

    basmati rice with peas, curried lentils, and spinich for dinner

    some blueberries and pineapple for dessert

    Today:

    Ummmm...it's 10:40 a.m. and I have only had the coffee so far, but the meal plan is:

    two Trader Joes gluten-free pancakes with blueberries for breakfast

    going to the beach today, and bringing an apple, carrots, roasted turkey, and some hummus for lunch

    probably a bowl of berries at some point (they are so ggod this time of year!)

    Husband's cooking dinner tonight and he's making pepper steak, steamed veggies, and a salad

    for dessert, he picked up a teeny tiny Crave Bakery gluten-free chocolate cake and some dairy free ice cream

    Excercise? I actually got on the treadmill and walked for about 30 minutes this morning and did about 20 minutes of yoga. This is the first time in years I have actually felt energized by excercising instead of needing a nap...I must be doing something right!!!

    Happy Friday all!!!


  8. My mother and I have come to the conclusion that it came from my maternal grandmother's side of the family. She was Irish and Scottish, she had horrible digestive problems her whole life, she had Grave's Disease, she was severely anemic (and iron supplements never worked), she was unable to put weight on until the day they removed her thyroid (and even then, it wasn't much), she had 3 miscarriages, and she died of lymphoma 10 years ago. We also know that her brother died of colon cancer in his fifties, and her mother died young (probably of cancer) as well.

    I was diagnosed because of my DH, my mother has just gone in to be tested. My maternal aunts are also being tested. My brother refuses (he says he is healthy and has no symptoms so what's the point?). Mercifully, my children have been tested and came up negative...the doctor says it is more than likely because my husband is full blooded Chinese and this is a rare disease with Asians. Though they are both lactose intolerant (that Asian thing again!).

    When I think of the pain and suffering my grandmother went through, when just cutting out the gluten could have made a difference, my heart breaks.


  9. I have been gluten free for a little less than you have. Is it easy? Not by a long shot, but there are things you can do to make it easier on yourself. If I bake now, I bake gluten free only...that way I am not tormented by going through the trouble of making something for my husband and children that I can not have. Arrowhead Mills makes a great gluten free brownie mix, the husband and kids didn't notice the difference.

    Certainly there are things I miss dreadfully...like dim sum, but I send the family out for it without me, that way I do not feel left out. If there are any resteraunts that you go to where you are a "regular" I would suggest going in and talking to them about it. I have had a tremendous amount of luck with that, and they have been more than happy to accomodate me.

    I do not know where you live, but if there are any Vietnameses or Thai places near you, check them out. Both types of cooking are much more reliant on rice noodles and flour and do not regularly use wheat flour in their cooking or sauces, and both cultures do not use soy sauce either. Also see if there is an Asian market near your home for something different (a big plus on this is that alot of the substitute flours you will be using, like rice and tapioca, are a fraction of the cost there. Plus the noodle choice is outstanding...rice, bean thread, tapioca, and sweet potato noodles are all available, and again cheap.

    Try changing your mindset as well (I know, easier said than done). What is "normal" anyways?

    I have so far considered this an adventure...and a pleasant one with no headaches or fatigue or stomach problems. I would take that over a piece of Wonderbread any day!

    Good luck...Meemsy


  10. Not only talked to the wedding planner, I talked to the bride too (actually the wedding planner told the bride I had called). Everyone was really good about it, and as it turns out the chef's aunt has celiac, so he is well versed in the food handling and preparation. Not only that, but the bride said she checked to make sure there will be something I can have for dessert also (on top of the gluten thing, I have a casien allergy too). Above and beyond the call of duty for any of them.

    Then again, the bride has some pretty expensive things on her registery...maybe she's angling for that nice Tiffany cut crystal vase, hmmmm.

    Thanks again for all the responses!


  11. Okay...count me in. I have gained almost 10 lbs since going gluten free...and I eat pretty blasted well (if I manage to forget about an unfortunate brownie incident last weekend...but they were SOOOO good!). I try to eat lots of mini meals during the day.

    Today I had:

    *2 cups of coffee with rice milk

    *1 Glutino blueberry breakfast bar

    *A huge bowl of fresh fruit (kiwis, apples, grapes, melon, and bluberries)

    *1 slice of Whole Foods roasted garlic and sundried tomato bread with tuna (no mayo or anything)

    *For dinner? Not sure yet...the family is going out for Chinese tonight and I'll eat at home (I make them go out once a week and eat their fill of gluten!!!)...probably a spinich and tofu scramble.

    Excercise: walked to work, ran around at work, walked home from work, walked around the mall for about an hour (hey, that counts as excercise doesn't it?!?).


  12. I hear you about everything "wrong" with you that is Celiac related. There was a point where I was really begining to believe that all the little things wrong with me added up to my having one serious case of hypochondria...goodness knows that's what the doctor's were telling me.

    I have been gluten free since May 30th of this year. The first couple of weeks were incredibly overwhelming, but I assure you once you get the hang of reading the labels and knowing what to look for, it becomes easier. I do not know how old your son is, or if you have any other children, but mine (11 and 14) have become experts in reading labels and helping out at the grocery store. I also gave them a label maker and let them have at it with labeling all of my gluten free condiments (which will help keep cross contamination at bay).

    I do have a mixed house (gluten and gluten-free) but we keep everything seperate. Also, my husband and I agreed, not that I really gave him any choice, that anything used to cook for the family had to be gluten free. We got rid of everything in the pantry that was not safe and replaced it.

    At this point I would have to say that the single biggest problem I am having is with keeping the rest of the family away from MY food! Especially the Pamela's chocolate chocolate chip cookies and Whole Foods roasted garlic and sun dried tomato bread.

    Best wishes to you...meemsy


  13. I have the Namaste Spice Cake mix in my cupboard right now...I was going to make it this weekend...but I think I will hold out until my sugar cravings are under control. I made the Arrowhead Mills brownies Friday night and I felt like it was crack! Everytime I had a tiny sliver I started jonesing for more!

    Happy to hear this is normal, I'm even happier to hear it will subside. At the rate I'm going I'm going to end up turning into a gluten free baking mix!


  14. Wow! Great advice...thanks everyone! I doubt I will get too far with the bride as I saw her on Saturday and she kept trying to get me to eat a cookie (you know the whole "it's not gonna kill you" line). It never occurred to me to talk to the wedding planner though...she is another friend and I'll call her in a bit and see if I can just take care of this on my own.

    And Pinky...have fun in Italy...I'm SO jealous!!!!


  15. I am attending a dear friend's wedding in two weeks. I RSVP'd to it before I was dx'd and before I had gone gluten free. Last night was the first time that I have gotten myself "glutened" and I am still miserable.

    This got me to thinking...would it be incredibly tacky of me to mention to my girlfriend that I have dietary restrictions and that I am unable to eat any of the three entrees on her menu? Or do I just suck it up, eat nothing, and carry something in my purse to pull out and eat during dinner?

    Any advice, help, suggestions, ideas are welcome because I have no clue about the etiquitte on this one!

    Meemsy


  16. Ive only been gluten free for a short time, but I got glutened tonight while out to dinner (ugh, I haven't been this uncomfortable in a while). My husband started telling the kids to hurry up because we had to go home ASAP and I thought he was completely nuts. He knew I ate something before my stomach knew it! He said I get very irritable and snappish when I don't appear to be in a complete fog before I get sick. I really thought he was exagerating, but now that I read this I guess I have to admit he is on to something.