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  1. Hi - for those who use or who have used glutathione cream - does anyone know of a brand that does not have the glutathione derived from aspergillus mold? We had some compounded and I didn't ask what it was made from. My son is very neuro-allergic to aspergillus and this has set him back a bit. Used it for about 5 days before I called the compounding pharmacy and found out all of their glutathione products have the active ingredient derived from aspergillus. Would love to find some made from something safe for him. Thanks in advance!

    Katie


  2. Hi - I've really been trying to find something re: this topic in the archives and while I'm learning a lot about histamine - I'm not find the answer to this question:

    My son (4 years old) had some intradermal allergy testing recently. The reaction to the histamine injection was huge - weal was about 4-5 mm and the redness around the weal was about 4 inches in diameter. The doc looked at it and said, "that could be a lot of his problem".

    What does this huge reaction to histamine mean? That he is sensitive histamine vs that he harbors high histamine levels? Or that BECAUSE he harbors high histamine levels he IS sensitive? He is also allergic to dairy, egg white, peanut and wheat as well as having genetic profile for being gluten intolerant (double whammy on the wheat/gluten).

    Definitely going the route of poor liver/detox function and leaky gut. He has candida overgrowth as well but is responding nicely to nystatin and diet.

    But this histamine thing has caught me off-guard. Limiting his diet further to do a low histamine version will be rather challenging, but if it is necessary to help reduce inflammation, we'll do it.

    He definitely has some of the symptoms of histamine sensitivity/high histamine levels - high activity level, implusive, over-active fight/flight/fright response, hard to keep him focused.

    Any info is appreciated!

    Katie


  3. Rachel,

    Thank you for sharing your info! Your story is the first that sounds much like my son. I'd never heard of allergic reactions being manifested as neurological issues (and neither has his allergist or regular pediatrician) before I saw it in my son, and it still took 4.5 years for the real reason to be revealed to us.

    May I ask, what type of doctor do you see (or better yet, who do you see? I'll take my son anywhere to see the right professional). The mainstream docs that we have seen thus far have no experience at all dealing with children like my son or, for that matter with any child with leaky gut/autoimmune/multiple allergies, etc. We have an appointment to see a homeopathic MD in Jan. I don't know if he'll be able to help, but it's worth a shot since otherwise I'm on my own trying to figure out what is wrong and what his triggers are. If they are chemical, environmental, atmospheric, etc, I have no idea how to control that. We live in TN and there is no way to escape mold here. His skin testing showed positive for most molds and he reacted with a very bad sensory regression when taking digestive enzymes that were made from aspergillus. He was on them for 2 weeks and 5 hours after I pulled them, he recovered. No one could explain it until he tested positive for the aspergillus. That was a proving point that at least some of his sensory issues may be caused by an allergy. He also reacts with the same type of sensory regression when taking a certain type of EFA supplement. I thought he was regressing for another reason, and stopped giving him the EFAs. When we learned of the multiple allergies, it dawned on me that he might be reacting to something in the formula of that brand of EFAs. So I started him on just plain old cod liver oil and voila! No regression and better attempts at speech (my son has apraxia. He isn't on the ASD spectrum). So it was the other EFA formula, but I don't know which ingredient. This is such a puzzle.

    Katie


  4. Hi - My 4 year old son had two Celiac blood panels come back normal, 1 normal RAST IgE blood test and a normal genetic Celiac panel...normal for Celiac, that is. Upon further review from an HLA expert, it was further interpreted as a genetic profile for gluten intolerance (DQ2 & DQ6). He has since had an allergist perform skin testing for all foods and he reacted with the wheat. So testing is not very reliable. We did not do the scope. I figured that if we scoped and it showed damage, we go on the diet. If we scope and it did not show damage, we had to try the diet, anyway, to see if he improved clinically.

    So we went on the diet about 17 weeks ago. Three weeks usually isn't enough time. It took 11 weeks to begin to see any improvement with my son. I know this is going to be life-long for him, and that's OK. It does get easier. I remember the first 3 weeks feeling like 3 months.

    RAST testing results for us took about 2 weeks to be returned. But please don't hang your hat on RAST IgE testing. If your child is improving clinically, you have your answer.


  5. Hi - I'm still trying to navigate my way through this new world of multiple allergies and gut repair for my 4.5 year old. I have a question:

    re: environmental & food allergies - does anyone else here who themselves or have a child whose allergies manifest themselves through neurologic sensory dysfunction and ADD/ADHD type behaviors (forgive me if I haven't looked at the archives well enough to get the info from there - I'm constantly researching things and sometimes it is just easier to ask the question)? I'm wondering if his on-again-off-again heightened sensory behaviors at school are a result of increased mold exposure while there. We aren't seeing those behaviors at home, but the ADD/ADHD type behaviors are always there.


  6. Hi - I've posted on the "Parent with Children" topic link in the past as we've known my 4 year old son is gluten intolerant for about 17 weeks now. But 2 days ago we had some allergy skin testing performed and he indicated for wheat, milk, soy, eggs, peanut and most of the molds. We already knew about the peanut as he had a mild anaphylactic reaction to that as a 13 month old. Skin testing was performed at that time on all of the common foods with negative results. This past May 07 RAST IgE blood testing was performed and the only thing positive was peanut. Now the skin tests show up positive, so we probably have non-IgE mediated multiple allergies. It makes since - it all manifests itself neurologically. We definitely suspect leaky gut.

    My question: We are well underway with gluten-free diet for 15 weeks now and have seen positive changes with that since about 11 weeks. I'm hoping that eliminating the other offenders will not take as long. Is there an "average" time-frame where people see positive changes when eliminating milk, soy, and eggs? I've read it doesn't take as long as gluten, but I'd like to hear from people who have experienced it. Thanks!

    Katie in TN


  7. Hi - it's been a long time since I've posted anything, but we think we may be beginning to see the first benefits of being gluten-free with my 4 year old son (whom I need to mention has severe verbal apraxia and is completely non-verbal). It was 11 weeks this past Tuesday and this week has been amazing. He has begun to initiate going to the potty (he has been fully trained for some time now but we would have to take him - he would just hold it until we did). Now this week he is going into the bathroom and taking care of business on his own. His stool has begun to normalize (from chronic steatorrhea, not diarrhea) and he has become more responsive and focused. He is able to regulate his actions better in preschool (i.e. he is sitting for longer periods of time before getting up and wanting to run or wander around, and is giving me more verbalizations. There are other things that I can't even think of to mention right now - but it just seems like the "brain fog" that I hear people talk about is finally lifting. Poor little guy - he was on gluten his whole life up until 11.5 weeks ago and if not for the grace of God we still wouldn't know (the genetic Celiac test came back as "normal", but about 13 weeks ago a wonderful doctor took it upon herself to have an HLA expert read the results and she interpreted it as him having the genetic profile for "non-Celiac gluten sensitivity". So we went on the diet and my goodness, it appears it might be working!

    Does his new behavior sound like it could be the gluten-free diet is beginning to pay off here on the fringe of the 3 month mark?

    Am I hopefully in for bigger and better treats as the weeks go on?


  8. Bell & Evans all the way! My son refused Ian's. Bell & Evans taste just like Tyson's chicken nuggets. Make sure that you buy the ones in the red and black package. They also chicken strips as well. I buy mine at Whole Foods. My son loves them so much that he eats them BEFORE the french fries! :lol:

    Oh wow, I've never heard of Bell & Evans! We don't have a Whole Foods nearby but I should be able to find it at the places we do have. I'm so new to this and my son is such a picky eater. We did a trial gluten-free diet for a very short period (before we had labs to back up our suspicions), but gave up because he wouldn't eat. This time we have labs and we need to try it for the long haul and I'm desparately trying to find something he likes. Even the ones my mom and I tried to make failed. He likes that spongy, processed texture like that of Tyson.

    Thank you!


  9. Hi,

    I make my own, and u could freeze them and heat for later :)

    If u like the recp' let me know I would be glad to send ur way :)

    Good luck !

    I don't do gluten-free foods online way too expens, but I do make good cheese stix, onion rings, chicken stipes, and bites :0

    Belinda

    Yes! any recipes you are willing to send, I'll take. Thank you for the offer. Looks like you can chose to send me an email off online. Please feel free to do so.


  10. Hi - new here. My 4 yr old son was just this week dx with gluten sensitivity with the genetic profile for celiac disease. He has the symptoms and we need to begin the gluten-free diet. He is a very picky eater. I need to find a chicken nugget product that he will eat and he has already rejected Wellshire Farms Dino Bites and Ian's brands. I saw a brand called Martha's Home Style on the Gluten Free Mall and would like to try them, but in order to buy one box from gluten-free Mall, I'll have to spend $40 on the one box & frozen shipping. The other option is to maximize the shipping cost by filling up the cooler, but if he doesn't like them, I'll have 20 boxes and be out $170.

    If he likes them, then the $40 is worth it and then I'll stock up. Has anyone tried them or know of any other way to order just one box with more reasonable shipping rates? Are they at all similar to his beloved Tyson Chicken Breast Tenders that will soon be taken away from him? I can't find a manufacturer's web page or any other site that sells them.