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Nikki'smom

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  1. Thanks again everyone!

    Julie M Not sure what I am going to do just looking for ideas to make her not miss out on the little kid bday cake thing you know? Personally I have this weird thing with red food coloring and red anything (mm,sprinkles etc.)LOL So I love my DD but I want a peice too so I am not sure if I will do the food coloring but as a little girl she loves pink! LOL


  2. Sorry your DD is having a hard time. My DD whi will be 8 in 2 weeks was diagnosed in the beginning of September.

    So far she has been great about the lunches but I still feel bad. What we do is I always ask her what she wants for lunch and if possible I make that. thankfully her friends ahve been great about helping her be ok with home lunches.

    There has been a few times with eating out wher eI felt really bad and gave her the choice to eat out and chance it or have mommy make something at home and most of the time she has been asking me to make something.


  3. My DD is turning 8 next week and this is her 1st gluten-free bday so I wanted to make her a gluten-free cake. We love butter cream frosting does any one have a good gluten-free recipe?

    We did find a bakery in the city that sells gluten-free cup cakes so hubby might go get them for her the friday before her party but it might be a project. I am happy to here that there is a gluten-free bakery in my area though!


  4. I am thrilled you DS is doing better that is wonderful!

    I do have to say though fruther testing after blood work is a very personal choice. We chose to do the scope with my DD and we are glad we did as hard as it was seeing her go through it to us it was worth it. Yes we were vERY lucky and it took us all of 3 weeks from the 1st blood test to the final results of the scope to know she was Celiac. So yes we are VERY lucky. Maybe if I had gone through what others have gone through I might feel different who knows?

    Certainly don't beat your self up for the wait to try gluten-free. I understand my DS was on Zyrtec since he was 15 months and he was very slow at everything. So much so we were thinking of testing for a learning disability and the dr agreed. Then a chance conversation with some one I casualy knew prompted me to try a different allergy med and I I now have a different child! He is sharp as a tac, fast almost hyper and isn't sluggish any more. He is the child he shoudl ahve always been! So I wasted 4 yrs of my sond prime learning yrs having him in a fog. Sure I feel guilty but I am more thankful I caught it before he started kindergarten this yr.

    Keep up the good work getting the word out there on gluten-free!


  5. with my DD we use a thermouswhen ever she has a hot meal to bring.

    My concern which I have discussed with this board is the what if she forgets he lunch and I can't bring her one. The nurse and the cafeteria people weren't as helpful as I was hioping with the school lunches or with heating up a lunch if she forgot hers. So thakfully her teacehr said she would do it in the what if situation.

    I am very tempted to put the 504 plan in place but I haven't yet.

    For those of you that have the 504 plan doe sit help with other children too? Or would it just be for my DD?

    DH thinks I am crazy and shouldn't bother for the what if case.


  6. Sarah,

    WOw I can't imagine how taken back you where by your dr mentioning Biopolr! I would be just as terrified and scared as i can imagine you are. I am sure you will do what ever is needed to help Ezra. Is that your little Darth Vader?

    That is great about your dr being so knowlagable! I know I feel blessed to have some great drs and I love hearing about other great drs.

    Right now just take everything with a grain of salt put him on a gluten-free diet and if he makes great strides then you ahve your answers. Then I would just monitor him and keep the biopolor in the abck of your mind and look for signs.

    One of the other posters mentioned red dye making a child go 'wild' when my DD was smaller orange juice used to make her litterly change from a loving sweet kid to a real night mare she would be angry and nasty and just not the same kid! It was the oddest thing! I should have clued in right there how food can change your mood and affect your body.

    Hang in there and just know we are here to support you during this next step ;)


  7. We have some gluten-free corn dogs that my dd loves.

    What about making burgers the night before and the sitter can heat them up? I know my walmart has these Mickey mouse shapped burgers my kids love. what about apples sauce? or canned fruit? I say canned because at 1 my DS still didn't have teeth!

    The Univ of Chicago Celiac center just emailed me this Lunch list I noticed some of the things your child can't eat but I figured I would post the whole letter for everyone and hopefully you can find stuff off it too.

    Ideas for Gluten-Free School Lunches

    This list was designed to include as many gluten-free products as possible that could be

    found in a common grocery store. The suggestions listed below were considered

    gluten-free at the time this list was made (May 2005). Final verification of

    gluten-free status is the responsibility of the list recipient.

    SANDWICHES

    Breads from Anna Bread is terrific tasting bread that holds up when used for just about any kind of sandwich. It is a mix that can be made in a bread machine or by hand, it has a fantastic nutrition profile and there are varieties for those allergic to corn and those who cannot eat yeast. Order at www.glutenevolution.com.

    Fillings:

    Smuckers Jelly with Skippy Peanut Butter

    BumblebeeTuna fish with Best Foods mayonnaise

    Applegate Farms turkey (or turkey bologna), Kraft cheese with lettuce and tomato

    CHIPS AND PRETZELS

    Frito Lay Cheetos, Fritos

    Lay


  8. I agree a colonoscopy is a good idea especailly if there is blood in the stool. My DH had Ulcerative Colitis (colon removed) starting in his early 20's. Now that our DD has been diagnosed with Celiac he wishes he knew about it back then because he thinks he should have tried being gluten-free before he had his colon removed. So personally I say go for the colonoscopy and then see what they find (hopefully nothing serious) and if need be then be pushy on the endoscopy. If you can get them to do both at the same time even better.

    As for his sisters keep mentioning it but in the end if they don't want to help them selves then their is nothing you can do.

    I know what you mean about feeling like it was a mistake not going with DH to the dr. That is how I used to feel if I didn't go to the gastro with DH. It actually got to the point the gastro would ask me the question about what was really going on not DH! LOL

    Good luck!


  9. My DD likes the Whole food bread I buy 2 loaves and freeze them then toast them. Also Trader Joes makes a french bread rol which taste a bit like corn bread which is yummy I love it!

    Sarh I have been meaning to comment on your little Darth vader what a cute picture! My 5 yr old loves Star Wars and we joke that darth Vader is his hero! LOL We actually just took the kids this weekend to a Star Wars exhibit at a museum and he was in heaven!


  10. So finally after feeling like we were never going to get any tests, they scheduled DS's endoscopy for Monday Oct. 8th. I'm still nervous, but feel like it is the best way to see what is going on with him.

    Tomorrow we go for a pre-op appt, a bone age xray, and a sweat test. Poor little guy, I'm glad that they are checking, but at the same time, he's been through too much already and I hope this is the beginning to the end of so many tests.

    So if you could say a prayer for my little man, I would really appreciate it, and I will keep you posted on his results.

    Good luck please let us know how you make out! I will be thinking of you and you DS!