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GFDahlia

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  1. Well so far as I am able to asertain from my family...as a child I had huge asthma problems which promted A LOT of tests including allergy tests and all that. They were told that I was not to have refined sugars at all. Honey or things like agave nectar are ok...but not refined sugars. Not sure exactly what the issue is in medical terms, but basically a lot of sugar would trigger an asthma attack or pave the way for huge immune problems. Never met anyone else with the problem so far. But, I am glad to know I am not the only one out there having to avoid sugar and gluten!!

    Thanks

    Dahlia


  2. NoGluGirl!

    You are such my hero right now!!! Thanks soooo much. And mad props on dealing so well!

    Dahlia

    Dear Dahlia,

    Welcome to the forum! I have a present for you! I have a list that should really help. This is overwhelming. I went through this with myself eleven months ago. You spend most of your day cooking and cleaning obsessively. The rest you are on the phone with reps from companies trying to find out what is safe. I decided to save you the trouble!

    1. There are a number of things in the regular grocery that are safe. Some things are labeled already. Wal-Mart's Great Value brand has numerous things you can eat.

    2. For the love of God use Coupons on items you are allowed to eat. People can get them and print them out online even. Call some of the local stores and ask if they accept online coupons.

    3. Check the ads online and in the newspaper. You would be surprised how many people do not do this.

    4. Some items like rice flour and rice noodles are safe to buy at the Chinese or oriental market. The merchants are more than happy to help you if you cannot read the label.

    Now, here is my list of great things to get you started:

    Condiments:

    Smart Balance Margarine*

    Crisco Shortening

    Crisco Oil

    Pompeiian Olive Oil

    Great Value soy sauce

    Heinz Ketchup

    Lea & Perrins Worchestershire Sauce (all Lea & Perrins Products are safe)

    Sweet Baby Ray's Barbecue Sauce

    Kraft French Fat-Free Salad Dressing

    Kraft Thousand Island Fat-Free Salad Dressing

    Pace Picante Sauce

    Ortega Salsa

    All Classico Red and *White sauces

    All Jif Peanut Butters including Smooth Sensations

    Welch's Grape Jelly

    Cool Whip*

    Philadelphia Cream Cheese*

    Miracle Whip

    Daisy Sour Cream (fat-free, low-fat, regular)*

    Snack Foods:

    Utz Potato Chips (Found at Sam


  3. OH my gawd - I totally know this feeling!!!!!!! You are not overreacting. I am from a huge Italian family....all about the bread and pasta! You would think that I was killing the Pope because I can't have either when I visit. They will get over it. But, I know I drool too!!!! I also can't have refined sugars so even the deserts without crust kill me!!!!!

    Hang in there and stay strong sister!!

    Dahlia


  4. Hi all, I am soooooo overwhelmed. I keep reading about all the things that have gluten in them that you would not even think had it, like certain already prepared rice dishes...etc. And also beauty products that use gluten based products as fillers such as wheat husks or other grain husks.

    Where in the world do you find a list of products out there to avoid???? Is there such a list? I am so afraid I don't know what to look for....products that don't say flour on them....but then I read the unsafe list and there is some strange long name and it's somehow gluten...and low and behold there it is on the label of the product I thought was safe!

    Sorry to see so overboard about this...but with my health as bad it is....I want to completely go Gluten-free and am just having trouble finding the info.

    Any help is appreciated......thanks in advance

    Dahlia


  5. Fiddle-Faddle

    While I would deffinately agree that Celiac is not the worst thing in the world to have...I would not agree that it is just a minor pain. For some of us our whole lives and health have been completely wrecked due to this disease. I mean we are talking about some serious issues for some...lymphnode infections or cancers, extreme intestinal issues...for some to the point of complete shutdown, skin infections, so many things I cannot list. But, though for some it's a minor pain in the butt...for others it's much worse.

    I mean I would not say having Pneumonia is the worst thing in the world either...but if left untreated people die from it. I look at it this way...for someone with Cancer facing certain death, a look at someone who has an HIV diagnosis is nowhere near as terrible...because they at least have a chance to live with proper treatment. So for those who don't have bad issues with this disease it's easy to shrug and say "it's not so bad" but for those of us who have had to face cancer testing, biopsies, skin biopsies, and much worse it's more of a big deal I guess.

    Thanks

    Dahlia

    Umm---I haven't heard of Alexis Stewart either. Who is she?

    And I don't know what she wrote or said that prompted you to say that she has a deficient learning curve. Could you please post that?

    I'm feeling a bit dumbfounded here, because for months I have been telling the friends I suspect of being celiac or gluten-intolerant that it is not the worst thing in the world, that it is a very healthy and wholesome diet, and that I have had very little difficulty with it.

    Shortly after my diagnosis, I was feeling pretty sorry for myself. Then a friend told me that his former nanny's child had been diagnosed with a terminal illness. Then there was a tragedy a few miles from me, where 2 of 3 3-year-old triplets and their father died in a horrific freak highway accident. Then one of my colleagues gave birth to a stillborn child.

    I'm sorry to go against the popular opinion on this thread, but I've gotta agree with this Alexis person, whoever she is--following a gluten-free diet to me is occasionally a pain in the butt, but not the worst thing that ever happened.

    I think that you have probably been through a lot more difficulty than I, as you were symptomatic for so many more years before diagnosis than I was, and perhaps that might--just might--have clouded your judgment on how your words might appear to others.

    I'm sure it was cathartic to write what you did--but to my uneducated ears (remember, I have no idea what she said that sparked this), it sounds like she may have been ignorant, but that the viciousness was on your side.

    I don't think you can educate people about celiac with harangues like that. I'm not doubting a single word that you wrote--but I think expressing years of pain, anger, frustration, etc., and aiming it at her as though it were her fault is likely to have the opposite effect of what you want. When you react to ignorance with rage instead of patience, you risk coming off as unbalanced--and then, even though you are correct, the credibility of your message --and that of the next person who tries to explain it--is lost.


  6. Thanks everyone for your help and opinions. Just helps to know there are others out there.

    As for getting another Dr. - well to be honest since I am waiting on a decision from SSI, I don't have health insurance and this doctor is the only one I have found who will see me for like $30 cash office visits. So, unfortunatlely something is better than nothing until I get some insurance.

    Thanks everyone

    Dahlia


  7. there needs to be a gluten tester invented. or a scanner that can test foods before we eat them to tell if they contain any traces of the poison. that would be great. anyone own one?

    Scotty,

    That is so funny - I just said that exact same thing to my husband the other night. He is a mechanic and was trying desperately to think of how it could be done. It would make life soooo much easier haha. Let me know if you ever hear of such a thing in the future!

    Dahlia


  8. Hi, I am hoping I am posting to the right area?

    Well, I am 30 years old and just recently found out after years of severe sickness, medical testing, etc. that my mother forgot to let me in a little thing called Celiac that was apparently diagnosed when I was a child. I won't go into that long story, but basically I knew that up until about the age of 13 I was not allowed any gluten products - also no refined sugars due to a sugar allergy. Well, at that age I was told it would cause asthma attacks and it was just a food allergy. Well, here I am years later finding out that Celiac is a real thing and everything that has been wrong with me, even the skin disorder that could not be diagnosed by a dermatologist is most likely because of celiac disease!!!

    Here is the thing...I cannot afford the medical tests - I am told now that I had them as a child, but the records are lost for good. Should I just try going gluten-free and see if it helps my medical issues?? My doctor is a pill pusher and doesn't really believe in Celiacs...so he is no help. My health is so bad that I am on the list for SSI disability because after about 20 years of working I am so ill I cannot work. So, until I can get a new doc is it safe to try the gluten free way and assume that this really is Celiacs?

    Other family seems to remember hearing that word and knowing it had something to do with my food restrictions....just never knew I didn't know. So, I feel kind of safe in assuming this is what I have....however you know what they say about ASSuming...haha.

    Any advice out there??

    Thank you

    Dahlia