Cat5

Fructose from Wheat?? OMG what next? I am very new to all of this and have been on this website nearly all night reading and reading and learning a lot of new stuff.

I have only been diagnosed for about 3 months now with celiac disease and was eating Mento's in the box because I thought they were okay. The ones in the rolls for some weird reasons have colorants added but the ones in the boxes are colored with veggie dyes, like beet juice etc. Go figure?

Well, so much for Mento's. I have come to the conclusion that if it tastes good, its probably got wheat or gluten in it somewhere!

I have just recently been diagnosed with Celiac disease but have always had a problem with bruising easily. You can just touch me and it seems I will have a bruise there. I am just wondering if this is also part of Celiac disease and goes along with the anemia and related problems ?

Anyone else have this?

Thanks

My experience was that if you have a low acid stomach the vinegar may help but if you had over active stomach acidity it could make it worse. I did the Bragg's Vinegar thing in the water and my stomach got Much worse. I have been too scared to try it again for the acid reflux, so now I am trying the Organic Aloe Vera juice and organic raw garlic cloves and plain Dannon yogurt. I eat about 4 Tbsps. of the yogurt every other day as sometimes the yogurt (dairy thing) can cause a mucous over-reaction which makes my nose start to run etc.

I wish I could find a natural cure for my acid reflux. It comes and goes and sometimes I don't have it for several days at a time, then other times its there every day all day no matter what I try.

Yes Yes Yes!! Took me forever to figure this one out though. I thought it was the milk if I had mashed potatoes, then I thought it must be the butter if I had baked potatoes, then I thought maybe it was something in the Combo of the Starch and Protein together issue (the Macrobiotic method of eating says this is a big No No), finally after being diagnosed with Celiac disease 3 months ago and being Totally Gluten-Free (to my knowledge anyway), I was Still having Horrid pains in my stomach, but I noticed this only happened with a meal that contained Potatoes or anything with Tomato base...sauces or whatever. I made a mock Spanish Rice meal one night that tasted soooo good going down with ground turkey and a tomato based sauce that all gluten free and fresh ingredients etc., I had the Worst Reaction I've had in ages from that and was 3 days getting over it and then had Acid Reflux for a week after that.

So, I guess I they aren't called the "deadly nightshades" for nothing...that night I thought I was dying. Yeowwwy!

So now I have scratched potatoes and tomatoes off my list...two of absolute favorite veggies in the world. Just my luck.

I have had those Zig-Zag half-moon flashes across my eyes for years and my Eye doctor told me they can happen if I've eaten too much chocolate or cheese. She said that for me at least it was nothing to worry about that sometimes the blood vessels get stressed and dialated after chocolate or cheese consumption and causes this reaction. Hopefully it will be the same for those of you who reported what sounded like the same thing I have experienced.

My husband was telling me something about this which I half listened to at the time, but this ~might~ explain why when I used to be preparing certain foods (I am newly diagnosed Celiac 3 months ago), that just smelling and handling certain foods my stomach would start to swell up so bad that by the time supper rolled around I couldn't eat because I felt like I was going to explode inside if I put one mouthful of food in there.

My upper back would hurt so bad from the swelling of my stomach that I was Miserable! Now that our house is completely Gluten-Free I don't have that happen anymore and this leads me to believe that perhaps there is more to this "gut-brain" thing to be learned about.

Thanks for posting this, it reminded me that I should search this one out.

I was diagnosed with Hashimoto's disease in 1991 and they started me out on Synthroid which my heart decided I was not going to be able to tolerate. I had heart palpitaions galore while on that stuff.

After almost of Year of being on Synthroid and suffering through many odd things, my Endo. switched me to Levothroid. YAY, no problems ever since.

There was some sort of Class Action Lawsuit involving Synthroid a few years ago as I recall, but since I wasn't taking it anymore I didn't pay much attention to it, but it might be worth Googling to see what all that hoopla was about just for your own safety's sake.

Good Luck and welcome to the Dead Thyroid Club.

I am so sorry to hear of al of the troubles you are having with your acid reflux. I never had any troubles with this until about a year ago, which was about 9 months before I was diagnosed with Celiac disease.

Pills and surgeries are not an option for me as I'm the biggest chicken on the planet when it comes to going to doctors and I have full blown panic attacks every time I have to go, but that's a whole 'nuther issue.

I google'd natural cures for acid reflux and found 2 that have worked for me so far (knocking on wood)...raw garlic cloves and plain yogurt. I know its a milk product and some can't tolerate it, but I eat about 4 tablespoons of Dannon plain yogurt about every other day and it has helped me.

I add the raw Organic clove of garlic to my foods and yes I probably stink to high heaven but who cares when you're my age those things don't matter anymore (to me anyway). If I feel better, I'm a lot happier person.

I also eat Very small portions at meal time now and I think that has been a huge help too.

I also read that drinking more water would help, but its been my own experience that the actual weight of the water in your stomach can stretch out that espophagus and make the acid worse.

Sugar will make the acid reflux much worse I do know that.

One other thing I read was that Magnesium might help with acid reflux too, but I've not actually tried that one yet.

Good Luck to you and I do hope you find some relief and get well soon.

I'm A- and have Celiac disease, dead thyroid gland, MVP (mitral valve prolapse), and have food and other skin sensitivities (make-ups and even our chlorinated water makes my skin break out).

You won't want to hear from me then. I ordered these oats about 3 months ago after I was first diagnosed because our Gastro gave us a sample to try.

The first time I ate them I had a reaction, but I thought perhaps since I was so newly diagnosed at that time that perhaps it was just my over sensitive stomach. So about a week later maybe 10 days later or so I tried them again and the Same reactions. I wasn't going to try them a third time.

I guess some of us just can't eat oats period ! They did say there were Gluten-Free and everything, but they didn't work out well for me.

Oh hoooray I found your orig. message about the Tostito's...I just responded to your Follow-Up but hadn't seen this message yet. Thank you So Much for sharing this info and for calling Frito-Lay.

Are they ever going to have GOOD clear Labeling? This is crazy stuff...now I'll have to make Notes to take with me to the grocery store to check for Coded Messages imbedded into the packaging.

That's really crazy isn't it? Why don't they just say, This Product could be made on machinery that has gluten or whatever? To me that would be simpler.

Oh well...thanks again so much.

Thanks for posting this about the Tostitos and Fritos. I wonder if the Restaurant Style Totitos are treated differently because when I've eaten them in the past....Yeooowwwyyy my stomach hurts.

Perhaps you already posted about that somewhere else, but I found this message first so pardon me if I've missed something, I'm new here so trying to gain as much info as I can.

You all are so very helpful.

Thank You.

I am freaking out here because I am newly diagnosed with Celiac disease and have read so much on this website today that describes Many and most of the symptom I have been suffereing with for years and chalked it up to just getting old! I am a product of the 60's hippie scene so am probably a lot older than most of you are, but we still suffer the same problems and symptoms which are not age specific.

I've had dizziness for the past 2 years which seems to coincide with what I now know was probably the worsening of my celiac disease.

I never would have thought that now when I get the dizziness that it could be due to Cross Contamination. Cripes, I have a lot to learn with this I can see that right now.

Thanks so much for posting about this.

Well, since I have seen others post about "Bathroom" issues, I guess its okay, so here goes...

I am newly diagnosed with Celiac so perhaps this is all part of the healing processes too, but my problem is that I seem to have lost the "ummmppphhh" or ~push~ for lack of a better way of describing it when going "Number 2"!

(BM's).

Its like, I've Got to go Now, but then its difficult. This is something I might expect during the winter months when I don't eat as many fresh fruits and veggies, but I'm eating grapes, watermelons, canteloups, 'cukes and 'maters, squash etc. and all sorts of things that I think Should help the Pooh make a good Exit, but it isn't. I'm to the point now of searching out a gluten-free stool softener.

Has anyone had this before?

Thanks

Try cutting out the Dairy completely for a while and see what happens. Also you may have an allergy to Corn or the SOY! I cannot tolerate Soy at all and I have read some not so great things lately about Soy so perhaps its part of the culprit too. I switched to Rice milk but then found out that the very brand I was drinking contained barley malt, a No No for us Celiac's so I now drink no milk whatsoever and feel a lot better. Since dairy products are known mucous stimulants (causing things from runny noses to ear infections in children), it could be that the cheese is adding to the bloat or may be a part of the irritant to your stomach.

Just a suggestion and worth a try. Also other food allergies could be causing the bloat too.

Good Luck to you and I hope you find some relief.

We were told that floating stools can also mean Malabsorption problems and that you may need to take more B vitamins. ?? Don't know how correct that is, but might be worth checking into.

Had to chime in here because I too am part Irish/Scottish and Norse. We found out via dna testing that we were of Norwegian ancestry which then led to them moving over to Scotland and then to Northern Ireland.

So heavy drinking in my family was always there. While I don't partake as much as I used to anymore I can Totally relate.

I cracked up at someone's comment about their father dying before they'd give up alcohol, well that's exactly what I'd say about my father too!

Anyway, I still like a toddy every now and then and while Killians Red WAS my beer of choice I can no longer have that, so we now drink single malt Scottish Whisky (no "E " in Scots Whisky please).

The Gastro doc said we could drink that. So we are not without at least. I bought my husband a great bottle of Glenfiddich and we enjoy that. So far so good anyway and no reactions to it. (gluten-wise I mean).

So sorry to hear that about Betty. Where does everyone get the Celiac Awareness bracelets from? I just posted about that wishing we had them. I am newly diagnosed (3 months ago) so am still learning a lot about all of this.

Thanks

Mine too ! I am newly diagnosed and I also happen to have a dead thyroid gland which I have to take a daily pill for, so I always thought my hair falling out was due to my dead thyroid gland because it was one of the symptoms as well.

However, I have read that Celiac disease can cause thyroid troubles so it appears that all of these Auto-Immune diseases may go hand in hand.

Sheesh, this is scary! My hair still falls out...so much so that when I vacuum which is at least once a week, I Always have to stop the vacuum cleaner and cut my long hair out of the brush rollers!!

I can see I may learn a lot from this site.

Whoa, I just saw your message about the Dizziness. I never equated dizziness with Celiac disease, but I am newly diagnosed so am still learning a lot about this.

However for months I have had off and on unexplained dizziness too. Some days its worse than others. I thought it was just due to old age, but perhaps not.

I sure would like to learn more about this. And pardon me for being old fashioned but what do you mean by "CC"? Is that short for Celiac something or other?

Thanks

Hello,

This is my first post here so I hope I am doing this correctly and to the correct board.

I was diagnosed with Celiac disease about 3 months ago and being among the over middle age group this is quite a challenge as I am pre-pubescent to those Golden Years, life already presents enough challenges for us as it is without having to transition oneself off regular breads, cereals, pasta's, cookies, pies, cakes etc. But anyway that is what has been diagnosed and I do have to say that I have not felt this good in many years.

The sleepless nights, the headaches, the lethargy and fatigue, the joint aches and pains that I attributed to my getting older (some are still there and most likely are), the scaly skin that showed up in weird places like the bottom of my right leg near my ankle. I call it my Aligator Ankle...I guess that's the skin disorder that some have from this Celiac disease. I have it in other places too like the top of my right hand. I have one knuckle that is covered in a hard leathery scaley skin that cracks and I have to constantly moisturize my hands and the other areas that this Aligator skin has popped up. My ankle looks like a series of bubbles though, its strange looking to say the least.

Anyway, I have now learned that I even have to check the label of the hand creams to be sure they don't contain Gluten or something that could be harmful. So what I use now is Pure Organic Coconut Oil. It seems to be helping a bit.

I think I miss bread the most. I loved having sandwiches for my lunch and so far I've not found a single bread I like. Perhaps some of you have good sources for breads that actually look like and taste like bread. Most of the ones I've tried so far, even spit won't help you to swallow them they are so dry or they are so cake-like you can't make a sandwich out of it.

For Hamburger buns I use two of those huge Poratbello Mushrooms that I grill and then I slather them with mayo, mustard and ketchup and I use ground turkey meat for the burger (I can't eat ground beef anymore unless its organic), lettuce, sliced onion, and cheese and YUM (all gluten free ingredients of course), and its very tasty.

If I want a taco, I buy Romaine lettuce and peel off the large long leaves and use them as the Wrap (roll-up) for the ingredients inside. Its not actually a taco, but hey, when you can't find a tortilla thats tasty and gluten free (I can't eat the corn ones that they douse in that horrid lime calcium stuff...Ugh), this works for me. I crinkle up Frito's since Frito's seem to be Gluten-Free at least I hope they are, and that gives it some crunch! I add organic Salsa and any other gluten-free ingredients I can find and it works out well as a roll-up.

Of course both of these make for messy eating, but just take a fork to the table with you because it all tastes really good.

One thing I have had to learn really quick is to be Creative in the Kitchen. I purchased a really great cookbook that has some of the Easiest and Tastiest recipes I've tried to date and its called the "Gluten-Free Kitchen" by Roben Ryberg. There is a recipe in there for a simple Pound Cake that is so good I kept looking at the recipe to be sure it was Gluten-Free!!

It is a wonderful cake and a great base for chocolate sauce or a strawberry shorcake or any kind of desert like that. I would think even someone without Celiac disease would enjoy this cake.

I have trouble with Corn, Soy and Oats too. I happen to be one of those who can't eat Oats even when they say they are Gluten-Free. We bought a box of a Gluten-Free Oats (Not from the Gluten-Free Pantry), but from another outside independent company, and I ate one bowl of it and my stomach blew up and I was in severe pain again just like I had been for years before.

I thought, well, maybe it was something else so after about a week I tried it again...Same Thing happened...so I wasn't going for Strike Three!

I have noticed now that Soy is in Everything, maynaise, and basically all of the vegetable oils are Soy based unless you buy Olive oil like I usually use but for baking I have to use a vegetable oil. Since most of the oils are either Corn or Soy, I've had to resort to Canola, but they are now saying that Canola oil causes cancer (what else is new, next week they'll say its wonderful for you, so who do you trust anymore when it comes to our food?). I read an article recently that said farmers use Soy to fatten up their baby pigs so what does that say about what its doing to us? All this carrying on from the news about children today being overweight and blaming the poor parents for it, I think is just a cover up for the food industry which is, in my own opinion solely to blame with all of the Genetically Modified foods we eat today. Its pathetic what they've done to our food supply now all for the sake of the almighty dollar!

High Fructose Corn Syrup is a chemical that no one should consume and its typically one of the first few ingredients on any label these days. Wheat now contains about 13% protein to what it used to contain (around 2% protein) so that it can have a longer shelf life and thus be more Profitable to the farmers etc. Have you noticed how Everyone seems to have acid reflux and digestive disorders these days?? Its no wonder when they have genetically modified the very foods in which we eat so that they will sustain a longer shelf life and stand up to imports in warehouses longer, but what are they doing to our insides?? I feel this is why so many folks are getting Celiac disease today...the wheat is Not the wheat we (my age group) grew up on.

I could go on and on about this subject, but for a real eye opening read, check out Dr. Timothy Brantley's book called The Cure. He's been on several TV shows including the new Rachael Ray show and his book is an easy and wonderful and as I said Very eye opening read. Its not about Celiac disease but if you are like me and tired of all of the lies and story's that seem to be on the news every other day about Eat This, NO Don't eat that, E-Coli here, Salmonella there...then this book might be of interest to you.

Another great book is called "The Hundred Year Lie". I can't remember the authors name right now, but any book store should have it or Amazon or Barnes & Noble etc. That book is backed up by documented proof which the author cites all during the writing, of his claims and it is Very Good...its scarey, but its one of those books I feel no household should be without, especially if you have unexplained sicknesses in your home and don't know why. I bought a copy of that book for my sister and after she read it she made lifestyle changes in her own family that she is still adhering to now. This guy covers a lot of turf in this book.

I have stopped eating all wheat and gluten and the other No-No's and so far so good. I think because of my age and probably the advanced stage of which my Celiac disease was at in my body, I am taking a bit longer to heal up inside as I still have days when I don't feel so great and I know I have not eaten gluten, but I believe my stomach is still in that sensitive stage so sometimes certain foods seem to flair it up. But those days are becoming a whole lot less, so things are looking up.

I realize that this disease is not one that I can stop eating wheat for a few months and when I feel better I can go back to eating to wheat. I realize this is a "for the rest of my life" change.

I guess when you are new to this, there are a lot of stumbling blocks to wade through and I'm sure I'll make mistakes along the way, but I am trying to be very careful and read a lot about this so that I hopefully won't have too many set-backs as I want to get well and heal and not be sick anymore.

I equate this a bit to a Diabetic who can't eat Sugar. When I tell people I can't eat Wheat they look at me like I'm from Mars or something and then they say, well, "maybe if you just eat less of it you'll feel better....(eyes rolling)"! No one in my family "gets it" that my body views Wheat as a foreign invader and that my body goes into ATTACK Mode when or if it sees wheat or gluten etc. coming down the pike. Thus your body stays in a constant state of Inflammation and disarray until the wheat has left the body.

Yet these same people if I tell them, oh, so and so can't eat Sugar anymore, they look with true sympathy on their face and will say "oh they have Diabetes how sad". Cripes, if we could only get half as much sympathy for ourselves from our own family and friends it would be nice.

Does The Celiac . com Shop sell a Celiac Awareness Bracelet?? You know those colored rubber bracelets everyone is wearing of all colors it seems these days for every ailment and disease and cause imaginable? If they don't, they should !

Maybe That would help to get the word out more and draw a bit more attention to us and how we hurt and have survived or are surviving.

I've babbled on enough, but I hope to learn a lot more about this disease and this looks like a great place to start.