hit2win1

Yes...they say that the pill works to break down the gluten before it reaches your intestines...making it as if you hadn't eaten any in the first place.

You got it...it's because of the celiac. But we're hoping that when the villi heal, she'll be able to have lactose again. For now, no milk though.

You can, but you may need to pay for travel to/from the doctors...and I don't know how often you'd need to see them. I know that because I'm on a clinical trial for a different illness that my treatments need to be done in the medical office. But my treatment is given via IV...and it isn't three times a day.

I would bet on monthly visits. If you don't mind a day in the car, and you can drive to the doctor's office, then you probably could participate.

I would call the office nearest you, and see what they say. It can't hurt to ask

yup, she can't have milk either...

but thanks sooo much for the ideas!

I know, it's scary thought. But someone needs to do it. The way the trial works is you stay on your gluten-free diet, and have one of four choices in reguards to the pill:

1) Real pill, placibo gluten pill (they are delivering the gluten via pill so they know how much you are digesting)

2) Real pill, real gluten pill

3) Placibo pill, placibo gluten pill

4) Placibo pill, real gluten pill (this is the one no one wants)

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Thoughts? Ideas? Is anyone going to do it?

Basically, it's a pill taken before meals (three times/day) that will allow the taker to digest gluten. During the trial, you MUST NOT eat gluten...they will deliver the gluten via pill, so they know how much the taker has recieved.

It sounds interesting, and makes me hopeful, if nothing else...

Open Original Shared Link

Thoughts? Ideas? Is anyone going to do it?

Basically, it's a pill taken before meals (three times/day) that will allow the taker to digest gluten. During the trial, you MUST NOT eat gluten...they will deliver the gluten via pill, so they know how much the taker has recieved.

It sounds interesting, and makes me hopeful, if nothing else...

Thanks so much for the reply! I can't wait to try some of these out...I'm auctually really excited about the cereal bars...it's a great idea!

here are a few suggestions:

snackies:

smoothies

fruit leathers

rice crackers with cheese

nuts

veggies with gluten-free dressing

cheese sticks

popcorn

tortilla chips with gluten-free salsa

Pamelas cookies

rice cakes

meals:

corn tortilla quesadillas

rice pasta with gluten-free pasta sauce

Kinnikinnick pizza bread with gluten-free pizza sauce and cheese

soups like Progresso that have chicken and rice

gluten-free waffles like Vans

salad with gluten-free dressings

gluten-free sandwiches with gluten-free bread

you can find most of this stuff at a local henrys, whole foods, trader joes

hope this helps.............

Thanks so much for the reply! Quesadillas are a great idea...

We've tried a lot of pasta, and have not found any good ones...any ideas?

FWIW, the EXACT same day that my sister was diagnosed with Celiac (well, the same day as she had her endoscope), I was diagnosed as a T1 diabetic. I've since had a scope of my own, which came back negative. My dad has all the symptoms, but refuses to have a scope, because he says "ignorness is bliss"

We can't have the blood test because we are all immune deficient, so it would come back as negative even if we had Celiac.

Ok all...so my sister was diagnosed with Celiac about 3 months ago. She's gone gluten-free, along with the rest of the house, and is doing somewhat better, but not really.

We're starting to run into trouble here at home, because our meals and snack foods are starting to get old.

Can ya'll suggest some foods that are good to eat, both as snacks, and for meals (and are safe, of course).

Thanks so much, we really appreciate it.

-Jordan and Sari