Celiac.com Sponsor (A1):



Celiac.com Sponsor (A1-m):


tgrand

Advanced Members
  • Content Count

    25
  • Joined

  • Last visited

About tgrand

  • Rank
    Star Contributor

Profile Information

  • Gender
    Female
  • Location
    Houston, TX

  1. I have come across an iPhone/iPod app called Celiac Feed. It's based on user contributions which can detect your location and then suggest restaurants and stores which provide gluten free options. Please consider loading it (it's FREE!) and adding the places you trust near your home. It's very easy to make recommendations, just type in the name of place and it'll give you a list of locations from which to choose and then you can offer any comments/notes to share. I have contributed for my area of Houston and now it'll be a great resource for anyone who comes to my neck of the woods. I hope others will do the same so I and others can benefit when in your area.

    Also, another great app is "Is that Gluten Free?" Cost is $5.99.


  2. Thanks to everyone who has offered their opinion, experiences and ideas.

    Just to clarify a few things....When we took E to class, we always brought an appropriate snack for her and we would remind the child care worker (annoyingly every time) that she has food "allergies" and that there was a safe snack in her bag. The two specific incidents that occured were when they were short handed and did a switch out of people. I would drop her off with someone and remind them of her special needs. But, then we'd pick her up from someone else who didn't know her and wasn't told at the switch or moved to another room with different workers due to over crowding. I don't like these scenarios even without the food issues, but that's another problem...

    So, my husband and I met with the nursery area leader and the children's pastor on Tuesday. They were as nice as they could be - very respectful, listened to us and never made us feel rushed to get the meeting over with. I graciously explained Celiac and how it hurts E. We reminded them that she had experienced stunted growth as a result. We brought an article from GIG called "Understanding Your Student" as a reference. We also brought a copy of an article about the rising number of food allergies among kids, print outs of various resources for food allergies, such as alert stickers, bracelets, etc. AND I included a note from her doctor (not originally for them, but provided for situations in which we need to bring special food) so that they would know this wasn't a fad for us, but a true documented medical condition. We said a lot, but particularly shared MANY ideas/suggestions and so on about changes that could be made to lessen the likelyhood of future problems. We wanted some system to be implemented. There is no perfect system, but having none certainly isn't perfect either. And hey - what they were doing wasn't working. Well, all in all they shot down ALL of our ideas and said this won't work b/c of this reason and that won't work b/c of that. They said it was all too complicated and too much to put on the childcare volunteers. They want to minister to her, but they can't guarantee 100%. They just wanted to keep things as they were. As we have discussed in this thread, some are ignorant and need to learn, but some don't want to learn or change. We offered to do whatever to make it work, including training people. We would have been happy to serve in a capacity to educate teachers, create a system and so on. But, what do you do when they don't care enough to do anything? We have been overwhelmed with such a sense of disappointment and sadness. We love our pastor and his teaching, but I can not continue to take my kid into harm's way week after week. Yes, I agree with a previous poster. Gluten is poison to this family and church is the most dangerous place she goes right now! I just don't get it. I guess it comes down to not truly understanding (ignorance) AND not wanting to change or be inconvenienced. We got our answers, but not the one we wanted to hear. We wanted E to be, from the church's perspective, as valuable and as important to God as any of the other children - someone of great value who's special needs can/should be met.

    Please pray for us as we search for a new church home. I know there are churches out there that do a better job. We want to continue to worship God and hope and pray we can find a place where E will be safe too.

    Blessings,

    TGrand


  3. My nearly 3 year old daughter, E, has Celiac like me. We are also Casein intolerant. Thankfully, we are doing so much better since our diet change. I was super sick with a laundry list of symptoms, multiple vitamin defs, and Sjogren's to boot. My DD's growth was stunted and she has since been catching up.

    Anyway, my issue is with the children's ministry at my church. We have had a few issues with them since her diagnosis. They don't have a real system in place to prevent the accidental feeding of goldfish and animal crackers, other than writing it "on the board". I have tried to express the serious of this problem. (Hello! Her growth was stunted and this has been well documented with her pedi.) I have offered suggestions of how to prevent the problems. They, at one time, started to put a colored sticker on her name tag which was to indicate food allergies, but that didn't last long. This was after she was given goldfish by mistake. Thankfully, she only ate one, before they realized, but... Then, they had an end of summer party where they served hot dogs and other off limit foods. They didn't give anything to her, but now the issue was her feeling totally left out. When I found out (the day of) I gently asked if there was any way I could be informed in advance in the future about such parties and what will be served so that I can bring safe alternatives for E. They said they honestly had never dealt with this before, that E was the only kid they had EVER had that has food allergies and that they would get back to me. That was about 2 months ago. Well, last Wed night she was given animal crackers. A whole serving! God knows how many! She was gassy by the time we got home. She didn't sleep well at all that night and actually was screaming most of the time when she was awake. She hasn't slept through the night since. She's very constipated too. My husband and I were very upset, of course. I know accidents happen. I want to be graceful when people make mistakes, BUT this is serious. Thank God she doesn't have anaphylaxis allergy to wheat or the deadly peanut allergy! So, I am at a loss. I don't know what to do. In our opinion, while we need to be gracious, they haven't exactly shown any real indication that they are working to get a system in place. And doesn't everyone know that food allergies are rising among children? While I find it hard to believe E is the only one they have had to deal with thus far, I KNOW she won't be the last.

    So, I'm venting, but also I am looking for tips and suggestions. Perhaps you could even briefly share how your church handles food allergies with kids. I visited my friend's church when her baby was baptized and they didn't do ANY snacks b/c of food allergies and because it was only for 1 hour. (Aren't snacks just a time killer for them? Well, that's another gripe for another day...)

    By the way, I did find and order these wristbands online at http://allergators.com/. They are bright in color and have the words severe food allergy on them. I will use this for sure, but plan to also tell the church so they can get something like this as well for any other kids that may come under their care in the future.

    Thanks in advance!

    TGrand

    Concerned mother in Houston!


  4. I hope everyone had a wonderful Gluten Free Memorial Day. I know we did. My husband and I cooked a yummy brisket, pinto beans and I made some fried okra with organic gluten free corn meal. Oh, and don't forget my homemade strawberry lemonade and my lime coconut custard pie (casein free and soy free too!). Boy, did we eat good! Who needs hamburgers and hotdogs! Just wanted to share a successful holiday experience. I'll share the pie recipe link below.

    Now, onto the need some advice part. My daughter and I are both gluten and casein free, gluten-free since Oct 07 and CF since Apr 08. She's 2 years old. I am very involved with a Mommy and Me group that I helped to start. Well, my friends aren't very supportive, to be honest, even my more inner core group. I mean they are to an extent, but not as much as I would like. I would love to host playdates at my house, but they told me I shouldn't becuase it would be too rude to ask people to not bring their toddler's gluteny snacks to my house. All most kids eat are teddy grahams, pretzels, goldfish, crackers and I don't want that in my house b/c toddlers would get that everywhere! I just want to host our friends and would gladly provide decent safe foods for everyone. I was planning the summer calendar for the group and thought that a playdate with a kiddie pool and sprinklers would be so fun for the kids to host at our place. I thought that serving watermelon, popsickles and even those disgusting non-food and totally not good for you chewy "fruit" snacks that many kids eat to ensure several choices that are gluten free. One of my closest friends nixed the idea. Am I just so self involved to think that my 'friends" could deny themselves of gluten for 2 hours to come to our house? Is that really too much to ask here? I am really confused. There have been other comments and situations I won't go into here, like do all Celiacs have OCD, and so on. I am just wondering if I'm expecting too much from my friends or if I need to find new more supportive friends. My DD had a friend in her MDO class who has an egg allergy and her brother is allergic to peanuts. They made the school totally peanut free b/c of him. I wouldn't dream of ever going to their house and bringing peanut contaminated food over. Just wanting some help in discernment. I hate to leave this group after all I have put into it, but they make it hard for me to be a part and seem to leave me on the outside since I'm apparently obsessed with this strange diet, b/c of course I chose this for myself and our family b/c it's fun, trendy and so easy, ya know! :) But, seriously I guess it also hurts b/c I was really sick with a laundry list of health complications and still have a lot to overcome. My DD's growth was stunted somewhat and recently she grew 2 1/2 inches in just 6 weeks time once we eliminated casein in addition to gluten. Doesn't that make this serious stuff?

    Thanks to everyone who reads this post and I welcome any comments, opinions or advice on how to handle this situation.

    Lime Coconut Pie Recipe - http://www.atasteofthai.com/thai_recipe.cfm?recipeid=335

    Blessings!

    TGrand


  5. Recently, I was at Saltgrass. Won't go into the whole story, but when I told the waiter I needed to eat gluten and dairy (casein) free, he gave me a blank look. I then said, should I talk to the manager? He said, "No, we don't serve gluten here." At that very second I looked immediately over at the BEER BREAD he had just brought to the table for the rest of the group. Obviously I knew that Saltgrass is NOT a gluten free restaurant, but couldn't help but stare at the bread and be amazed at the ignorance. It's okay to not know. Haven't we all learned a lot? What's not okay is making comments when you don't actually know and with such confidence and conviction. I wonder what he thinks gluten actually is? Thankfully, I already knew exactly what and how I needed to order b/c my local Celiac group did a restaurant investigation.

    And back when my daughter and I were first dx'd, I was a member at the Y. When I took started to take her to the nursery after starting the new diet I spoke to the nursery workers about snacks. "Don't give her any snacks, only what I provide." The next time I restated this info and one of the nursery workers then asked me how I figured that goldfish have wheat. Hmm...I guess b/c it's made with flour. Yes, white flour, but wheat flour nonetheless. I already knew (pre-Celiac) that white flour is wheat flour stripped of nutrients. I've been very surprised to learn how many educated people do not know that.

    TGRAND


  6. Ok, so my 2 yr old daughter and I are gluten and casein free. Gluten free since October, casein free just recently. Our home is 100% gluten free, thus my husband eats mostly gluten free except for some stuff outside the home at work, etc. Well, he's just recently started having some health issues. Actually, I've been thinking for a while that something just wasn't quite right with him, but you know how some men are about going to the doctor. He's always sleepy/tired. So, he recently got some lab work back indicating he has osteopenia, Vit D deficiency, elevated parathryoid AND prediabetes with a 112 fasting glucose. He's always been 135lbs, but has lost about 10 lbs recently probably b/c we went low sugar, low carb. He's 32. Anyway, the endocrinologist says it's all likely due to lack of Vit D, except for the prediabetes part which he is not worried about at all. I see some potential Celiac or gluten sensitivity connections. I also know that diabetes and thryoid stuff can relate to gluten - what an interesting combination. Obviously Vit D and osteopenia can have a connection to Celiac. No digestive issues, just tired a lot. But, this could be b/c of his health issues. At the very least he's gluten lite.

    The doc said to take Vit D, come back in a month and he'll check the parathyroid and do a glucose test for diabetes though, again, he's not thinking the pre-diabetes problem is anything. I'm a little unsure about that. Any level that's out of line a little has to be due to something, ya know. But, also he's very sedentary at work.

    Sorry for all the details, just wanted to share as much as possible to get the most help from all you well informed Celiacs!

    So, do you think it's worth the money to have him tested through Enterolab just to be sure? I don't really want to spend that much money right now, but obviously I'm concerned about his health too. He has no family history of Celiac that we know of, but his aunt has had Rheumatoid Arthritis all her life.

    And please - I'd rather not hear from people who ONLY want to tell me that Enterolab is not mainstream science. I will respect your opinion, please respect mine, so don't highjack this post by dissing them. Thank you very much!

    Respectfully,

    TGrand


  7. I'll answer my own question by sharing that the plain chicken breasts and chicken tenders are are gluten, casein and soy free. Note: This does not include the breaded nuggets which I saw today at Whole Foods.

    Hey guys,

    Does anyone know if Nature's Rancher frozen chicken breasts are gluten and casein free? I'm sorta assuming they are casein free, but thought that perhaps you could inject the chicken with a solution containing gluten. I bought a bag of their frozen chicken breasts at Whole Foods last week. The bag only has an address with no phone number or website, so it's really hard to get in touch with them. I was hoping maybe someone else out there knows. Would appreciate the help!

    Thanks,

    TGrand


  8. Hey guys,

    Does anyone know if Nature's Rancher frozen chicken breasts are gluten and casein free? I'm sorta assuming they are casein free, but thought that perhaps you could inject the chicken with a solution containing gluten. I bought a bag of their frozen chicken breasts at Whole Foods last week. The bag only has an address with no phone number or website, so it's really hard to get in touch with them. I was hoping maybe someone else out there knows. Would appreciate the help!

    Thanks,

    TGrand


  9. No Costco nearby. :( I'm not really sure why as we have everything else! I could drive into Houston when I go to Whole Foods, I suppose!

    Thanks to everyone for the tips! I so appreciate you taking the time. What would we do without this forum and the internet? How did people survive back in the day with out this form of connection and all these great gluten-free products currently available? I know we have it easier than some in the past!

    TGrand


  10. This is a nice hand out from GIG called Understanding Your Student.

    http://www.gluten.net/downloads/print/studentflat.pdf

    My daughter is 2 and has been gluten-free since Oct. I have the teachers wash all the kids hands after snack and lunch. Play-Doh has not been a problem yet b/c this particular teacher doesn't like dealing with it, but they may play with it more in the 3 year old class next year. I'm planning to buy gluten-free Play-Doh then, if needed.

    Good luck!

    My 2.5 yr old daughter just officially started the gluten free diet yesterday (blood pos, bx inconclusive, now looking to see if she responds to the diet). She goes to preschool/daycare 3 days per week, so I need to review the gluten free diet with them. They usually provide her food, but I figure now I'll send in most of her food, and perhaps let her eat their fruit and yogurt if the labels look ok to me, and if I feel confident that they understand about CC.

    Any suggestions on how to educate the staff? Are there any resources or educational information online that I can print and give them with the highlights? How have any of you handled this? Without making the staff think I'm nuts and overreacting, what do I need to tell them about handwashing for the staff, my daughter, and the other kids before/after meals, etc.?

    I also know she can't use their playdough, so I'm planning to make a gluten-free version tonight and send it in. What else do I need to do to prepare for her going in to school?

    She is a very picky eater, but usually does better at school watching the other kids, so I'm nervous she will want what they have, and the teachers won't know how to best handle the situation.

    Thank you!


  11. Ok, so I have been gluten-free since Oct. Doing well on the diet, very motivated to NOT cheat. Found a great new doc in Jan who did blood work and determined that I have Iron, Vit B 12, Vit D deficiencies as well as osteopenia and Sjogren's Syndrome. Needless to say, due to my vitamin levels, I'm still dealing with fatigue sometimes. Thankfully, my doctor's office has a great (3 month) nutritional program and it's really helping me. When I do what I'm supposed to, as outlined in the plan (eat healthy and take vitamins), I feel great. I don't need to lose weight (only 112), just trying to heal my body nutritionally. Also trying to exercise at least 3 times a week due to my energy level and particularly b/c of my osteopenia (bone loss). Here's the deal. We have a 2 year old and I feel like all we do is cook and do dishes, housework and chores. I enjoy cooking and don't mind eating healthy, but by golly sometimes I just wish we could order a pizza last minute on a hectic day. I get tired of freezing meals, planning ahead and just "doing" everything. I look at our life and I don't really see where we can save time to relax and enjoy life more. Gotta eat healthy and have to eat at home mostly due to gluten issues and financial concerns. Am I the only one who gets overwhelmed with all the busyness of life now that the gluten free thing complicates the family diet? Yes life is hectic for everyone, but it's more so with this lovely "lifestyle". Does anyone have any great time saving tips for cooking or other chores for that matter? I hate doing, doing, doing around the house and then crashing at the end of the day too tired to spend time with my husband. I also want to spend more time with my daughter. Don't get me wrong, I'm not feeling like gluten-free is a death sentence or whatever. I just wish there wasn't so much work with the food and a toddler and general life stuff, ya know! Busy, busy, busy. I am a stay at home mom, by the way.

    Last night I did not want to cook. We feed my daughter a mini pizza on gluten-free bread and then he and I had rotel dip with chips. Easy? Yes! Good for you? Absolutely not! I felt like I had a brick in my tummy last night and today I feel yucky. Just wanted to share my lazy no "cooking" story. :)

    I guess I'm just having a day. Would appreciate any tips, suggestions, easy meal ideas, etc.

    FYI - I really appreciate having everyone on here to "talk" to. I don't know any Celiacs locally, so I sometimes feel alone in it. Thankfully I have a super supportive non-Celiac husband.

    Blessing to all!

    TGrand


  12. Crock Pot Chicken Tortilla Soup - very easy to make and freezes well!

    2 - boneless, skinless chicken breasts

    1 - 4 oz can of green chilis

    1 - can of black beans, drained and rinsed

    1 - can of pinto beans, drained and rinsed

    1 - can of whole kernel corn, undrained

    1 - can of tomato sauce

    2 - cups gluten free chicken broth

    1 - pkg McCormick taco seasoning

    1/2 - cup of salsa

    Put the chicken in the bottom of the crock pot and then pour the remaining ingredients on top, except for the salsa. Stir and cook on low for 6-8 hours (or high for 3-4 hours). The last 30 minutes, remove the chicken and shred it up. Add the salsa and chicken, mix well. Optional: serve over tortilla chips and garnish with sour cream and cheese.

    I was just wondering if anyone had some good recipes that I could make up ahead and freeze. Right now, all I've really got is Chili and Fried Rice (adapted from my preGF recipes ;) ). I'm primarily looking for meals so that I can just take them out of the freezer and pop them in the microwave when I'm just too tired to cook! I have a major issue with buying a bunch of groceries and then not eating them before they go bad... but all the gluten-free premade frozen stuff is really expensive!

    Thanks!

    Mandy


  13. We have a gluten free home. My 2 year old daughter and I have a sensitivity to gluten. My husband does not. Thankfully, he offered to support us by being gluten free at home. He is welcome to eat sandwiches and pizza out, but we do not have any gluten in the house at all - ever. It doesn't seem to bother him much. We eat well gluten free and he likes a lot of the gluten free alternatives - brownies, etc. I think the thing we miss the most is a really good pizza crust and he probably misses regular bread more since he likes sandwiches. I don't care about that as much. I just think it makes our lives much easier all around. I don't have to ever worry about accidental cross contamination from his food. (When he does have some out, he washes his hands, face and bushes his teeth usually). Also, he can freely share his meals with our daughter. Like I said, my daughter can't have it either, so when I go to play groups I'm a nervous wreck. Toddlers are constantly roaming around with goldfish, teddy grahams, etc. Why is it that nearly every toddler friendly food is gluten filled? Toddlers are messy and do get their food on everything. It's impossible to control. I guess you could have a mixed home, but to me it just seems like a lot of work and too much potential for getting sick. It all comes down to the family dynamics - who has it, who doesn't and how willing your spouse and children are in switching. I'm glad my daughter is young. She doesn't have much say AND she is just naturally adjusting her tastes.

    Good luck in your decision!

    TGrand

    I have been on a gluten-free diet for 4 months, and my bloating has disappeared. Although my skin is much, much better, I can't seem to completely clear it up. I'm sure cross-contamination is to blame, but I don't know whether to blame the products that I buy or the messes that my children make. (It is probably some of both.) Is it possible to still have wheat products available in my kitchen for the other four family members who aren't celiac? I would love to hear how others have dealt with this.

    Thanks.


  14. Hey guys,

    My daughter is gluten free and her class mate at Mother's Day Out is Egg Free and Peanut Free. The rest of the kids are "normal". He He Can anyone help me with a yummy toddler friendly gluten free, egg free, peanut free dessert recipe? They are having a Valentine's party for her 2 year old class soon and her teacher asked me to try to find something everyone could eat.

    Thanks in advance!

    TGrand :)


  15. Maybe you are expecting too much. Just realize that they DON'T understand, and buy your own food when you get there. For five days you could probably get by on simple foods that would not take too much to prepare. I cannot imagine that your dad and stepmother would refuse you access to the kitchen. Perhaps by seeing how important this is to you, they will be more willing to help next time.

    The food for Celiacs is so expensive that I think a lot of people are shocked when they find out. If I were you, I wouldn't take they refusal to buy that kind of expensive food too personally. If they are on a fixed income, it could be a true hardship for them.

    It is very difficult for people who don't get as sick from eating as we do to understand and comprehend what Celiac is all about. Many are unable and unwilling to believe how serious this is. This sounds like a perfect opportunity for you to explain how serious Celiac as an auto immune disease is. Tell them about all the illnesses that can develop because your immune system is compromised every time you eat gluten.

    My situation is different than yours: all my family members have seen how sick I get when I eat "normal" food, so they are bending over backwards to accommodate both myself, my two daughters and my granddaughter. For Thanksgiving, my oldest daughter and I are bringing turkey, desserts and salads - there will be about 20 of us for dinner, and I really don't mind buying the non-gluten foods that the five of us will need. The couple hosting the dinner have also in the past done all they can to help. However, the big difference between my situation and yours may be that my whole family has seen how sick I have been most of my life because of having been an undiagnosed Celiac for over 50 years.

    So if your dad and step mom have not seen how sick you get when you eat gluten, that could be part of the problem.

    Don't give up, though. Think of how you can use the five days with them to educate them about one of the most under diagnosed serious illnesses around.

    I hope you have a very happy holiday! :)

    Thanks for your post. I appreciate you taking the time!

    Yeah, I know gluten-free food is expensive. Believe me. I told them that from the beginning, but they insisted. I offered to pay them for what they have bought and also to buy what remains, but they are making a thing of it. Our plan all along was to just buy and prepare our own food. They've just made it bigger than it has to be which is nothing new in regard to our usual disputes.

    Good point about them not seeing me get sick and how that impacts their perspective. They live in another state and we only see them a couple times a year. They know I have been sick, but it's not the I'm puking my guts out, near death stuff that really communicates and is clearly visible, ya know? I have been extremely fatigued, had joint pain and stiffness, pleurisy, mouth sores, purpura, and also have Osteopenia and Sjogren's syndrome. These are mostly unseen (not physically detectable) symptoms. So, I guess that makes it hard for people to get....


  16. Ok, been gluten-free since Oct 18th. Doing great. Husband is totally supportive and we have a total gluten-free house. It's my husband's dad and step mom! We've ALWAYS had problems with her. They just don't listen and are so difficult to communicate with. She's controlling, an alcoholic and directs everything her way. .

    Well, we are going to visit them in another state next week. I cannot tell you how much I dread this trip. It's definitely going to be my gluten free low point thus far...Will be there from Sun evening through Friday morning. When we first told them, they assured us they'd do everything to help and support us. Told me - "Send us a list! We'll get whatever you need at the store. If you aren't comfortable eating something you won't hurt our feelings., etc..." While I was unsure (b/c of past issues) I wanted to try to believe they were wanting to help. It's a long story and I won't go into all details, but they changed the menu I sent them. "We don't want to eat tortilla soup!, she says" They changed meal options without even calling me to ask or seek advice on what's safe for me. They just want to serve me potatoes for every meal while I want to eat nutritious yummy food. My body needs it! She was also trying to make me feel guilty and like a burden and just overly demanding. I think they didn't realize it was going to cost so much to get my specialty items or something. We never asked them to buy the stuff! They offered. Now, we are trying to offer to pay for the rest and they won't let us, but making it clear it's inconvenient and a bother. I hate these stupid games. Also, she was starting to question cross contamination today and was making comments about how silly it was that we bought new pots and dishes. She doesn't get the concept of gluten, cross contamination, etc. She has said stupid stuff like, "oh, we always get low pulp orange juice!", like that makes it gluten free!, "the squash casserole only has a few breadcrumbs in it." and so on. I know she doesn't understand and was planning to prepare my own food. Why couldn't they just buy the stinking food and let it be? Why did they ever offer? I feel she was just looking for another opportunity to mess with me.

    Please help. Very discouraged....

    TGrand :unsure:


  17. I am not sure I am posting in the correct spot- as I am not diagnosed as having celiac. However, I have ulcerative colitis and a whole host of other autoimmune diseases. I have read the book "The Gluten Connection", and have decided to put myself and the rest of the family (dh-35 and suffering from sarcoidosis and ADD, ds- 8 poss. ADHD, and dd 7- she has gastrointestinal difficulties- very irregular) on a gluten free diet.

    I am in the middle of a flare-up that is not responding to steroids (I am on 40mg of prednisone a day), and was hospitalized two weeks ago to try to get things under control (to no avail).

    I hate to say it, but all of my eggs are in this gluten free basket, and I am very dedicated, as I want it to work so badly!

    I have shopped and prepared, and tomorrow is the day we are making the switch that I hope will change our lives for the better.

    I would appreciate any words of wisdom from those who have similiar situations, or who could direct me to the correct place to get advice.

    Thank you in advance-

    Lori

    Welcome to the club! I have been gluten free for just over two weeks. I also recently read "The Gluten Connection". Over the last 9 months I have been dealing with Sjogren's Syndrome (an autoimmune disorder), plus I have ostepenia. My main symptoms were extreme fatigue, joint pain and stiffness, muscle pain and aches and some other random things. Within 3 days of going gluten-free, I felt like a new person. I was officially dx'd via Enterolab and my cousin has Celiac. The key is to do this 100%, especially since you are basically trying to self diagnose via the elimination diet. You must be sure everything you eat is gluten free (when in doubt, don't) and be sure to avoid cross contamination (CC). You can read several past posts about CC on this forum. Also, many lotions, soaps, etc have gluten. Check that. It's very overwhelming to get started, but you do have to check stuff before you eat it so you can make sure your experiment is error free! One thing that really encouraged me my first week was to have a great gluten free meal at Outback (yes, they have a great gluten-free menu) and I also made rice krispy treats with Cocoa Pebbles. Cocoa Pebbles are gluten-free, as are Kraft marshmellows and whatever gluten free butter (Land O Lakes) or margarine you wanna use. They are better than the ones made with real rice krispies (not gluten-free, by the way) in the opinion of my husband and I. If you think of any specific questions, let us know. We'll try to help. As someone else said, Great value Brand at Wal-mart clearly labels their gluten free items. My local grocery store, Kroger, posts their Kroger brand gluten free list on their website. Whole Foods does this too. Get ready to research a lot online and via the phone to manufacturers. OH, and one last thing...sorry. Another great "normal" gluten-free meal is tacos. Old El Paso brand of taco shells and their beans as well as McCormick taco seasoing are all gluten-free. Obviously, the fresh lettuce and tomatoe are. Get some gluten-free cheese are you have a great meal. We live in Texas so we love to have a weekly taco night. So glad to have something familiar!

    Best of luck to your family!


  18. Hey guys,

    I have been gluten free for almost two weeks and feeling great. I was wondering if anyone could point me to any info or articles online that I can give to my family. The holidays are coming up and I'm pretty anxious about traveling. I don't think my family really gets the whole cross contamination thing. Does a little gluten really do that much damage? Yes, apparently! So, I thought it would be helpful to me if I could find some sort of hand out to give them, that I did not personally type, which clearly expresses the importance of being strict and preventing CC.

    Any other tips, sites, articles would be helpful too. Still have a lot to learn!

    Blessings,

    T Grand


  19. I'm a newbie, just dx via Enterolab. I'm making the transition fine, except for not knowing how far to go with decontaminating my kitchen. We bought many new things, except not new dishes or pots and pans. Do I truly need new pots and pans? What about my old plates, bowls. etc? I want to do this right, but don't want to go overboard as it's causing financial strain. I seem to be getting mixed messages about what you can keep or need to replace.

    Thanks!

    TGrand

    1. Make sure you buy new pots and pans and a toaster, serving spoons, etc.

    2. (This was already kinda mentioned but...)Don't let people tell you it's not worth it. As much as you are going to seem like a PITA, you and your health are worth it! Do NOT let anybody tell you otherwise!

    3. Enjoy all of the excitement when you make a new gluten free dish and it tastes good!! :) And, don't be too disappointed if stuff turns out bad! :o

    Kassandra