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Trillian

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About Trillian

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  • Gender
    Female
  • Interests
    Gluten-free since September 19, 2007
  • Location
    Colorado
  1. Thanks to everyone for their information/opinions! This board has been so informative, and entertaining at times, too. I am loading up on yogurt. I couldn't digest it a few months ago, but things seem okay now. Unfortunately, I did get a yeast infection from the antibiotics. I should just ask for a prescription to counter that when they prescribe me the antibiotics... I forget every time.
  2. My blood and biopsy tests came back negative, but my GI doctor confirmed Celiac based on my positive reaction to the Gluten-Free diet. Since you've obviously had a positive reaction to the diet, and have been on the diet long enough that you'll probably get a false-negative on the biopsy, you may want to consider not doing an expensive, invasive procedure such as an endoscopy. I think it's a personal issue whether or not you're comfortable with a diagnosis without a biopsy. Also, your doctors may not be comfortable with a diagnosis without a biopsy. The more I read here on the forum, the more I realize how lucky I am that my GI doctor and PCP have been supportive of my diagnosis regardless of the negative blood and biopsy results. I guess you just can't know what to expect. If you read posts here on the forum, you'll see that doctors are all over the board on this. Good luck.
  3. 5'6" and shrinking (go get a bone density test!)
  4. Can anyone tell me what probiotics are for? I've read conflicting things, such as take them all the time, take them when you are on antibiotics, every few days, after getting glutened... I've read that you should get the freeze-dried kind, not the kind you keep in your fridge. I've read that you can also get them in yogurt. But, most importantly, I don't know what they are or what they are for. I'm wary about vitamins because doctors ride the fence on whether or not supplements work. Should I take probiotics? (BTW, I'm on antibiotics now for a staff infection) More importantly, what are they?
  5. I've also found the opposite. I've always been a super picky eater and now I find that I'm eating foods that I always avoided such as onions, red meat, and lettuce. Maybe its due to necessity? My options are much more limited now. I've also started grimacing when others eat chips and even cookies! When I started the diet 2 months ago, I was so upset about not being able to eat my daily dose of oreos - now I don't care and I don't even crave cookies. Weird because I've forever been a junk-food junkie. Bring on the fruits and veggies!
  6. I've never found pre-packaged gluten-free bread that's good. In fact, it's awful! You'll probably have to make home-made food if you want to eat gluten-free bread that tastes good - even the boxed kind that you mix and bake is better than prepackaged.
  7. Have you contacted your doctor? An allergic reaction isn't something to take lightly.
  8. I have this too! It gets worse when I wear rings, so I haven't been able to wear my wedding ring in 4 years. It used to be on one finger, now it's on 2 of them (different hands). My doctor calls it contact dermatitis, but the creams never help. I did notice that it got a lot worse when I did my gluten-test last week. That confirmed my theory that it's connected with my stomach problems. Maybe after a year of gluten-free it will clear up and I can wear rings again? Crossing fingers.
  9. In addition to a food issue, it sounds like an anxiety attack, panic attack, or allergic reaction to me.
  10. Your fractures and iron deficiencies can be direct effects of celiac. You should get a DEXA scan to check for bone-density, and get your iron and feritin levels checked. Since you've had 3 fractures, you probably have osteopenia or osteoporosis. I was diagnosed with osteoporosis (3 fractures in 3 years) and anemia first, and because of them, I found out that I have Celiac. Osteoporosis and anemia are common problems for people with Celiac and should be monitored by your doctor.
  11. Another idea about baking and items that come out flat with items that include baking powder... When mixing the wet and dry ingredients, do not overmix and get the pan into the oven as fast as possible.
  12. Both my blood tests and biopsy came back negative, but they were false-negatives! My doctors confirmed celiac based on my positive reaction to the gluten-free diet. I had terrible gastrointestinal side effects from food, and was misdiagnosed for years with gerd, hiatal hernia, etc. I was on medication for these, but they never seemed to work perfectly. You may find that your esophagus heals with this diet and you won't need meds. There is convenience food for gluten-free diets, but it's expensive. gluten-free frozen food like pizza and mac and cheese. I love my gluten-free cookbooks! I couldn't survive without them. Plus, there are a ton of recipes on this website. Like I said before, make lots and lots of left overs so you can use those as convenience food. You'll get used to fruit and veggies. I never, ever used to eat them. But now, 2 months into the diet, I'm starting to like them (gasp!). And I'm eating red meat, something I rarely did before. But since I had to reduce my consumption of boxed, canned, and take-out meals, I had to widen my fresh-food options. By the way, there are lots of dry cereals available that are gluten-free. I love that!
  13. I've only been gluten-free for 2 months, but I hope this might help you with your worries over money. Before I had to start eating gluten-free, my family of 4 (me, dh (husband), ds (son), and dd (daughter)) ate out a lot, and ate a lot of convenience foods like boxed hamburger helper, au graten potatos, frozen pizzas, crescent rolls, canned food, potato chips, pretzels, etc. When I found out that I had to stop eating gluten, almost all of those things had to stop. It was a shock to the system and our wallet. We tried to replace all of that stuff with gluten-free versions, but it didn't go over well because the gluten-free versions tasted like CRAP (the kind we bought, anyway) and was so expensive. What we have found, over the last few months, is that we are buying fresh foods and cooking from scratch. I was a terrible cook before, but I'm learning. We've had to go through some rough meals, but we are troopers. Buy fresh fruits and veggies (prepackaged salad is expensive and comes in small quantities). Hamburger and chicken and fish. Potatoes. Rice. Those aren't too expensive. Remember, you aren't replacing the old food, you are changing the way you eat. At first it was SO SO SO hard! My body went through withdrawals and I cried every time we went grocery shopping. Cooking is a chore. I have to plan meals because I can't get up and grab something to take to work for lunch. Make lots of leftovers. I'm still having a hard time. Yesterday I had a crappy lunch because there was nothing in the house - I brought a can of manderine oranges and an apple to work. :-) Good luck. I'll be the diet will help you a lot.
  14. Mine took a week. My doctor didn't order all 5 of the blood tests, though. She only ordered 3 and they came out with a false-negative. I've read on this forum that it took some people a month to get their results! Keep calling if it takes longer than a week.
  15. I know that people say not to do this to yourself, but people on this forum talk about their symptoms after being glutened and I thought, "I wonder what my symptoms would be?" I never had diahrea before I went gluten-free, but I had awful GI distress and constipation. I read on the forum that people had terrible diahrea when they got glutened after being gluten-free for awhile, so I expected that, but I still didn't have it, I got constipated again. In fact, one of the best things I noticed after going on the gluten-free diet was that my bm's got normal. I expected my reactions to last a few days. I didn't expect new reactions to appear days after I glutened myself! I wonder how long this will last? I've heard that some people take days-weeks-MONTHS to get over a glutening. Here's my reaction to my intentional glutening (remember that this is HIGHLY subjective. I've read posts from lots of other people who've had completely different reactions) I ate a sandwich on white bread and a Special K bar on Thursday morning: Immediate symptoms (Thursday) Felt nauseous right away. I got a rash on my inner thighs. headache no bm (constipated) Day later (Friday) eczema on face rash on legs worse irritable no appetite constipated runny nose - hay fever symptoms cotton mouth distended belly 2 days later (Saturday) tired (slept 12 hours) constipated eczema spread to neck little acne on forehead rosy-red nose rash on legs run-down looking/feeling (son said "you look aweful!") cotton mouth hay-fever symptoms distended belly 3 days later (Sunday) tired (slept 10 hours at night and 3 hour nap) little acne on forehead rash on cheeks rosy-red nose constipated eczema rash on legs run-down looking/feeling distended belly 4 days later (Monday) moderate acne on forehead rash on cheeks rosy-red nose constipated eczema itchy scalp rash on legs joint pain distended belly 5 days later (Tuesday - today) BM Finally! headache moderate acne eczema rash on legs (going away) pale/circles under eyes distended belly
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