Celiac.com Sponsor (A1):


Join eNewsletter


Celiac.com Sponsor (A1-m):



Join eNewsletter

Offthegrid

Advanced Members
  • Content Count

    187
  • Joined

  • Last visited

1 Follower

About Offthegrid

  • Rank
    Star Contributor

  1. It took me 3 weeks to start to feel better, but then I still had symptoms, sometimes severe. I originally just thought I was getting glutened, but it turns out I'm casein AND soy intolerant. It took a long time for me to figure out soy as a culprit.

    My next bet for you would be to eliminate all dairy to see if that helps. You can then reintroduce dairy later to see if you can tolerate. For some, if they go off dairy and gluten for 6 months they are then able to eat it again.


  2. Sorry you are nervous -- good luck tonight!!!

    My mom says she has IBS, but I personally believe it is gluten and dairy intolerance. (She refuses to be tested or to go off gluten to try it. Says there's no way she can give up bread. But that's another story.)

    ANYhow, I've read that it's rare for celiacs to have IBS, but I'm certainly no expert. After going gluten-free and finally being strict about it, I still had tons of symptoms. I kept assuming I was getting glutened from something. After much trial and error, I've finally figured out that it's casein and soy intolerances. Who knew?

    Could you possibly have other food intolerances?

    That said, people do feel sick from time to time. I always assume gluten, but maybe there are times when you just get a bug or something.


  3. It can be really hard. I had a tough time sticking to the diet for quite a few months after diagnosis. What happened to me is if I accidentally got glutened, I figured it wouldn't matter if I ate some, and then I'd eat some the next day and it was a spiral.

    You just gotta make it a few days, and you'll start to feel better. Then you won't crave it so much. I have no desire for a sandwich anymore.

    Substitute some of your favorites and make sure to give yourself some treats, too, so you won't feel deprived. If you're craving bread, how about making some gluten-free banana bread or corn bread? These are very, very simple and can help with that. Plus warm banana bread fresh from the oven tastes way better than a sandwich.

    You can do this!


  4. I think I finally got it down. This was my fourth attempt at making a pie that wouldn't make me sick because I wasn't sure that soy was the culprit.

    I am so happy!

    So.... here's how I did it in case any one else needs to make a GFCFSF pumpkin pie.

    Crust:

    1/2 cup tapioca starch

    1/2 cup potato starch

    3/4 to 1 cup rice flour

    1/2 cup coconut oil

    Pinch salt

    1 to 1 1/2 tsp. xanthan gum

    3 eggs beaten, with 2 tsp. vinegar

    I added a bit of sugar, too. Maybe 1/4 cup

    Mix all together using a pastry blender if you have one. I used a fork. Or you could probably use a food processor. Chill for an hour.

    Once chilled, roll it out or press into pie pan. I greased mine with coconut oil.

    For the pie, I followed the pie recipe on the pumpkin can, but used coconut milk instead or dairy. I followed the baking directions on the can.

    YUMMY!!!! I'm going to get a second piece. I can't wait for Thanksgiving now.


  5. First sign is "brain fog" -- feeling like I'm floating, not with it, extremely tired

    Second sign is typically tingling/numbness in my arms and legs at night

    Finally some trips to the bathroom

    Gas and bloating

    Same things if I eat soy or casein, but I don't typically get the tingling/numbness with those.

    Edited to add: severe insomnia. I had even had a sleep study for this. Just could never fall asleep and felt tired ALL THE TIME. Sometimes I'd literally cry I felt so tired. Also fueled severe depression. This has gone away 95% of the time.


  6. OK, after accidentally eating something with soy this weekend (stupid mistake!) and getting sick, it's so obvious now no soy. My hubby is frustrated because so many of the meals/recipes we had worked on to be gluten-free have soy in them.

    I've read that if the villi heal, you may be able to eat these other foods again.

    Has anyone actually ever had that happen -- or know someone that actually had this happen?


  7. I've heard some supposedly gluten-free people say I could eat Rice Krispies. I responded absolutely not -- it has malt in it. Some people are just clueless, or are not dedicated enough to follow the diet.

    It is *really* hard to begin with. Everyone says that, and I know it's no consolation, but it really will get easier. I don't even crave bread any more. Pizza is the food I miss the most, but you can make it yourself or check out Amy's pizza with the rice crust. Add your own toppings and you're good to go.

    First, be patient with yourself. Don't drive yourself crazy. You'll probably become paranoid in the beginning. Learn to relax. You can do this.

    Second, recognize this is really hard. No one that has to do this will truly understand. People will say stupid things, like, "Can you have potato bread?"

    Third, it's much easier to simply explain this to people that you can't have anything made with "flour." Waiters understand that. They don't understand gluten.

    Also you're going to learn to be a good cook/baker. It took me a long time because before going gluten-free, my cooking was Hamburger Helper. Now I make delicious chicken, mashed potatoes from scratch, and tonight I'm even trying a gluten-free, dairy-free, soy-free pumpkin pie. Who knew?

    Here's the simplest cookie recipe in the world to get you started. They're great! Literally you can make these in under 30 minutes.

    Preheat oven to 350.

    Mix in a bowl with a wooden spoon or plastic spatula:

    1 cup peanut butter

    1 1/3 cup sugar

    Tsp. vanilla extract (get the pure stuff not the immitation; that should be gluten-free)

    1 egg

    Roll into the size of a walnut and depress with a fork in a criss-cross shape.

    Add a Hershey's Kiss if you can eat dairy.

    Bake for 12-18 minutes until done. Cool before removing from pan.

    Also, you can make your OWN donuts, too, using Pamela's pancake mix (which is delicious, BTW). Check out their recipes. You can order this mix from amazon .com if you can't find it in your local store.

    Lastly, it should take you about 2-3 weeks to start feeling better after going gluten-free. If you are stlil not feeling better, or at still getting sick sometimes at random and you've been careful about gluten, then you may also have some other food intolreances. I was eating lactose-free stuff, and still getting sick. There is a protein in milk called casein that many celiacs/gluten intolerant folks can't have. It turns out I also can't have soy.


  8. I've just started to go soy-free, and discovered every dressing in the fridge has soy oil in it. What's up with that?

    Anyhow, I'm ... um ... incredibly embarrassed to even ask this ... but if you do simple olive oil and vinegar, what type of vinegar do you use? And do you mix it 1:1 with olive oil?

    Also, does anybody have a soy-free, casein-free recipe for a mustard-based dressing? I *love* mustard and was thinking that it could be made into a dressing fairly easily with some oil and possibly more vinegar?

    Thanks,

    Susie


  9. Re: weddings. We are getting married in February, and we are having the reception at a fire hall to save money. Well, guess what -- they don't put anything on the meat, so that's already gluten-free. The salad will just have croutons on the side, and I will have a box of gluten-free croutons for me, my brother and my aunt. We have a gluten-free cake maker. Virtually everything there will be gluten-free! I believe we may still serve rolls, but I will make sure they have a butter only for my brother and aunt (they will be at different tables) so that their butter doesn't get contaminated.

    Now, onto people saying it's "easy" ....

    I had people tell me it would be easy, and that was maddening. Absolutely maddening. I know they were trying to be helpful, but it was so infuriating because I just wanted to rattle off all the foods I could no longer have. Yeah, I'd like to see any one of my friends volunteer to do gluten-free for even a week to see what it's *really* like.

    I was just miserable for months. The sight of someone else eating a cookie was make me want to cry at times.

    But I'm finally getting over it. I mean, I know how to make delicious gluten-free cookies. I can cook. My world isn't over. And there's still gluten-free goodies I can eat.

    Hang in there. We're all listening and we all know what it's really like. No one else can. And if someone tells you it's easy, challenge them to go gluten-free for one week.


  10. For those of you who avoid gluten, casein and soy and take calcium supplements, what brand are you using? I checked yesterday, and the calcium/D3 I take has soy in it, and I just bought it recently.

    I know GNC has calcium/D-3 that is GFCFSF, but my hubby insists GNC waters down the vitamins. I don't know how much I believe that, but I also don't want to spend 3 hours at the store trying to pick out a supplement.


  11. The spaghetti sauce is actually a department store brand -- Wegmans. It just has this most delicious taste that I've never had in a spaghetti sauce. I'm sure I can find some soy-free substitutes, but this one just really stinks because it's soooooooo good.

    OK, are there any potato chips that are gluten-free, casein-free and soy-free? Lay's has those sunflower chips. Are those OK? I'm just looking for a new late afternoon snack other than fruit, which I eat for breakfast. I've also been using potato chips when we're out and have to grab a quick bite to eat for Thomas. It makes it so much easier to pass up on french fries.

    Also, what oil would you use at home for frying? Vegetable oil has soy in it, right? Peanut oil?