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Everything posted by Terbie

  1. I bought the product at a huge chain grocery store (Ralphs) a few months back before I knew that you really shouldn't use beauty products that aren't gluten free. I hadn't used it yet. Counterfeit? Geez, that would be a twist! I figured that they just changed their phone number. Aveeno makes that product because the woman on the phone knew what I was talking about, so at least that's true. All I know is, I wanted to post my experience just in case people were searching online about Aveeno because what they said on the phone doesn't lead me to believe their product is safe and I wanted people to know. Plus, mixing up parsley and barley would be really amusing if it wasn't so dangerous. The woman was SO sure that she knew what she was talking about. Sigh.
  2. I just got off the phone is an Aveeno customer service representative and I am completely pissed off! I asked if a particular product is gluten free and she said that it is. Then I asked if it contained oats (because lots of Aveeno products do) to see if there might be a chance that I would get glutened from the oats and the woman said that she didn't know. Then, I asked if there oats were certified as gluten free and she had to go ask her manager. She came back and said that their products are only tested for wheat. She said that their oats and parsley aren't certified gluten free. Parsley?!? Huh? I doubled checked that I heard her correctly and she said yes. That the only thing that they test for is wheat, NOT GLUTEN. How is your product gluten free if you don't test for it?!? Answer: "Because we say it is." Excuse me?!?!?!? Not only that, the woman started lecturing me on the fact that I need to educate myself about gluten because it's found not only in wheat, but also in parsley!!! Parsley?!? I said that gluten is found in wheat, barley, and rye, not parsley. I also told her that wheat free and gluten free are NOT the same thing and that they shouldn't tell people that their products are gluten free if they are only wheat free because that could seriously hurt someone. She said that I needed to educate myself more on gluten because I obviously didn't know what I was talking about. WHAT THE?!? PLEASE contact the company with me and demand that they stop telling people that their products are gluten free when they really only test for wheat in their products! Here is their contact info online: https://www.aveeno.com/contact-us.jsp Also, don't try the number on the back of your Aveeno product. I called it and person on the other line said, "Hi, this is Universal Studios." I called again to double check and behold, the number on the product is wrong. Here is the correct number I got off the website: 1-877-298-2525 Stop using all your Aveeno products! Even if they said that they are gluten free because apparently they don't actually test for it!
  3. I recently contacted Minute Maid about their juices, here is their response, in case this is helpful for anyone. ~+~ Thank you for contacting The Minute Maid Company. We appreciate the opportunity to address your concerns. We are able to confirm that Coca-Cola classic, caffeine free Coca-Cola classic, Coca-Cola Blak, Coca-Cola Zero, Barq's root beer, caffeine free Barq's root beer, diet Barq's root beer, diet Barq's Red Creme Soda, Diet Coke, Diet Coke with Lime, Diet Coke Plus, caffeine free Diet Coke, Diet Coke Sweetened with Splenda, Sprite, Sprite Zero, Vanilla Coke, Vanilla Coke Zero, cherry Coke, Diet Cherry Coke, Cherry Coke zero, Fresca, Fanta Grape, Fanta Orange Zero, DASANI, DASANI Lemon, DASANI Plus Refresh + Revive, DASANI Plus Cleanse + Restore, Full Throttle Mother, FUZE, NOS, Rehab, WATERPLUS, Minute Maid Light Lemonade, Minute Maid Active Orange Juice, Minute Maid Multi-Vitamin Orange Juice, Minute Maid Juice Bars (Orange, Cherry, and Grape), Nestea Sweetened Lemon Tea, Diet Nestea Lemon, Nestea Citrus Green Tea, Diet Nestea Citrus Green Tea, Nestea White Tea Berry Honey, Diet Nestea White Tea Berry Honey, Nestea Lemon Sweet (hot fill), Gold Peak Lemon Iced Tea, Caribou Iced Coffee, Enviga Sparkling Green Tea, Enviga Berry Sparkling Green Tea, Simply Apple, Simply Grapefruit, Simply Orange Juice Country Stand Medium Pulp with Calcium, Simply Lemonade, Simply Limeade, POWERade Mountain Blast, POWERade Grape, and our 100% juice products (without added ingredients) are gluten free. Additionally, we can tell you that all of our other products meet Codex's definition of gluten-free, which is currently less than 200 ppm (parts per million) (0.02%) gluten. Codex is in the process of reviewing this standard and we are monitoring the progress closely. At this time the U.S. Food and Drug Administration does not have a regulatory definition of gluten-free. We can assure you that the exact amount of gluten in all these other products is very low - perhaps even zero. Some minor ingredients in these products are manufactured from plants that gluten-sensitive people could react to, so we are unable to state categorically that they are totally gluten-free even though they may have undetectable levels of gluten in them. The Codex guideline provides a very low threshold for gluten content. However, extremely gluten-sensitive individuals should discuss consumption of these products with their health care provider. We hope this information is helpful. If you have additional questions or comments, please feel free to contact us again. Chicquilla Industry and Consumer Affairs The Minute Maid Company
  4. I do know that it doesn't matter whether or not you are allergic, intolerant, or celiac you have to go on a gluten free diet. Honestly, I wish I had known more (or that my doctor had) and I would have gotten a biopsy, just to see the results. Now that I've been on a gluten free diet for so long, the test won't be accurate anymore. I've afraid that you'll have to stick to a gluten free diet, especially because so little seems to really be known about them. It all seems so complicated and there don't seem to be that many answers. Sigh. But, at least the gluten free products have gotten better in a very short amount of time and more people seem to know what gluten is!
  5. Try Dove and Neutrogena. I've contacted the companies before and they have gluten free products. Just search for them on this forum. Neutrogena even emailed me a list of their gluten free products.
  6. I've been on the gluten-free diet for almost a year now after visiting my doctor. He did the blood test for celiac, which came back 'negative'. I don't have the specific numbers from the blood work. He told me to do a food diary and when I brought that to him, he said that I was "gluten intolerant" and to go gluten free. I had several symptoms beforehand (stomach cramps, constipation, brain fog, extreme fatigue, depression, lost 10 lbs in a week, etc). Now, that it's a while later and I'm much more educated about gluten intolerance and celiacs, I'm not sure which I really have. I know that you can have false negatives on the blood test. I've definitely been strict about my gluten free diet because I feel SO much better and my symptoms are basically gone now (except with accidental glutenings). So what should I assume that I have: gluten intolerance or celiacs? I don't really know what to tell people. I just say that I'm 'gluten intolerant' but I'm starting to really wonder if I have celiacs. Several family members have also gone on a gluten free diet and their ailments are gone, as well. I still get conflicting information on the difference between the the two. I still can't figure out what specifically happens in your body if you are gluten intolerant and eat gluten. My understanding is that gluten intolerance means your body can't digest gluten (not sure how though) and celiacs produces antibodies in your intestines which damage the villi. Can anyone shed some light on this? I looked at past posts, but I'm still confused.
  7. This is my favorite! Everyone always wants to eat all the expensive gluten-free dessert that I bake. I want to say, "Hey, I just spent $8 and two hours of my life making this! Go buy yourself some Oreos!"
  8. There is actually a section on the gluten-free forum that deals specifically with pregnancy. I would post there first because they have the most experience. Hope that helps, that's all the info I have on the matter!
  9. Well, it looks like I'm not the only one, so that makes me feel good (I guess...). My friends keep pointing them out to me and ask if I want them to pull them out. I told them, "No! I earned those gray hairs so they are going to stay there!" I have to admit, I did check my ears and there are no lumps. Maybe one day.
  10. Glad that I'm not the only one! I see. I didn't realize that I had done anything worth flagging. Sorry!
  11. People are starting to point out that I'm getting a few gray hairs and I'm only 24. No one else I know my age is experiencing this problem. Could it be related to celiac because of the years of malasorbtion? I've been a gluten-free diet for about a year now. Any thoughts as to why this might be? No one in my family has a history of getting gray hairs before their early 30s. Thanks!
  12. I have similar problems too! Does anyone know of a good brand of Melatonin to use? It seems to be the most recommended thing in all the sleep related posts. Are their any restrictions in taking it? Should you eat with it? I also notice lately that I've been waking up and all of my muscles are really tense, so much so that it's hard to move. I'm only 24, should that be happening yet? I'm wondering if I tense all my muscles at night so when I wake up they are hard to move. Any thoughts?
  13. I had a very similar problem when I went of to college and lived in the dorms. What I found helpful was to go to bed and wake up at the same time everyday. Sleep in college is so erratic that it messes with everyone's sleep cycles. Once I started doing that, I slept much sounder. Also, getting outside and exercising helped me a ton. I think a lot of the problem for me was that it was a complete environment change for me (quiet at home to loud in the dorms, good food at home to bad dorm food, low stress at home to high stress in college). It took me a year to adjust. I also moved to a quieter dorm and that helped out tons. Oh and don't take tylenol PM like someone said in their post. I did that in college and got slightly addicted so it was hard to sleep without it. Plus, it contains gluten and is harsh on your stomach if you take it every night.
  14. No one has really mentioned this, but how about the idea of cooking your date dinner instead of eating out? How impressed would a girl be if you offered to cook dinner for her instead of take her out to eat. Major brownie points! My boyfriend and I pretty much always cook food together now for our dates and it's turned into one of our favorite activities. We rarely eat out anymore because I get cross-contaminated too easily. Just a story of hope: my boyfriend and I started dating before I found out that I had to go on a gluten-free diet. He would even take me to doctor's appointments. I agree with everyone else, if a person isn't willing to make changes in their life based on your food restrictions, it isn't worth it. Going through the whole experience of being sick has made me realize who my friends really are and how much they care about me. Think of it this way, you'll probably end up with a better person than you would have than if you weren't celiac! It weeds out all the people who aren't worth your time. As far as the whole genetic thing goes, I completely understand how you feel. I worry about the same thing, but I think that's common for anyone who has medical issues. Plus, my boyfriend says that the good qualities I pass down to my children will have will overshadow their inability to eat wheat. So try to keep in mind that you are worth more than your medical issues!
  15. On my last post, I noticed that my name ID tag (for the lack of a better name) said "Warn 33%" next to the little green boxes. Does that mean something bad?
  16. I've yet to find anything that "speeds up the process." I just tell myself that it will be gone soon and try to do as little physical activity as possible. If you find out anything that makes you feel better, please let me know! Sorry I can't be of more help.
  17. My friend made me a gluten-free pie recipe. When I made it, it was honestly the bet pie I've ever had. Thought that I would share the love: Sophie's Blueberry Pie
  18. I just called their member services number: 800-774-2678. The woman on the phone wasn't very helpful. She said that they don't have a list of gluten-free items. I asked if they had any frozen fish that were gluten-free. She said that the only help she can give is requests about one specific food item at a time. Also, you need the product number of the item for them to be able to help at all. IF I can supply them with that information, then they can send in a request into the products department and in five days they might be able to tell me if the item contains gluten or not. Needless to say, that's not very helpful. I also sent in the same request in email form so we'll see if that produces better results. I read on the Celiac in San Diego website that they are starting to label their Kirkland products "no gluten". Here's that website: http://www.kintera.org/site/pp.asp?c=ewK0L...=1290457#costco The woman on the phone couldn't verify that information. I have to admit, this is the first unhelpful experience of customer service I've experienced at Costco. Everything else has been great.
  19. What is candida? I've never heard of it and I'm having a hard time finding it's symptoms online. I eat mostly mexican food and eastern asian food now that I don't eat gluten. I think it happens more when I eat asian food, so it might be related to soy or some sort of a asian spice. How does one figure out if they have a deficiency? Do you just start taking vitamins and see if it helps?
  20. I'll do a food journal and see what that says. I know that I had a pretty bad reaction to when I ate tofu with Thai Kitchen green curry with rice. That's the worse one I've had so far, but I eat tofu and rice all the time and I've never noticed it to be a problem. Do most allergies or reactions take a day or two to take effect?
  21. Hi everyone, I'm gluten intolerant and ever since then, my mother has wondered if she is too. She decided to go a gluten free diet for a few weeks to check. She experiences bloating, diarrhea, sinus congestion, and trouble sleeping. Other than the bloating, none of her symptoms are like mine. She went off gluten, but the only thing she has noticed is that her sinuses are clear for the first time in years, but all her other symptoms still exist. I have to admit, even though I tell her what she shouldn't eat on a gluten-free diet, she isn't all that great at being really strict about it (still eating processed foods with low levels of gluten). Even though all her symptoms haven't gone away, does that mean that she isn't gluten intolerant? I felt amazingly better after a week on the gluten-free diet (granted, my symptoms were much more severe then hers), but she hasn't really noticed that big of a change. Could she be experiencing something else? Thoughts?
  22. I've been off gluten for several months now and I've been feeling a million times better, but lately I've been getting weird symptoms. I think it might be related to something that I'm eating, but I'm not sure what it is because I can't seem to find the source. Basically, I will all of a sudden feel nervous, then my palm start itching and then my hands start to tremor slightly. I get anxious, I can't sit still, and I feel paranoid. It will last several hours. If I take Benadryl then it all goes away, so obviously it's related to that in some way. I don't get these symptoms when I'm glutened. Any thoughts as to what it might be and what I should do about it? Allergy testing perhaps?
  23. Is there any reason to have a "definitive diagnosis" then? Does it matter for insurance or medical reasons? If you know to stay away from gluten, are there any benefits of having a positive diagnosis? My doctor said that I might have celiacs or I might just have a 'gluten sensitivity' and he didn't seem to think that it really mattered either way as long as I stay away from gluten. Is that a normal doctor response?
  24. For the blood panel to work, do you have to be eating gluten at the time? If so, how long beforehand do you need to be eating it for?
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