I was diagnosed with Celiac Sprue Nov.31 2008. The diagnosis was made through a blood test and a colonoscopy. I have total villious atrophy. Iga 250 and Igg 4.1
Depression overwhelms me at times.
The comments cut deeply. " Be glad it wasn't cancer. It could have been worse! " or " You have to be exaggerating the risks of contamination! A little can't hurt you that bad! "
I feel so alone in this struggle.
I have made this even worse by sometimes agreeing that I can't be THAT sensitive! To have to constantly avoid cross contamination is imposable. Do I honestly have to avoid everything that's been touched by glutton ???
I seem on the outside to have the silent celiac disease. Everyone asks me to tell then exactly what happens when I am exposed to gluten. They seem to think it should be instant or within hours.
About me: I am 68 and married to a man that try's to understand. I am blessed have two sons and three daughters. All of them think I am overly cautious about this disease.
I hope to begin to be better able to share and express my feelings and gain more understanding from them and my friends.
Right now I am withdrawing from them, because its just too hard.......
It's been two years and nothing has changed much except the fact that I have gained 25 lbs!