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Barbara A

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About Barbara A

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  1. When I was newly diagnosed, I also had a low wbc which was due to my malabsorption of iron. After receiving iron intravenously my wbc returned to normal. I am again having a low wbc and they are checking my iron levels. I am interested if any other people had similar problems. I am worried, as I am reading sometimes a low wbc is a more serious celiac call refractory sprue. Any one know of this??
  2. Help. I need some brand names for gluten free hair products. This includes hair spray, conditioner, and shampoo. I am having some trouble with hair loss and I am new to this celiac disease. thanks. Please name a few. I heard Matrix shampoo is ok.
  3. What products are safe??? This includes shampoo, conditioner and hair spray???
  4. I am confused as I thought corn was a safe product and gluten free. I have been eating corn chips, corn flat bread, etc. Does corn just bother some people? Most of the time I feel good but I do have a few questionable days. I am new so please help as this is confusing. I feel so bad for people with gluten and corn intolerence - not sure what you can eat! I also have another problem with eating which is those lunch time work parties, award dinners, etc where you don't know people well enough to say you have an allergy not anorexia. Thanks for your help.
  5. Thanks everyone. You are encouraging and I needed it. Yes sick chick you are the one who suggested biotin. I will let you know how it works for me. Best to all of you!
  6. Only way to know for sure is to call the manufacturer. You can also send an email but almost all manufacturers have researched their products for gluten. Good luck
  7. I recently had to have 8 iron IV infusions. These infusions also required that I got Solumedrol IV prior to the iron. I could tell I was getting gluten and they changed the IV med to Solucortef. All is fine now with no other changes in meds or diet. In my opinion and the doctors - Solumedrol had gluten; the manufacturer had never tested it for gluten. Solucortef had been tested. My advice try have doctors research medications prior to your infusions. Barb
  8. Help. I need to hear some positives. I have been losing hair for several months and was just recently diagnosed. I would like to know how long it takes to get my thick hair back to normal. Some one suggested biotin and I started that vitamin replacement today. Any other ideas?
  9. Thanks for your help. I will try all suggestions!
  10. I was diagnosed in mid-December, and ever since I changed my diet to gluten free I am hungry. I eat alot and need to snack frequently. It is odd that my appetite has increased, bcause my absorption should be improving. Has anyone else had a similar experience? I am trying to gain weight but even with all this eating/hunger it is a struggle. Thanks for your response.
  11. i THINK MY HEADACHES WERE FROM BEING ANEMIC AS MY IRON WAS VERY LOW. nOT SURE AS i STARTED IV IRON INFUSIONS AT THE SAME TIME AS I CHANGED MY DIET. I AM SURE THEY HAVE CHECKED YOUR HEMOBLOBIN BUT JUST AN IDEA BARB
  12. Help, I am again losing large amounts of hair. My hair loss seemed to improve after iron infusions, and my iron is now normal. I again started losing hair. Anyone else have a similar experience? Thanks, I am very upset. Barb
  13. Does anyone have excessive hunger? I am very thin and since diagnosis - 2months ago, I have a large appetite. I have only gained 2 pounds and am doing well eating gluten free. Does anyone else have this problem? I am also having hair loss again despite normal nutritional values. Please help Thanks Barb
  14. What do they do to help treat this dematiitis? I was diagnoses with Celiac through blood test and endoscopy two months ago. I have been eating gluten free and doing better. Suddenly this blister rash appears on my hand! Any suggestions for treatment? Thanks Barb
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