Jump to content
  • Sign Up


  • Content Count

  • Joined

  • Last visited

  • Days Won


Everything posted by GFinDC

  1. Hi Squirmy. I don't know the answer, but being a man that won't stop me from talking about it! Therefore, somewhat dubious thinking lies ahead. First off, could it be the arthritis has flared up? Maybe the extra folic acid kicked off an arthritis flare for some unknown and irritating reason? Here's a short article on supplements to take with RA. https://www.webmd.com/rheumatoid-arthritis/vitamins-ra#1 They say that Vitamin D is important to keep up on. They mention several other nutrients too. Although not vitamin K which I think may be helpful to take with Vitamin D. Vitamin D What it is: A nutrient that your bones, muscles, and immune system need. Your doctor can check your vitamin D level with a blood test. Why you need it: Your body needs it to use the calcium you get from food or supplements. RA tends to be worse in people who are low in vitamin D, but it isn’t clear why. Here is an article about a man on methotrexate who had a psoriasis flare after taking L. methlyfolate. My understanding is the methotrexate treats the psoriasis by interfering with the metabolism of folic acid. So when he took bioactive folic acid it nullified the methotexate's effect. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5192351/ ... Given that methotrexate's successful treatment of psoriasis is owing to inhibition of folate metabolism, it is logical that concurrent administration of L-methylfolate, folate's most biologically active metabolite, would significantly reduce its efficacy. ... I don't know if this helps any. (insert man-shrug here).
  2. Hi welcome to the forum! When you say you were re-tested, do you mean you had follow-up blood antibody testing, or an endoscopy? If you had the blood tests, what tests and were the results lower than the original tests? To be honest, it doesn't sound like you were being serious about keeping gluten out of your diet the first 5 years? If that is the case, you have really only been gluten-free for the past 6 months. The celiac disease immune response is activated by very small amounts of gluten, so even tiny amounts of cross contamination each week can keep the reaction going. While it is not usual to continue to have major symptoms after 5 years, it does happen sometimes for various reasons. Generally a person should be over the worst symptoms in 18 to 24 months of being 100% gluten-free. It's good that you have decided to make a more positive effort in preventing gluten in your diet. That's the only way to heal your body currently. One problem we tend to run into is that the longer our guts are inflamed and irritated, the more likely we will develop additional food intolerances. So you may find some of those have popped up. Sometimes these additional food intolerances can cause plenty of symptoms themselves. Some common ones are nightshades, dairy, soy, eggs, corn, oats, and all the other top 8 common food allergens. So it might help to eliminate all those from your diet for a few months to see if you heal faster. These additional food intolerances are sometimes temporary and sometimes permanent. It can also be helpful to eat a simple diet. Avoid processed foods and eat mostly food you cook from scratch yourself at home. Things like meats, nuts, veggies, fruits, are good choices. Eggs are good if you tolerate them. Almond milk or anything but soy milk is good as a dairy sub. Some people like Mission brand corn tortillas as a sub for bread. Aldi makes gluten-free wraps that are good too. They are also nightshade free. I was slow to recover also and still had symptoms at 5 years. Mine were mostly from additional food intolerances that I developed. I hope you feel better soon, An elimination diet can be helpful.
  3. Hi Jennifer, A positive is an indication of an immune system reaction. The biopsy is usually sent to a lab for microscopic examination. Sometimes the damage is severe enough for a visual determination. but more often it is found under a microscope.
  4. Hi Rita, I think you got some good explanations already. But yes, any positive antibody is a problem. Some people will be positive on all of them, some won't. We are individuals and can differ in how our bodies respond to things. Usually the DGP tests are considered more reliable and accurate. Another thing to have checked is vitamin and mineral levels. Since celiac damage can cause malabsorption it is possible to become low on several important nutrients. Vitamin D and B-12 and iron are some frequent problems.
  5. Hi Jennifer, You could very well have celiac disease. Anemia in iron or B-12 is a common symptom. Also common are deficiencies in fat-soluble vitamins like vitamin D. Vitamin and mineral levels are something your doctor should test for you. Gut pain and stomach pain is common too. Celiac disease is an autoimmune condition where the immune system antibodies attack the body, commonly the small intestine but any body organ can be targeted. Fatigue, and insomnia, check also. Please don't stop eating gluten until you have completely ruled out celiac disease through testing. Stopping gluten will change the antibody levels and give an incorrect test result. The diagnostic testing is to do a celiac panel (blood test) and a small intestine endoscopy if the blood results are positive. It is common for the endoscopy to be delayed for weeks or months. My guess would be you have celiac disease and H. Pylori took advantage of the damaged caused by celiac to move in.
  6. Hi RitaG, The IgA and IgG are types of antibodies. A positive means that antibodies are being produced in the body to attack the gluten eaten ( and the body itself). Although there are multiple types of antibodies, it only takes one kind of antibody to cause damage. Since the celiac antibodies are present, the next step is an endoscopy to check for celiac style damage to the small intestine lining. If the gut damage is confirmed, that is considered proof of celiac disease.
  7. Hi Deezer, The link below has a drawing of the abdominal layout. Looks like the spleen, esophagus, and stomach are the possible organ sources of your LUQ pain. https://www.webmd.com/digestive-disorders/picture-of-the-abdomen#1 I had a stomach ulcer in the LUQ years ago. It caused a sharp persistent pain. It varied with eating, generally seemed to hurt less for a time after eating. Recently I had pain in my LUQ related to taking aspirin every day. That pain was more of a dull ache that varied somewhat with eating. I suppose there may be other meds than can cause stomach pain. I don't know if you might be taking any meds that could cause pain as a side affect? Just some thots. I hope you feel better soon.
  8. Hi Sad, Welcome to the forum ! Lots of people don't get diagnosed. Often its for the same reason, they have gone gluten-free before testing. While it's nice to "know" you have celiac disease by medical standards, it doesn't outweigh what your body says. If gluten makes you sick, don't eat it! There are plenty of people with NCGS who don't test positive for gluten antibodies, but still have problems from eating it. Celiac testing is not perfect, and there are false negatives and rarely false positives possible. You don't need to have a celiac diagnosis to get your vitamin and mineral levels tested. Some of the ones celiacs are sometimes low on are B-vitamins, vitamin D, and iron. https://www.celiac.com/articles.html/celiac-disease-diagnosis-testing-amp-treatment/vitamin-deficiencies-and-celiac-disease-r3138/ There is a gene test for possible celiac. It doesn't mean you'll automatically have celiac, but that you are capable of developing it.
  9. Hi SF, It's not a bad thing to avoid rice. There were articles about rice in the U.S. having somewhat elevated amounts of arsenic in it a while back. There were even articles about rice and the celiac disease tie-in since people with celiac sometimes eat more rice than the average person. So they are more exposed to it. I don't know if that could have anything to do with your neuropathy though. Rice is used in a lot of gluten-free baked goods. People with celiac sometimes develop gluten ataxia also. Gluten ataxia causes damage to the brain. It's an immune response. This Livestrong article touches on several different possible causes or contributors to neuropathy. Something in it might strike a chord for you? I hope you feel better soon. https://www.livestrong.com/article/474218-foods-that-aggravate-peripheral-neuropathy/
  10. Those DMARD drugs sound like a great thing Squirmy. I'd sure be taking them also if I had RA. I wonder if they work for thinning hair? Well, if it's not something you are eating, maybe it's something you aren't getting enuff of? Had any WD-40 lately? I am sure there are lots of so called "cures" out there for RA, but I have no idea which of the "cures" would actually help. Maybe someone will come along with some helpful suggestions though. A nice cup of hot tea helps a lot of things though. I hope you feel better soon and have a great and Happy New Year!
  11. Sorry to hear you have another tie-in for your user name Squirmy! It sounds like your diet is really pretty healthy. But I wonder if it would be worthwhile to trial eliminate some things anyway? Like dairy for a few months, nightshades for a few months, caffeine for a month, soy forever. Just to be sure there is no relation to the symptoms. It would be nice if there is a food cause and you can get rid if it.
  12. Hi, Meats, veggies, nuts and eggs are good choices. Starchy veggies like white potatoes and rice are probably bad choices. It's easier to keep gluten out of your diet if you eat a simple diet with limited ingredients. Baked goods especially store bought ones are usually loaded with extra sugar and carbs that we don't need. A paleo style diet might be a good choice for you. There are almond milks available in stores. And also diary free cheese subs.
  13. Hi Plumbago, My friend that uses a CPAP started using it after throat surgery. He had a tumor in his throat they removed and then they put him on the CPAP machine. He was a smoker too so that probably had something to do with the whole thing for him. I hope the elephant is getting used to you now and letting you sleep better. Maybe if you leave some peanuts out for it by the bed it will behave? Merry Christmas!
  14. She should plan on repeat testing for celiac disease every 6 months or so. She has one of the genes and is having GI symptoms from eating gluten. The signs point to her having or developing celiac disease. It is better for her health not to let her immune system reaction intensify. What EnnisTX said is a good warning. Having a constantly irritated and inflamed gut lining can lead to our bodies developing sensitivities to lots of different foods, besides just gluten. So she is taking a risk of not being able to at many other foods besides wheat, rye and barley. A sample list from my own intolerances is wheat, rye, barley, oats, strawberries, carrots, potatoes, tomatoes, eggplant, peppers, dairy (including cheese), celery, soy, raisins, wine,. There's probably some I am forgetting. Anyhow, there is no way to reverse these food intolerances once they develop. Some people are egg or corn intolerant too. The celiac genes are associated with other AI conditions also. So there are forum members who have additional AI conditions that develop. Triggering the genes may cause that to happen. They call those associated conditions or related conditions. We tend to to call that multiple AI conditions and no fun. So, those are some things for her to think about. It is less likely she will have those kinds of problems occur if she avoids gluten IMHO.
  15. Hi Jayl, They usually do a serum IgA test to verify the person can make IgA. Some people can't make IgA so for them the IgA type tests are useless. That 436 number is probably the total serum IgA test result. It means you do make IgA type antibodies so the IgA type antibody test results are valid in your case.
  16. Hi Pozzled, I agree, she should stay on gluten until all testing is completed, including the endoscopy. But, she doesn't need to eat a lot of gluten to keep the antibody reaction going. If she eats just a half slice of regular wheat bread daily that should do it fine. She may feel better if she stops eating all dairy products for a few months also. Celiac impairs our guts ability to digest dairy sugar (lactose) and that can cause unpleasant GI symptoms. The inability to eat dairy is sometimes temporary and may go away after 3 or more months gluten-free. Celiac is linked to several genes so it may be on your or her fathers side too. The antibody level she had does sound high. Usually the lab provides the value ranges with the results as they vary by lab. The celiac antibody panel includes several tests: DPG IGA DGP IGG EMA ttg IgA total serum IgA They might call that a full celiac panel. The full panel is what you want for testing. She probably had just the ttg IgA which is often used for screening. But it doesn't include the other antibodies like IgG and EMA. So you don't have a record of what those numbers are. There is a newbie 101 thread in the Coping With section that has some tips in it. Welcome to the forum!
  17. Lactaid pills break down the lactose sugar in foods. Lactaid pills have the lactase enzyme in them. We don't know what gluten pills you are talking about because you haven't given us the name of the product. But there are no pills that 100% degrade gluten or wheat available yet. And no pills can prevent an allergic response before it starts which is very soon after ingestion of the allergen. Allergies can become more severe very suddenly and be dangerous. They are not something to take a chance on for a pizza or other treat IMHO.
  18. Hi, CL has it right. He has to eat at least some gluten every day to keep the antibodies active and in numbers they can test. They should do a test called a full celiac panel. It includes gliaden antibody tests for DGP IgA, DGP IgG, ttg, serum IgA, and EMA. After a positive blood test for gliaden antibodies, they would do an endoscopy to check for damage to the small intestine. Usually the endoscopy is done some weeks later. I agree, don't give him ibuprofen or Tylenol either. Plain aspirin is much safer than either of those. He may also have trouble digesting dairy. Celiac can cause damage to the small intestine lining that digests dairy sugar. So he may feel better if he stops dairy and switches to non-dairy foods. Lactaid milk may be ok. Going dairy free won't affect the celiac testing. Try doing an web search for doctors and celiac in your area. Try to find one that has some experience with celiac. You may even find a support group in some areas.
  19. Hi ymayhew, A lot of people have at least one of the genes for celiac disease. Approximately 30% or so in the USA. However a relatively small percentage actually develop celiac disease. It may be that a virus kicks off the celiac reaction, but I don't know if that is proven. The reason celiac starts in some but not others is still a mystery. It seems like people have worse symptoms after being off gluten and then going back on it per member posts here. That seems to align with your experience of being away and coming back to work in the pizza joint. You'll probably need to find a different job if you have celiac disease. You only need one positive antibody result for celiac damage to occur. Even if your biopsy doesn't show celiac damage, I suggest going gluten-free. Celiac testing is not perfect yet and false negatives are possible.
  20. Hi Joe, I don't know how much the anxiety bothers you / affects you. So I can't say if it is worthwhile for you to take drugs for it. I know for me my anxiety reduced quite a lot after a couple months on the gluten-free diet. I didn't take drugs for it myself but maybe if I was smarter I would have. It certainly was a relief when my anxiety subsided. Lactose free milk is not a bad idea to try. There are also almond milks and rice milks etc. I suggest staying away from soy milk as soy is a top 8 allergen in the USA. You probably don't need to use plastic plates and silverware. I keep a small container of silverware that is just for me. Knives, spoon, fork etc. on the counter. If someone has been baking with gluten flour I rinse the silverware off before using it. Same with plates and such, I wash them or rinse them if they are already clean. It just takes a few seconds to do that. I also have a small dorm style refrig that I keep some of my food in. That way it's separate from the gluten eaters. Another thing is to keep all your gluten-free food on the top shelf in a shared refrig. That way gluten crumbs don't fall down on your nice, expensive gluten-free foods. I mostly cook my own food. My two brothers also cook but I seldom eat what they cook. I figure if they eat gluten they must have cooties so no thanks. There is a thread called Newbie 101 stickied in the "Coping With" section. It has some tips that may help you. You are young so you may recover quickly. It all depends on how good you are at avoiding gluten. Things like shared peanut butter or butter, mayo etc can be a problem. Get your own and label them Joe's stuff, touch and die!
  21. Hi Joe, Welcome to the forum! How long we take to feel better varies a lot. One of the most important things to help that healing is to keep 100% gluten-free. Or as close as we can manage. The immune reaction in celiac can take months to calm down. So any little ingestion of gluten can trigger a months long immune attack. Depression, anxiety etc are linked to celiac disease. Our bodies don't function well without the critical nutrients they need to operate and repair cells. That can affect hormones that affect our mood and also nerves that form our brain. Did you know your brain is mostly made of fat cells and nerve cells? Celiac damage can make it hard to absorb B-vitamins that are important for nerve health. That can affect our brain. Celiac can also reduce our ability to absorb fats. Your anxiety could very well be caused by celiac damage. And it could reverse or go away too. Just stick with the gluten-free diet carefully and be patient with your body. You may feel better not eating dairy for a few months. Celiac impairs our ability to digest dairy sugar (lactose).
  22. Hi zigybean, Type 1 diabetes is one of the conditions associated with celiac disease. Thyroid disorders are another one. But any other AI condition is a possibility. It's not a bad idea to stick with a low carb, meat and veggies diet for a while. Skip the gluten-free baked goods and such and instead eat foods you cook yourself at home. Many people find avoiding dairy for a few months is also helpful. It's not a bad diet once you get used to it. But like any change it can take time to adapt. https://www.cureceliacdisease.org/faq/what-other-autoimmune-disorders-are-typically-associated-with-those-who-have-celiac-disease/
  23. Oh fudgesickles! Chuck that! @zigybean Celiac can be triggered at any point in life. If your immune system learns to attack the gluten in your diet and your small intestine lining, then you have celiac disease. Your immune system is always detecting invading microbes and and such, and learning to fight them. That's how we get celiac disease. Somehow the immune system gets confused around gluten and attacks our gut lining as well. About 30% of people in the USA carry one of the genes for celiac disease, but only 1 to 3% are actually triggered to become celiac. Celiac is an auto-immune condition. Congratulations, you now have an incurable AI disease/condition! But it's not all upside down smiles. Celiac is the only AI condition where we know the trigger (gluten) and so we can control (and curse) the reaction. All it takes is radically changing our diets for the rest of our lives. Fudge marshmallows!
  24. Right, it's not just cancer. Your symptom free days won't last forever. The damage from celiac will add up and cause more and more symptoms. You are at an age where it is important to have good nutrition. Our bodies ability to absorb nutrients decline as we age. So you already have that plus celiac makes it much harder to absorb vitamins and minerals and fats also. That can cause numerous problems throughout the body, not just the gut. Our brains are made up mostly of fat cells and nerves cells. So when you can't absorb fats and B-vitamins your brain is in trouble. It can be hard to adjust to the gluten-free diet at first. We are used to eating certain foods and those habits need to be broken. It's kind of like learning to eat all over again. Except we already have the chewing part down. :) After a while though you don't miss the old foods anymore. And will probably find you like eating more wholesome, nutritious foods that make your body happy. Things like steak, potatoes, broccoli, eggs, soups etc. Lots of choices really in whole foods that we can make ourselves.
  • Create New...