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GFinDC

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GFinDC last won the day on August 23

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About GFinDC

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    A little farting never hurt anybody... :-).

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    Amesville, Ohio USA

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  1. Hi Matt,

     

    She should read the newbie 101 thread at the top of the forums.  It has some advice that can help beginners.  The biggest thing is to avoid eating even tiny amounts of gluten.  The celiac reaction is auto-immune and it only takes a very small amount of gluten to kick off the reaction.  The gut can't heal while the immune reaction is ongoing.  So she can't fully absorb nutrients until the reaction stops and she has some time to heal.  The immune reaction may take months to stop completely.

     

    A good diet to follow is whole foods cooked at home, and avoiding most processed foods.  Some people can't eat dairy without issues for about 6 months or so.


  2. Hi, My younger brother had both Crohn's and celiac disease.  So it's possible to have both conditions.  If you read some of the Crohn's forums people sometimes follow the gluten-free diet for Crohn's.   Some find it helpful, others don't.  I wouldn't rule out taking drugs for Crohn's myself.  From what I understand, sometimes people take a drug until they go into "remission" and then they stop or take a lower, maintenance dose.  There's an awful lot not known about Crohn's still.  But if drugs can prevent having to get a surgery, it seems worthwhile to take them,  IMHO.


  3. Hi Beth,

     

    I don't remember if you had done an elimination diet?   Even if you have, it might be a good idea to try another one.  Gluten isn't the only food that can make us sick.  We can develop reactions to many different foods.  Another thing to try might be eating Brazil nuts.  Someone suggested that to me a while back and it helped my energy levels a lot.   They have a lot of selenium in them.   A couple a week is plenty if you are deficient.  Too many is not good though.


  4. Hi,

     

    Fistulas can happen sometimes in Crohns patients.  The fact that you had symptom reduction on a gluten-free diet is good to know.  Some people with Crohns go gluten-free and have improvements.  It is possible to have both celiac disease and Crohns at the same time.

     

    There are some tests for food intolerances, but not many.  Sometimes the best test is what your body tells you by it's reactions.  A food elimination diet can help pinpoint foods that cause reactions.


  5. Hi Hannah,

     

    I agree with everything said before.  Some real good advice there.  One thing that helped me a lot with fatigue was taking selenium.  I had been taking vitamin pills but they didn't have any selenium in them.  Some people suggested eating Brazil nuts (high selenium) once in a while and that helped a lot.  Another thing that helped was making sure there was enough iodine in my vitamins and using iodized salt instead of sea salt.  And stopping coffee.

     

    When you have celiac disease your intestine can become damaged and not absorb vitamins efficiently.  So it can be important to take vitamins even if you are eating a healthy diet.  We just need more vitamins incoming to absorb the same amount as everyone else.  That should change as we heal tho and return to a more normal absorption rate.  All this is IMHO.  It's good to go by the vitamin level testing as you have been doing.  Getting a copy of your test results and checking them yourself is important tho.  You don't want to be a the very lowest edge of the ranges, or at the high end.

     

    We don't all have the same food issues.  Some people find stopping dairy for a while helps them feel better and digest better.  Other find additional food intolerances beyond dairy over time.  It's a learn as you go process.


  6. I gave up on all beer once I was gluten-free. I do, however, love the hard ciders out there! They're naturally gluten-free and taste delicious! Don't be fooled by Redd's apple ale-it's a beer. I should have picked up on 'ale'. My favorite is Woodchuck pear cider. I also like Michelob's Light Cider when I want to watch my calories. Just another option to have!

     

    I checked with Redd's apple Ale and got this response Jan-2015.  They do make a couple of gluten-free ciders, but the Redd's line is not gluten-free.

     

    Thank you for contacting MillerCoors.

     

    We appreciate you taking the time to contact us Paul. Unfortunately, our Redd's line is not gluten free. However, we do have our Crispin Cider Line and Smith and Forge Cider that are gluten free.

    Thanks again for contacting MillerCoors.

     

    Sincerely,

    MillerCoors Consumer Affairs Department

    Ref: Case#N22134909

     

    ________________________________________________________________

    BNektar zombie killer cyser is supposed to be gluten-free also. It's a mead, not beer.

     

    http://www.ratebeer.com/beer/b-nektar-zombie-killer/141980/


  7. Welcome Jennifer,

     

    There is a sticky thread at the top of the coping forum with some beginner info that might be helpful  to you.  Here's a link to it also:

     

    Newbie Info 101

    https://www.celiac.com/forums/topic/91878-newbie-info-101/

     

    I can tell you that lots of adults have issues adjusting to the gluten-free diet.  Changing your diet can be a little bit of a challenge.  I didn't think it was real fun myself.  But after doing it for  a few years it became the normal diet to me and I didn't miss the other foods anymore.  It just takes time and determination to make it work.    A little pre-planning helps too.  Like taking some gluten-free fruits and snacks with you on trips.  Some of us pack our own lunches so we have something safe to eat.  There are more restaraunts that make gluten-free food these days.

     

    A good way to start eating gluten-free is to stick with whole foods and avoid processed foods.  Eating mostly meats, veggies, fruit and nuts and not much in the way of baked foods.  By doing this you avoid having to worry about the long ingredient lists on processed foods.  Plus whole foods are better for everyone.

     

    gluten-free is becoming a standard diet option these days.  It's still considered unusual but is becoming more mainstream.  One estimate I saw said that about 30% of the USA population has at least one of the genes for celiac disease.  That's a lot of people that might get celiac disease at some point.  Having the genes doesn't mean you will get celiac, just that it is possible.

     

    Now for the scary stuff.  There are a lot of potential problems that can develop in people with celiac who ignore the gluten-free diet.  People tend to develop additional auto-immune diseases over time.  This article has some info.

     

    Celiac Disease Research: Associated Diseases and Disorders

    https://www.celiac.com/categories/Celiac--Disease--Research..--Associated--Diseases--and--Disorders-c-3344

     

    In addition to the risk of developing additional diseases, there is the issue of just plain feeling crappy.  Celiac disease damages the villi lining the small intestine.  That damage interferes with proper absorption of nutrients, (vitamins, minerals proteins etc) that our bodies need to function and repair themselves and grow.  Over time the body begins to fail due to starvation of vital nutrients, even though you are eating every day.  People start feeling tired and foggy and sometimes grouchy and forgetful too.  It's not a fun way to live.  It's especially hard on growing young people's bodies as their bodies need lots of nutrients to build tissue and grow properly.  Some kids end up being short adults or having other problems, like bad enamel on their teeth, hair falling out, skin rashes, etc.  So celiac's nothing to play around with and treat lightly.

     

    A tricky thing about celiac is you can't always judge the damage by symptoms.  Some people have few digestive symptoms or even none at all.  But their gut is still being damaged.  That's called silent celiac.  The immune response can be kicked off by a small crumb of gluten, and can last for months.  So it can take quite a few months to get over a relatively small glutening.  That's why it's important to avoid all gluten, even trace amounts.

     

    Well, there's an awful lot to learn about celiac disease, but you don't have to learn it all at once.  Once you decide to really go gluten-free, you find you start feeling better after a while.  And if it's hard there are lots of people on this forum who can help with suggestions etc.  We all went through the newbie stage ourselves so we understand how hard it can be.

     

    I hope you stick around and do some reading on the forum.  There are a lot of helpful people here. :)


  8. I agree with seeing a real doctor.  But, since you have been eating gluten-free, the celiac testing may not work.  The celiac blood antibody tests are usually the first step in celiac diagnosis.  But if you start eating gluten-free, the antibodies levels in the blood start dropping and the tests won't show an accurate result.  You could go back on a gluten full diet and get tested for celiac after 3 months.  In the meantime your doctor can rule out other possible issues though and that's a good thing to do.


  9. Right Cap6, the don't have a gluten-free menu at any of their restraunts now.  That was probably a response to the new FDA regs on gluten.  They (TR) say on their site to check with the local restraunt for gluten-free options.  Same thing you said.  So far it has worked out ok for me, no problems.


  10. Hi Tfr,

     

    Welcome to the site! :)

     

    You may want to read up on dermatitis herpetiformis (DH).  DH is an auto-immune condition that occurs in people with celiac disease.  People with DH may not "test well" on the regular celiac disease antibodies tests.  Sometimes they have to get a skin biopsy of the area near the lesions to detect the antibodies in the skin.  The IgA antibodies build up in the skin.  If you do have DH then you have celiac disease even if the blood antibodies aren't detected.


  11. Hi,

     

    Welcome to the forum Blue!  :)

     

    Your doctor is wrong, celiac can cause plenty of pain.  The first thing you need to do is change your diet.  After you read this thread tho:

     

    Newbie Info 101

    https://www.celiac.com/forums/topic/91878-newbie-info-101/

     

    Sometimes the pain in our gut is made worse by gas trapped in the innards.  That can be helped some by avoiding foods that cause gas, like dairy, sugary and carby foods etc.

     

    Peppermint can help relax stomach muscles and make it easier to get gas out.

     

    Aspirin can help with pain.

     

    Pepto Bismol can help soothe the gut.

     

    Probiotics and digestive enzymes can help also.

     

    Try to stick to a mostly whole foods diet and avoid most processed foods for awhile.

     

    Healing the gut takes time but the process won't get far if you are getting glutened by crumbs or flour  every day.  That where eating whole foods really helps.  Some people get relief quickly but for others it can take months for the immune response to settle down.  You should notice some improvement in a few weeks though.


  12. That's great you are feeling better Mike!  It makes sense to have your dad tested.  Celiac is genetic so it tends to run in families.  It seems that the genes for celiac are also related to some other auto-immune diseases.  There are lists of celiac associated diseases on the internet.  So sometimes people with celiac start checking their relatives and find they have auto-immune diseases also.  Things like rhuemetoid arthritis or Hashimoto's thyroiditis disease etc, etc.   Stick around and we will be glad to help you get started and answer questions.  and Merry Christmas! :)


  13. Hi Brit,

     

    I had mucus sometimes before going gluten-free.  Alternating constipation and diahhrea is fairly common I think.  The effects of celiac disease damage can be spread throughout the body.  They aren't necessarily confined to the gut.  Some people develop a skin rash, some get joint pain, some get brain lesions.  There are other symptoms too (300 or so).  The skin rash associated with celiac disease is called dermatitis herpetiformis.  The brain lesions are associated with gluten ataxia.


  14. Welcome Mike!

     

    Yes, it's pretty common for doctors to mis-diagnose celiac disease patients.  I think they say the undiagnosed celiac percentage is something like 85% now.  Down from 90 or more % earlier.  Many people suffer with symptoms for years before getting diagnosed or just deciding on their own to go gluten-free.  The celiac testing isn't perfectly accurate so there is a chance of false negatives in it.

     

    It would be good idea to get your test results from the doctor in writing for the celiac panel and the endoscopy.  You can have the celiac panel redone and see if there is any difference.  Sometimes labs make mistakes too.  There are people on the forum who had negative blood tests but positive endoscopy results too.

     

    https://www.celiac.com/forums/topic/110359-many-providers-stray-from-guidelines-for-diagnosis-and-management-of-gastroenterology-endoscopy-news/


  15. Hi Mandy,

     

    You might want to read Dr. Peter Green's book:

     

    https://www.celiac.com/forums/topic/12782-new-book-celiac-disease-a-hidden-epidemic/

     

    I think he recommends women wait 6 months after going gluten-free before another pregnancy.  Probably so the body has a chance to recover/heal some and restore vitamin levels to normal.  People on this forum sometimes report ongoing symptoms after going gluten-free that last up to a year or more.  Not everybody takes that long to recover but it does happen.  That time might be shortened by being extra careful of your diet choices.  Eating mostly whole foods and avoiding processed foods for example.

     

    Like Squirmy said, if you aren't eating gluten before tests they are not reliable.  That means eating gluten for a period of time, not just a day before the test.