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Molecular Dude

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About Molecular Dude

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    science, football, racquetball, comedy, cooking
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    Melbourne, Florida
  1. Thank you all so much for your responses. Yes, the correct and rational path is to ALWAYS remain gluten free, and recalling/realizing the terrible effects of gluten on your body and mind is the best way to overcome the temptation of savoring and devouring your old favorite foods. Besides, I'm certain that I will suffer through cross-contamination somewhere along the way and that will set me straight.
  2. Hello All, I haven't posted recently because I've been essentially symptom-free for about 2 months now, which is absolutely amazing and I wish that everyone could feel as well! The problem is that I'm starting to get this feeling of invincibility. For more than 5 years the slightest hint of gluten would make me ill. Now, I'm still very careful and haven't changed my diet in any way, and I'm finally OK. I guess that my system has healed adequately to allow me to be asymptomatic. Strangely though, this lack of symptoms in a way makes things boring and mundane, and I'm feeling temptation to stray from the diet. It's odd that having problems enables one to maintain the gluten free diet far more easily than feeling well does. (I suppose that recovering drug and alcohol abusers face similar situations, but I have no personal experience with that). From a purely intellectual perspective, I know that I have to stay gluten free, but I certainly long for those days when I didn't even know what gluten was! Any suggestions for how to keep convincing oneself to stay gluten-free when feeling well? Thanks
  3. It's a reference to a journal abstract that can be found by searching for "celiac" at http://www.pubmed.gov Molecular Dude
  4. Hello All, In a recent study (Eur J Gastroenterol Hepatol. 2008 May;20(5):423-429), it was reported that some individuals with >10-yr biopsy-proven celiac disease experienced spontaneous gluten tolerance and a complete return to normalcy. It is extremely interesting that this is possible although the mechanism is entirely unknown. I'm just wondering, if I became completely asymptomatic, how long it would take me to believe that I was "cured". I'm not sure that I would ever believe it, or trust in my ability to consume gluten. How about you? Thanks
  5. Hi everyone, I do the very best that I can to avoid gluten-containing foods, but I live in a gluten-filled household, and we still eat in restaurants about once every two weeks. I also seem to have a spectrum of additional food sensitivities that I have never completely nailed down. As a result, it is quite common for me to experience digestive system discomfort once or twice a week even though I NEVER deliberately consume gluten (I really don't know whether this discomfort results from gluten contamination or from other food sensitivities). Recently, however, I have been in some sort of remission during which I haven't felt that discomfort. I have also experienced this in the past, and was then actually foolish enough to try a few gluten containing foods. Having learned my lessons, I won't be trying that again, but I am left wondering what causes these periods of symptomatic remission. As far as I can tell, I haven't changed my diet in any way. Have any of you had similar experiences? Thanks
  6. Glad to hear that, eventually, this will likely become second nature to me. I think that I probably would have already attained that state, but I live in a gluten-filled household and that definitely complicates matters. Actually, the most troublesome part is that family and friends are always bringing up the issue, so I always find myself discussing gluten, etc., rather than just allowing it to quietly settle in and "become a part of me." I guess that I shouldn't complain about this since they think that they're acting in my best interest, and I suppose that they really are.
  7. After 4 years of being gluten free I find that I still "think" about being gluten free. I don't think about whether it's OK to drink water. I also don't think about self-preservation, or avoiding accidents, or a million other things that are just intinctual. But, even in my own house, I still think about avoiding gluten. Does this ever end, or does it go on forever because it was not learned/acquired in childhood? Does it differ for those who have "always" been gluten free?
  8. I find that whenever I attend anything involving food, my dietary requirements quickly become the center of conversation. This is the case even when I don't bring it up because someone else will mention it, and it just takes off from there. Sometimes I wish that everyone would just give it a rest, forget about it, and just let me deal with it on my own. It can make me feel as though there is essentially no other aspect to my being! But then, I wonder, how I would react if I were the one who could eat whatever, and someone else was in my shoes. I would probably do what everyone else does: ask lots of questions and try to be helpful, while not realizing that I'm probably driving that poor soul crazy. I guess there really is no way to win. I can't keep it a secret, and they just want to help.
  9. I'm like you! I love Chebe breads, but they have virtually the same effect on me as regular wheat bread products! The same with all gluten-free products that have tapioca as a major ingredient -- go figure.
  10. For those of you that have been gluten free for some time: How long does it usually take for you to feel the effects of gluten exposure? For me it's generally 3-5 days
  11. Hopefully, you're "out of the woods," but it's sometimes taken up to a week for me to experience significant digestive effects from known gluten exposure. In fact, the usual time for me is 3-5 days.
  12. For those of you that are saying "No", I certainly understand your views. There is always risk with drug trials, and with medications even after they have been approved by the FDA. But, remember this is a HYPOTHETICAL secondary trial (I mentioned AT-1001 only as an example to start this thread). I probably wouldn't participate in a Phase I study either. But, the way I see it when it comes to Phase II, you can't win if you don't play! If it turns out well, you have helped both yourself and the world community. If not, at least you took a shot at bettering both yourself and the world.
  13. This is hypothetical. What if an experimental treatment for gluten sensitivity (ex. AT-1001, the zonulin inhibitor) proved to be very effective in preliminary trials, but little or nothing was known about possible side effects or long term effects. Would you be willing to participate in the secondary trials? I think that I would because I really hate having to be on a restricted diet. But, it often takes quite a while for such trials to be conclusive and to reveal any unpredicted/unpredictable problems. Also, if the drug is not completely effective in blocking the autoimmune problems associated with celiac, this alone could cause long term problems. I'd be willing to give it a shot? How about you?
  14. Hi Everyone, My wife and I would like to catch a new movie this weekend (or soon). We like comedies, and are thinking of seeing "The Bucket List". Comments/Suggestions?
  15. I'm so frustrated!! We have some very good friends with whom we often go to restaurants together. They are well aware of my dietary needs and have no problem coping with how I have to deal with restaurant menus, staff, etc. Last week we went to a tapas-style place where we ordered multiple dishes and passed them around. We were careful to avoid all of the obviously problematic dishes, and informed the waiter of my dietary needs. Needless to say, I developed my usual gluten-exposure symptoms afterward, despite our very best efforts to avoid the problem. This certainly is not the problem at all restaurants, but when it is, it just makes me want to pull my hair out!! Why don't I just order a platter of egg rolls and a pizza and just have a heck of a lot of fun, sharing with others, if I'm going to suffer the consequences anyway? At least that way our friends wouldn't be restricted in what they can eat, and I probably wouldn't feel any worse as a result afterward. Sorry for ranting, but I just had to get that out! I really do know better -- I think.
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